Working with Self-Management Courses: The thoughts of participants, planners and policy makers

Working with Self-Management Courses: The thoughts of participants, planners and policy makers

by F. Roy Jones
     
 

ISBN-10: 0199539316

ISBN-13: 9780199539314

Pub. Date: 04/12/2010

Publisher: Oxford University Press, USA

The management of chronic disease and the contribution patients make to their own care is attracting widespread attention, nationally and internationally. A range of self-management courses have been developed by Kate Lorig and her team at Stanford University's Medical School since the early 1980s, and these have now been implemented throughout the UK. Designed for

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Overview

The management of chronic disease and the contribution patients make to their own care is attracting widespread attention, nationally and internationally. A range of self-management courses have been developed by Kate Lorig and her team at Stanford University's Medical School since the early 1980s, and these have now been implemented throughout the UK. Designed for people with long-term health conditions, they are delivered by hundreds of agencies worldwide, and differentiate the concept of disease management (to be done by a health care professional) from the individual's management of life with a long-term condition (self-management).

This book explores how this work became important to the NHS and airs the arguments about the importance of lay leadership. It brings together those who have been instrumental in developing these courses, and assesses the value they hold for the different groups involved directly in them (participants, course trainers, staff), and those it will affect indirectly (GPs, nurses, policy makers, commissioners). The reader will find personal experience and accounts of the excitement in designing new work. Reflection on what happens to people attending courses is set alongside consideration of radical questions about the need for resilient communities. Next, the research reports are followed by considerations for policy makers and local agencies, voluntary and statutory. Finally, questions about the future direction and links to local communities are raised.

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Product Details

ISBN-13:
9780199539314
Publisher:
Oxford University Press, USA
Publication date:
04/12/2010
Pages:
200
Product dimensions:
6.10(w) x 9.10(h) x 0.60(d)

Table of Contents

1 UK origins and arguments F. Roy Jones Jones, F. Roy 1

2 The ideas and health context from which self-management emerged Jennifer Newbould Newbould, Jennifer 9

3 Participants views 17

Scottish Lowlands Carol McNaughton McNaughton, Carol 17

Tower Hamlets Christine E. A. Cupid Cupid, Christine E. A. 18

The Christie, Manchester Course Tutor (Anonymous) 21

4 Advanced journeys into self-management 23

A personal journey Barbara Hogg Hogg, Barbara 23

The HOPE course Andy Turner Turner, Andy 26

The theory, philosophy, and process of developing the Staying Positive Programme for adolescents with long term medical conditions Kathy Hawley Hawley, Kathy 33

5 The principles of lay leadership Jean Thompson Thompson, Jean 41

6 Delivering courses now 47

Looking at the Expert Patients Programme Jim Phillips Phillips, Jim 47

The programme in Scotland Angela Donaldson Donaldson, Angela 51

Why we chose to get engaged in self-management in Tower Hamlets Elizabeth Bayliss Bayliss, Elizabeth 55

Still questions after 15 years of experience Phil Baker Baker, Phil 59

The online opportunity Ian McNeil McNeil, Ian 64

Maintaining standards Jane Cooper Cooper, Jane 67

7 The value of self-management: Retrieving a sense of self: the loss and reconstruction of a life Patrick Hill Hill, Patrick Mike Osborn Osborn, Mike 73

8 Self-management and government policy David Colin-Thome Colin-Thome, David 83

9 The business case for lay-led self-management Keith Hawley Hawley, Keith 91

10 Implementing pilot EPP within the wider strategy to support self care Ayesha Dost Dost, Ayesha 99

11 Self-management and patient and public involvement Bob Sang Sang, Bob 107

12 The Expert Patients Programme - Community Interest Company: The future Simon Knighton Knighton, Simon 115

13 Co-Creating Health: Transforming health care systems Natalie Grazin Grazin, Natalie Roy Jones Jones, Roy 123

14 Three bodies of the UK research 133

Coventry University Julie Barlow Barlow, Julie 133

The National Primary Care Research and Development Centre, University of Manchester Anne Kennedy Kennedy, Anne Anne Rogers Rogers, Anne 140

Coventry University Applied Research Centre Health and Lifestyle Interventions: Learning from Co-Creating Health Louise M. Wallace Wallace, Louise M. 146

15 'Hard talk': What do we really know about the benefits and value of self-management course provision? David G. Taylor Taylor, David G. 157

16 Which way is forward? F. Ray Jones Jones, F. Ray 165

Index 173

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