Beyond Embarrassment: Regaining Your Life with Neurogenic Bladder and Bowel

Beyond Embarrassment: Regaining Your Life with Neurogenic Bladder and Bowel

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Overview

Reclaim Your Life. Release the Fear and Embarrassment. For Women Who Suffer and Those Who Share Their Journey.

JoAnne’s story is engaging. It inspires, while offering suggestions for managing life’s hurdles. In an honest, will-to-succeed style, this journey focuses on a neurogenic bladder and bowel condition in which a person lacks control due to a brain, spinal cord, or nerve condition. The source can be aging, a chronic health condition, trauma, or many other causes. Whether diagnosis is an underactive or overactive bladder, with varying symptoms, the difficult daily reality is shared.

• Valuable guide, much like a fresh prescription filled with practical advice

• Educates, empathizes, and encourages women who struggle with the same

health issue

• Written with a girlfriend-to-girlfriend feel, sharing the path to survival and

success

• Sprinkled with Tips and Knowledge Nuggets that highlight points of

importance

• Equips the reader to live every day to the utmost

With input from expert medical research librarian and Biosleuth, Julia Parker, readers will discover current research and facts, equipping them to meet their challenges and work with medical teams. Valuable for healthcare professionals to share with patients.

Product Details

ISBN-13: 9780996430548
Publisher: Triumph Media Press
Publication date: 07/25/2016
Series: Beyond Embarrassment , #1
Pages: 264
Product dimensions: 6.00(w) x 9.00(h) x 0.60(d)

About the Author

JoAnne Lake lives in the Seattle area with her husband Randy and dog Rainey. She is the mother of four grown children, one of whom has a neurogenic bladder. JoAnne's wisdom is the result of challenges met head-on and experiences as a patient, wife, mother, educator, and friend.
She graduated with a BA from Washington State University and a fifth year from Seattle University.
After journaling her private thoughts and feelings, she started writing an anonymous
Blog in 2012. This is her first book.
Visit JoAnne Lake (as Trudy Triumph) at her website www.TrudyTriumph.com

Julia Parker is known as the "Biosleuth." She is a researcher of patent, scientific, medical, and company information by education and training. She has worked in non-profit and biopharmaceutical research and developmental sectors, as well as in clinical, academic, and public settings. Julia holds a BS in Microbiology from Purdue University, an MS in Pathobiology-SPHCM from the University of Washington, and an MLIS from the University of Washington.

JoAnne's story is researched and validated by her.

Dr. Lora Plaskon is a founding member of Athena Women's
Health, Issaquah, Washington, and came to her avocation in the spirit of developing a unique place for women's pelvic health care.
Her midwestern candor, intuition, and clinical acumen have enabled
Dr. Plaskon to be an astute caregiver for women's most intimate pelvic health issues. She is dedicated to the ongoing evolution of improving women's health-care in research and advocacy at a national level through her work with the American Urogynecologic
Association and American Urology Association. Dr. Plaskon is an engineer, surgeon, epidemiologist, mother, wife, dog-lover, and avid hiker and explorer of the Pacific Northwest wilds.

Table of Contents

Table Of Contents
Note from Author JoAnne Lake . . . . . . . . . . . . . . . . . . . . . . . . . . . . xi
Foreword: Lora Plaskon, MD, MS . . . . . . . . . . . . . . . . . . . . . . . . . . xiii
Acknowledgments: Author JoAnne Lake . . . . . . . . . . . . . . . . . . . . . . xvii
Introduction: "Biosleuth" Julia Parker . . . . . . . . . . . . . . . . . . . . . . . . xxi
Part 1: My Story . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1
1. Diagnosis: Neurogenic Bladder . . . . . . . . . . . . . . . . . . . . . . . . . . 3
2. Attitude Check-How Did This Happen to Me? . . . . . . . . . . . . . . . . 19
3. Bowel Journey . . . from Symptoms to Survival . . . . . . . . . . . . . . . . 31
4. Bladder Infections: Signs and Solutions . . . . . . . . . . . . . . . . . . . . . 41
5. Intimacy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 53
6. Conquest over Depression . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61
7. A Frank and Honest Look at Devices and Aids . . . . . . . . . . . . . . . . 75
8. Living Life Well . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 93
9. Parenting a Child with Neurogenic Bladder . . . . . . . . . . . . . . . . . . 111
10. Not Broken, but Beautiful: Moving Beyond Embarrassment . . . . . . . 123
Part 2: Blog Chatter . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 131
1. "Dear Biosleuth"- Questions Posed by Patients and their Families . . . 133
I. What causes a neurogenic bladder? . . . . . . . . . . . . . . . . . . . . 133
II. What tests and procedures are commonly performed to test for urological problems? . . . . . . . . . . . . . . . . . . . . . . . . . . 146
III. Do cranberry products help prevent bladder infections? . . . . . . . . 150
IV. What is a fistula? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 153
V. Are stem cell therapies available for bladder disease? . . . . . . . . . . 155
VI. How do I find valid, relevant medical information? . . . . . . . . . . . 159
2. Letters from Readers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 163
Laura's letter, Vaginal Delivery . . . . . . . . . . . . . . . . . . . . . . . . 164
Jennifer's Letter, Spinal Cyst . . . . . . . . . . . . . . . . . . . . . . . . . . 165
Lewis's Letter, Unknown . . . . . . . . . . . . . . . . . . . . . . . . . . . . 172
Beth's Letter, Stroke . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 176
Janine's Letter, Cushing Syndrome . . . . . . . . . . . . . . . . . . . . . . 178
3. Questions to Consider . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 187
Appendices . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 191
Glossary of Terms & Acronyms* . . . . . . . . . . . . . . . . . . . . . . . . . . 195
Additional Resources for Further Reading . . . . . . . . . . . . . . . . . . . . 207
References and Notes (by chapter) . . . . . . . . . . . . . . . . . . . . . . . . . 217
Index of Terms . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 233

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