www.whocaresbooks.com This is the story of the true patient experience combined with extensive research and shocking stories that have led to the conclusion that the system is indeed broken.
The book will take you through parts of the healthcare system from the viewpoint of a teen mom and her son, with complex medical needs and intellectual disabilities, over the course of 2 decades.
As a patient or family member of a patient you intersect with the medical system at your most vulnerable, weak, and in desperate need of help.
It is at this point you are told to be an Advocate and be vigilant to what is being done to you. If something does not look right, you must speak up.
The truth is how? How do you advocate when you are likely having the worst day of your life.
My question is Why? Why do we have to learn advocacy skills and be prepared to fight?
Can we simply be cared for as equal human beings.
During an emotional discussion with a pediatrician, he asked "what do you want?" I simply said, "I want you to care".
Because "if you cared about what happens to my son when you leave his hospital room, you will do whatever is necessary".
