This short book, a collection of essays and poems, looks at the loneliness, frustration and sadness experienced, not by the person with the syndrome, but by their partners, parents and other family members: it is they who have to cope with the absence of communication, affection and empathy expected from a reciprocal loving relationship.'
- Irish Journal of Medical Science
The difficulties faced by people with Asperger's Syndrome (AS) cannot be underestimated, but the emotional problems experienced by those who support them - partners, family and friends - are often over-looked. Focusing on what is referred to as the Cassandra phenomenon, where the neurotypical partner often needs more emotional guidance than the AS partner, this volume gathers together letters, thoughts and poems to give voice to the loneliness, frustration and love felt by many individuals who are close to one or more people with AS. Assembled by FAAAS Inc. (Families of Adults Afflicted with Asperger's Syndrome), a well-known support group specifically for family members, friends and loved ones of people with AS, this collection will provide the emotional support, insight and understanding needed to deal with the emotions that AS evokes within close relationships.
|Publisher:||Kingsley, Jessica Publishers|
|Edition description:||New Edition|
|Product dimensions:||5.47(w) x 8.50(h) x 3.78(d)|
About the Author
Karen E. Rodman has lived with a husband who was diagnosed in 1996 with Asperger's Syndrome and Tourette's Syndrome at age 69. Karen enjoys travel, her friends, photography, and facilitating "Polly's Place", a cancer support group. She is the founder and president of FAAAS Inc. (www.faaas.org), the first website and organisation in the world that recognizes the need of support and validation for family members who are affected by the behaviours of adults with AS.
FAAAS Inc. (Families of Adults Afflicted with Asperger's Syndrome) aims to offer support to the family members of adult individuals afflicted with AS. FAAAS Inc., a non-profit organization, also aims to educate the public to the existence of Asperger's Syndrome in the adult population and to bring awareness of this neurological disorder and its ramifications on the "whole" family to the medical communities who are directly or indirectly involved. Another key aspect to the work of FAAAS Inc. is to give the families a measure of reassurance so they can validate their concerns and frustrations as concrete issues rather than simple "family problems".
Table of Contents
Acknowledgements. Terminology. Preface. 1. Asperger's Syndrome and its Effect upon the Families, FAAAS, Inc., USA, 2002. 2. Cassandra Phenomenon, FAAAS, Inc., 2000. 3. The Family Aspect of Asperger's Syndrome, Linda Demer, UCLA, 2002. 4. Things I have Learnt About Asperger's Syndrome…, Brenda Wall, UK, 2002. 5. Behind a Glass Wall, Marguerite Long, Australia, 1997. 6. Is Anyone Listening?, Karen E. Rodman, USA, 1997. 7. Be Careful What You Wish For, Anonymous, New Jersey, 2002. 8. Asperger's Dungeon, Dawn O'Neil, USA, 2002. 9. Living with an AS Son, E.G., USA, 2002. 10. A Commentary, Anonymous, USA, 2000. 11. A Failed Marriage, Anonymous. 12. Asperger's Syndrome, Obsessions, etc., Anonymous, USA, 2000. 13. Naked Hands, Kathy Read, USA, 2002. 14. Personal Reflections on a Relationship with an Adult who has the Symptoms of Asperger's Syndrome, Anonymous, USA, 2000. 15. When We Married, Anonymous, 2001. 16. When Cassandra was Very, Very Young, Judy Singer, Australia, 2002. 17. Roses and Cacti, Marguerite Long, Australia, 2000. 18. Loneliness Is…, Karen E. Rodman, USA, 1995. 19. Bobby…, Bobby's Mom, Vicki, USA, 2000. 20. Life With My AS Mother, Paula, Canada, 2002. 21. Disconnecting from the Treadmill, Regina, New York, 2001. 22. When Love is Not Enough, Brenda Wall, UK, 1997. 23. My Corner, Yvette Gerhardt, USA, 2003. 24. My Older AS Son…, Anonymous, New Zealand, 2002. 25. Tempest and Sunshine, Cynthia Marchant, USA, 1990. 26. AS Awareness: A Path Out of the Darkness, Debbie, USA, 2000. 27. Passive Aggression, Marguerite Long, Australia, 2002. 28. Six Generations of AS, A seventy-plus -year-young anonymous male, USA. 29. Trying to Describe our Situation, "Sharon", USA, 2000. 30. O Negative, Anonymous, USA, 2002. 31. Knowing is Understanding, Understanding is Accepting: A Note of Encouragement, Annemarieke, USA, 2002. 32. The End into a Beginning, Anonymous, USA, 2002. 33. Untitled, Maxine Aston, UK, 2002. 34. Come With Me, Dawn O'Neil, USA, 2002.