Your Child with Inflammatory Bowel Disease: A Family Guide for Caregivingby North American Society for Pediatric Gastroenterology, Hepatology and Nutrition, Maria Oliva-Hemker (Editor), David Ziring (Editor), Athos Bousvaros (Editor)
When a child has inflammatory bowel disease, the family has many concerns: Why is my child sick? What can we do to help him get better? What does the future hold for her? In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to
When a child has inflammatory bowel disease, the family has many concerns: Why is my child sick? What can we do to help him get better? What does the future hold for her? In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD.
The authors' empathy and experience are evident throughout as they answer such questions as:
• What are inflammatory bowel disease, Crohn disease, and ulcerative colitis?• Is there a cure for IBD?• How is IBD going to affect my child's daily life?• Will my child's diet change?• Can my child still play sports?• Will my child need surgery?• What are the side effects of commonly prescribed medications?
The book also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older. Additional information on IBD medications, complementary treatments, and further reading round out this comprehensive and reliable resource.
Description: This guide for families with children with inflammatory bowel disease (IBD) aims to help them understand what medical tests and therapies their children may be undergoing and how to guide their children through successful and happy childhoods.
Purpose: It provides information on diagnosis, treatments ranging from medication to surgery, and how to understand and interpret children's symptoms. It also spends significant time discussing dealing with the psychosocial aspects of chronic disease.
Audience: The book is written for families of children with IBD, but it also is an excellent book for primary care providers who may have IBD patients in their practice.
Features: After covering diagnosis, symptoms, and differential diagnosis of IBD, the book devotes considerable space to therapies for inflammatory bowel disease. This portion is densely written and may not be easily accessible to most families with less than postgraduate education. While the medical terminology is simple for the medical community, it is still fairly difficult for those outside the medical community. The organization, particularly of the chapter on medications, also may be confusing for parents. While medical professionals understand that cyclosporine and tacrolimus belong with the immunomodulators (in the section preceding and separate from the biologics), parents likely read an escalation of therapy and understand that the biologics are more dangerous than the previously mentioned immunomodulators. It might be more useful for parents and families to have medications divided into commonly used medications and less commonly used medications. Enteral nutrition should have been in the medication section instead of the nutrition chapter. The most exciting part of this book addresses how families and patients cope day to day with IBD, tackling topics such as body image, parenting, and medication adherence. This part is well written and accessible to families at many education levels.
Assessment: I am glad that this book exists and I have not seen anything comparable. Families do need a guide to help them cope with the overwhelming amount of information presented to them when a child is diagnosed with IBD. They also need a guide that helps them navigate all of the attendant fears associated with having a child with IBD. This is an excellent first effort. I hope that future editions will be more user friendly for less educated parents.
What People are Saying About This
This is an invaluable resource for any family living with inflammatory bowel disease. Written clearly and accessibly, it covers all the important aspects of IBD. It’s a wonderful companion guide, full of information, support, and resources that will help a child and his or her family manage all facets of the disease.
Meet the Author
The North American Society for Pediatric Gastroenterology, Hepatology and Nutrition is the premier organization for physicians caring for children with digestive disorders in North America. NASPGHAN strives to improve the care of infants, children, and adolescents with digestive disorders by promoting advances in clinical care, research, and education. Maria Oliva-Hemker, M.D., is Chief of Pediatric Gastroenterology and Nutrition at the Johns Hopkins Children Center. David Ziring, M.D., is Director of the UCLA Pediatric IBD Center. Athos Bousvaros, M.D., is Associate Director of the Inflammatory Bowel Disease Center at Children’s Hospital Boston.
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