Babies with Down Syndrome: A New Parents' Guide

Babies with Down Syndrome: A New Parents' Guide


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Babies with Down Syndrome, the trustworthy guide which has benefited thousands of families since it was first published in 1985, is completely revised and updated in a new, third edition. Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives.

This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome. Chapters cover:

What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;

Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;

Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;

Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;

Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;

Development & Learning: Expectations about developmentplus new material on variability in development, learning styles, using reading to develop language, memory strengths and weaknesses, and using play to encourage learning;

Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning to preschool, and common questions & answers;

Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.

Full of new photos, parent statements, updated and expanded resources and reading lists, and a reprint of the inspiring essay, "Welcome to Holland," this guide is everything parents need to build a bright and healthy future for their child with Down syndrome.

Product Details

ISBN-13: 9781890627553
Publisher: Woodbine House
Publication date: 09/28/2008
Pages: 358
Sales rank: 288,745
Product dimensions: 8.30(w) x 5.50(h) x 0.90(d)

Table of Contents

Foreword Mitchell Levitz vii Acknowledgements xi Introduction Susan J. Skallerup xiii Chapter 1 What Is Down Syndrome? Chahira Kozma, MD 1 Chapter 2 Adjusting to Your Baby Marilyn Trainer 45 Chapter 3 Medical Concerns in Babies with Down Syndrome Len Leshin, MD 75 Chapter 4 The Daily Care of Your Baby Joan Burggraf Riley, RN, MSN, CFNP Jean Nelson Farley, RN, MSN, CPNP, CRRN 103 Chapter 5 Family Life With Your Baby Marian H. Jarrett, EdD 141 Chapter 6 The Development of Babies with Down Syndrome Sue Buckley, OBE, BA, CPsychol, AFBPsS 169 Chapter 7 Early Intervention Mary Wilt, BSN, RN, CCM 199 Chapter 8 Legal Rights and Hurdles Jo Ann Simons, MSW 241 Afterword: Welcome to Holland Emily Perl Kingsley 281 Glossary 283 Reading List 311 Resource Guide 329 Contributors 347 Index 351

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Babies with Down Syndrome: A New Parents' Guide 5 out of 5 based on 0 ratings. 2 reviews.
ark76 on LibraryThing More than 1 year ago
This book is the "bible" for all those who have recently learned that they are preganant with or have given birth recently to a child with Down Syndrome. Although its title implies it is for new "parents", it is actually something that should be read by everyone close to a new parent of a child with down syndrome. The primary purpose is dispelling myths and giving firsthand experience in the care of a child from birth through adulthood. It is not an authoritative medical book, but provides general medical knowledge specific to the needs of children with Trisomy 21
Anonymous More than 1 year ago