Working with Self-Management Courses: The thoughts of participants, planners and policy makers

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Overview

The management of chronic disease and the contribution patients make to their own care is attracting widespread attention, nationally and internationally. A range of self-management courses have been developed by Kate Lorig and her team at Stanford University's Medical School since the early 1980s, and these have now been implemented throughout the UK. Designed for people with long-term health conditions, they are delivered by hundreds of agencies worldwide, and differentiate the concept of disease management (to be done by a health care professional) from the individual's management of life with a long-term condition (self-management).

This book explores how this work became important to the NHS and airs the arguments about the importance of lay leadership. It brings together those who have been instrumental in developing these courses, and assesses the value they hold for the different groups involved directly in them (participants, course trainers, staff), and those it will affect indirectly (GPs, nurses, policy makers, commissioners). The reader will find personal experience and accounts of the excitement in designing new work. Reflection on what happens to people attending courses is set alongside consideration of radical questions about the need for resilient communities. Next, the research reports are followed by considerations for policy makers and local agencies, voluntary and statutory. Finally, questions about the future direction and links to local communities are raised.

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Editorial Reviews

Doody's Review Service
Reviewer: Patti P Urso, PhD (Walden University)
Description: Using the comments of persons who have been involved in developing and participating in disease self-management courses, this book assesses the value of the courses to the communities for which they were designed as well as their relevance to potential policies and research.
Purpose: The purpose is to present the concept of self-management from a historical perspective, through an experiential one, and ultimately its future implications, using the perspective of multiple key players such as participants and providers. Although a book that explores this concept is needed, the objectives of this book are unclear.
Audience: This book is useful for those who are involved in teaching or developing self-management courses. It is also useful for proponents of the advancement of policies by understanding how these courses were designed and delivered. This book would be recommended for those interested in affecting policy and research directions. However, it would not be useful to participants in self-management courses due to its philosophical content.
Features: It covers a wide variety of experiences expressed by those who are involved in developing courses for self-management, starting with the historical perspective of self-reliance as far back as the 1800s. Many of the chapters center around the experience with courses, the support of agencies such as the National Institutes of Health, and a conclusion of the value of the self- management courses for primary prevention and the effect on participants. A lack of connection between chapters makes it a bit difficult to understand the themes of this book.
Assessment: This is a very unique book that focuses on highlighting the value of lay leadership in issues such as policies affected by the design of self-management courses in the U.K.
From The Critics
Reviewer:Patti P Urso, PhD(Walden University)
Description:Using the comments of persons who have been involved in developing and participating in disease self-management courses, this book assesses the value of the courses to the communities for which they were designed as well as their relevance to potential policies and research.
Purpose:The purpose is to present the concept of self-management from a historical perspective, through an experiential one, and ultimately its future implications, using the perspective of multiple key players such as participants and providers. Although a book that explores this concept is needed, the objectives of this book are unclear.
Audience:This book is useful for those who are involved in teaching or developing self-management courses. It is also useful for proponents of the advancement of policies by understanding how these courses were designed and delivered. This book would be recommended for those interested in affecting policy and research directions. However, it would not be useful to participants in self-management courses due to its philosophical content.
Features:It covers a wide variety of experiences expressed by those who are involved in developing courses for self-management, starting with the historical perspective of self-reliance as far back as the 1800s. Many of the chapters center around the experience with courses, the support of agencies such as the National Institutes of Health, and a conclusion of the value of the self- management courses for primary prevention and the effect on participants. A lack of connection between chapters makes it a bit difficult to understand the themes of this book.
Assessment:This is a very unique book that focuses on highlighting the value of lay leadership in issues such as policies affected by the design of self-management courses in the U.K.
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Product Details

  • ISBN-13: 9780199539314
  • Publisher: Oxford University Press, USA
  • Publication date: 4/12/2010
  • Pages: 200
  • Product dimensions: 6.10 (w) x 9.10 (h) x 0.60 (d)

Meet the Author

Roy Jones led the team that introduced Stanford's Arthritis Self Management Programme to the UK, as Director of Services at Arthritis Care. Between 1993 and 2000 the programme grew extensively and was piloted in the NHS after the adoption of the Expert Patients report in 2001. Roy served on the DoH Task Force and the DoH Implementation Group guiding those developments. Previously, as Director of the Council for Voluntary Service, Northampton and County, community development work formed his commitment to local level service delivery. He worked on the establishment of the Councils of Disabled People and supporting independent welfare rights services. His concern for disabled people continues as Vice Chair of the Disability Alliance. In his consultancy role he has worked for the Department of Health and a number of health management and pharmaceutical companies. His continuing academic links are primarily with Coventry University and The School of Pharmacy, London, UK.

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Table of Contents

1 UK origins and arguments F. Roy Jones Jones, F. Roy 1

2 The ideas and health context from which self-management emerged Jennifer Newbould Newbould, Jennifer 9

3 Participants views 17

Scottish Lowlands Carol McNaughton McNaughton, Carol 17

Tower Hamlets Christine E. A. Cupid Cupid, Christine E. A. 18

The Christie, Manchester Course Tutor (Anonymous) 21

4 Advanced journeys into self-management 23

A personal journey Barbara Hogg Hogg, Barbara 23

The HOPE course Andy Turner Turner, Andy 26

The theory, philosophy, and process of developing the Staying Positive Programme for adolescents with long term medical conditions Kathy Hawley Hawley, Kathy 33

5 The principles of lay leadership Jean Thompson Thompson, Jean 41

6 Delivering courses now 47

Looking at the Expert Patients Programme Jim Phillips Phillips, Jim 47

The programme in Scotland Angela Donaldson Donaldson, Angela 51

Why we chose to get engaged in self-management in Tower Hamlets Elizabeth Bayliss Bayliss, Elizabeth 55

Still questions after 15 years of experience Phil Baker Baker, Phil 59

The online opportunity Ian McNeil McNeil, Ian 64

Maintaining standards Jane Cooper Cooper, Jane 67

7 The value of self-management: Retrieving a sense of self: the loss and reconstruction of a life Patrick Hill Hill, Patrick Mike Osborn Osborn, Mike 73

8 Self-management and government policy David Colin-Thome Colin-Thome, David 83

9 The business case for lay-led self-management Keith Hawley Hawley, Keith 91

10 Implementing pilot EPP within the wider strategy to support self care Ayesha Dost Dost, Ayesha 99

11 Self-management and patient and public involvement Bob Sang Sang, Bob 107

12 The Expert Patients Programme - Community Interest Company: The future Simon Knighton Knighton, Simon 115

13 Co-Creating Health: Transforming health care systems Natalie Grazin Grazin, Natalie Roy Jones Jones, Roy 123

14 Three bodies of the UK research 133

Coventry University Julie Barlow Barlow, Julie 133

The National Primary Care Research and Development Centre, University of Manchester Anne Kennedy Kennedy, Anne Anne Rogers Rogers, Anne 140

Coventry University Applied Research Centre Health and Lifestyle Interventions: Learning from Co-Creating Health Louise M. Wallace Wallace, Louise M. 146

15 'Hard talk': What do we really know about the benefits and value of self-management course provision? David G. Taylor Taylor, David G. 157

16 Which way is forward? F. Ray Jones Jones, F. Ray 165

Index 173

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