A Caregiver's Guide to Lewy Body Dementia

A Caregiver's Guide to Lewy Body Dementia

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A Caregiver's Guide to Lewy Body Dementia by Helen Buell Whitworth, James Whitworth, Helen Buell MS Whitworth

Received a 2012 Caregiver Friendly Award from Today's Caregiver Magazine

Although Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer' Disease or Parkinson's. The Caregiver's Guide to Lewy Body Dementia is the first book ot present a thorough picture of what Lewy Body Dementia really is.

A Caregiver's Guide to Lewy Body Dementia is written in everyday language and filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide, and a glossary of terms and acronyms.

This is the ideal resource for caregivers, family members, and friends of individuals seeking to understand Lewy Body Dementia.

Product Details

ISBN-13: 9781935281443
Publisher: Springer Publishing Company
Publication date: 10/20/2010
Series: .
Sold by: Barnes & Noble
Format: NOOK Book
Pages: 312
Sales rank: 265,378
File size: 995 KB

About the Author

"Jim Whitworth's first wife was diagnosed with Lewy Body Dementia. Propelled by the lack of information on the disease that led to his wife's plunging into severe dementia and subsequent demise in 2003, he co-founded the now nationally known Lewy Body Dementia Association (http://lbda.org). ||In 2005, he married Helen Whitworth, a retired nurse with training and writing experience. Together they author The Thistle, the LBDA newsletter. They also teamed up to present classes on LBD to dementia care staff, volunteers, caregivers and the general public Riding the Roller Coaster with Lewy evolved from these classes. ||Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly. If so many people have LBD, then one might think that it would be fairly well known. But it is not. It is only now that LBD has some acceptance as a ""real"" dementia and a stand-alone disease. Six years after founding their organization, the Whitworths still find people confusing LBD with Alzheimer's disease (AD). One of the goals of this book is to shed some light on that confusion.|"

Table of Contents

1. What Is Lewy Body Dementia?
2. How Do I Find a Specialist and Get a Diagnosis I Can Trust?
3. Slowing the Progress of Dementia
4. Coping With Cognitive Symptoms
5. Coping With Motor Dysfunctions
6. Sleep Disorders and Lewy Body Dementia
7. What Are Perceptual Dysfunctions?
8. Drug Sensitivities and Adverse Reactions
9. Managing Acting-Out Behaviors
10. Coping With Autonomic Nervous System Dysfunctions
11. Coping With Urinary Tract Dysfunctions
12. How Do I Build a Health Care Team?
13. Managing Legal and Financial Issues
14. End-of-Life Issues
15. How Do I Take Care of Myself?
Online Resources

Customer Reviews

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A Caregiver's Guide to Lewy Body Dementia 3.8 out of 5 based on 0 ratings. 8 reviews.
Anonymous More than 1 year ago
Lewy Body dementia has many differences (and therefore special needs) from alzheimer's dementia. This book provides loads of info on LBD behaviors, caregiving, medication, thereby offering the most important ingredient: understanding what the LBD person is experiencing. Offers good tips for caregivers.
MarybethCA More than 1 year ago
This book is worth its weight in gold. Lots of useful information, a reassuring tone, and lots of anecdotes about different aspects of the disease. The material about drugs was invaluable; the Whitworths caution that many drugs routinely used for Alzheimer's (and for other ailments such as incontinence) will make a Lewy Body patient more confused. My mother-in-law has found this book helpful in caring for her husband, and I've found the book helpful in caring for my mother-in-law, whose role as caregiver is exhausting her. My thanks to the Whitworths for writing this book.
Anonymous More than 1 year ago
I was overall, very disappointed with this book, after reading the glowing reviews. It left me with many questions that I had to look elsewhere to answer. I was surprised, because this is a lengthy book. However, it seems to be padded with personal stories. The resources section is also lacking with recommendations for further reading (which would have been helpful, considering the amount of questions I had). It just wasn't worth the money.
LuckyLucyLA More than 1 year ago
After reading rave reviews, I was a little disappointed with the information lacking in this book -- especially the resources and references section. I would have expected a "what to do next" section, but found I had to resort to Google to find my answers. Diappointing.
Anonymous More than 1 year ago
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The_hibernators More than 1 year ago
This guide is an excellent resource for caregivers of people with Lewy Body Dementia (and may even be helpful to people whose loved ones have Parkinson's and who are concerned about Lewy Body Dementia). The nice thing about this guide is that it is thorough-it discusses many issues that a caregiver may encounter such as how to find a doctor, drugs to avoid, how to deal with "acting out," and other medical issues. The target audience is the family member or loved one of the patient, but the guide would also be helpful to nurses and other caregivers. The guide keeps the discussion casual and personal by inserting comments by other caregivers. One downside of this guide is that it doesn't explain the biology behind Lewy Body Dementia, which is something many health care guides do. This will not be a problem to most of the target audience, however, since it focuses on things that are more important to them. Another downside is that although it is written by experts in Lewy Body Dementia (and therefore has a lot of useful information), it is not written by physicians. Therefore, the risk factors and comments about drugs definitely need to be discussed with your doctor. Again, this "downside" is not going to be a problem for most of the target audience, since the book is more personal by merit of being written by non-physicians. Therefore, I highly recommend this book to caregivers but caution them to supplement it with information from medical professionals.