Young People and Chronic Illness: True Stories, Help and Hope

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Overview

Written by a young woman with Crohn's disease, this book is a source of strength, inspiration, and sound advice for young people diagnosed with chronic illnesses. It helps them learn to cope, know they're not alone, and make the most of the wonderful opportunities that lie ahead. B&W photos.

Presents true accounts of young people living with a chronic illness including how they have learned to cope and remain hopeful; also includes strategies for living with a chronic medical problem.

Editorial Reviews

VOYA

Kelly Huegel was twelve years old when she learned she suffered from Crohn's disease, an incurable disease that affects the nervous system. "I felt as if a door had shut in my face," she said. At the time, she could not find any books to help her cope with living with a permanent medical problem, so she decided to write one herself. The book is organized into two sections. The first is a collection of personal narratives written by teens who have illnesses that have no cure, but are not considered to be terminal. Teens speak frankly about their experiences with hemophilia, diabetes, epilepsy, asthma, cancer, inflammatory heart disease, rheumatoid arthritis, congenital heart defects, and lupus. After these candid dialogues, a list of helpful organizations and Web sites is included, along with a set of questions and answers about each illness. A black-and-white photo of each teen is included. The book's second section is full of advice for handling day-to-day living with an illness. Practical suggestions include ways of communicating with a doctor to get the most information and assistance from him or her, tips for talking to friends and family about health problems, strategies for coping with schoolwork, and even ways to battle a fear of hospitals. Special tips are placed in highlighted dialog boxes. The arrangement breaks up longer chapters, and helps teens focus on particularly positive ideas. The tone of the book, which is cheerful without being false and upbeat as well as objective, is impressive. Quotations from famous people who have battled illnesses also provide inspiration and comfort. Almost everyone has some type of medical problem, and the stories and advice given here would benefit anyone trying to live in the healthiest fashion possible, despite having an illness. Index. Illus. Photos. VOYA Codes: 4Q 2P S (Better than most, marred only by occasional lapses, For the YA with a special interest in the subject, Senior High-defined as grades 10 to 12).

Children's Literature

Young People and Chronic Illness is a must-read for teens suffering from a chronic illness, and for those people who know and love them. Huegel speaks openly about her own battle with Crohn's disease since the age of twelve, and how she refused to become a victim of her illness. She'll show you how to do the same, as you are introduced to ten exceptional teens who suffer the effects of chronic illnesses like diabetes, cancer, and hemophilia. Their stories will touch your heart as you learn how they cope socially, physically, and emotionally with chronic illness every day. You will also find the information in the second part of the book to be a godsend, with answers to questions about everything from school, support groups, hospitals, and family. Huegel has done a huge favor by writing this book, and after you finish it, you will never again think the same way about chronic illness.

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School Library Journal

Gr 5 Up-In the first section of this book, Huegel introduces 10 young people, each of whom has a chronic illness. They explain how they were diagnosed; medical management; and how they deal with family, friends, and school. They share how they have fashioned a satisfying life for themselves despite the limitations their conditions might impose. The diseases discussed are hemophilia, diabetes, epilepsy, asthma, cancer, inflammatory bowel disease, juvenile rheumatoid arthritis, congenital heart defect, and lupus. Each chapter is accompanied by a small black-and-white photograph of its subject, followed by questions and answers about the disease and a list of resources including organizations, books, and Web sites. Part two discusses strategies for managing an illness; maintaining a relationship with a doctor; dealing with friends, family, and school; battling fear of hospitals; finding a support group; and planning for the future. The text, written in a conversational, sympathetic tone, is sprinkled with upbeat quotes. Advice is terse, well organized, and to the point, making it easy to remember, if difficult to carry out. There are many books that relate stories about the disease of the month, but Huegel's focus is on how these kids manage their own lives and how their experiences can help others cope with chronic illness. A good choice for any collection.-Martha Gordon, formerly at South Salem Library, NY

Product Details

ISBN-13: 9781575420417
Publisher: Free Spirit Publishing, Inc.
Publication date: 5/1/1998
Pages: 208
Age range: 10 - 14 Years
Product dimensions: 6.03 (w) x 9.00 (h) x 0.51 (d)

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Young People and Chronic Illness: True Stories, Help and Hope

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