"Graves' Disease, In Our Own Words" takes the reader on a unique journey through the disease's many complexities. Personal accounts offer insights into both the physical and emotional sides of Graves'. Both the experts and other Graves' patients try to validate these feelings with articles on diagnosis, treatment, and healthful living with Graves' disease (hyperactive thyroid). Over eighteen top Endocrinologists, pharmacists and other experts on Graves' disease, make the information in this book, accurate and up to date with the latest information on Graves' disease and its treatments. Over seven years of research on common questions asked, and answers provided by the National Graves' Disease Foundation's board of medical advisors, trained facilitators, as well as answers from the top Endocrinologists, at the major medical and teaching hospitals, ensures what is provided is medically accurate, and is often done in a layperson's terms so it is understandable by those with no or little medical understanding. The authors contacted the medical professionals for a full edit when they wrote the chapters to ensure that the information was correct and current and what was on the cutting edge for treatment of Graves' disease. A full bibliography and recommended reading list is provided to help newly diagnosed find accurate information on Graves' disease. Unfortunately recent studies show that a full 80% of medical related web sites provide wrong or inaccurate information. "Graves' Disease In Our Own Words", takes the worry out of finding reputable, and medically reliable information. At the last American Thyroid Association meeting, they provided a lecture on information and misinformation on thyroid disease. The lecture was titled "The Good The Bad And The Ugly" The National Graves' Disease Foundation was listed as one of the best sources of information for Graves' disease. The National Graves' Disease Foundation, and their medical board of advisors fully endorse this book.
Most Helpful Customer Reviews
Graves' Disease in Our Own Words based on 0 ratings. 1 reviews.
Not sure what I expected here. There are so few Graves' Disease books out there. Hypothyroidism rules the world. [smile] Given the fairly recent publication date the information was pretty old. I was disappointed that when discussing therapies, the authors completely disregarded medications containing dessicated thyroid. I take Synthroid, but given the dearth of information about Graves' treatment options out there, I thought this was inexcusable. I also thought they underplayed the risks of radiating the thyroid. They seemed to say that you're going to have to go that route eventually, anyway, so just do it. There are other options...if you can find the right doctor. (I ended up with a thyroidectomy due to a parathyroid tumor. The thyroid was such a mess from the Graves' that the surgeon refused to do one without the other.) Really disappointed about their information on treatment options. There was also not a lot of information about coping the with the emotional/functional side of life with Graves'. We have an "invisible illness" that makes life difficult because everyone wonders why we don't act "normal" when we look "normal". *We* get frustrated when we feel like everyone (including ourselves) forgets we're sick. You can get more information on current treatmenst and research on the web. There are books available for dealing with living with an "invisible illness" that provide more information than this book does. (Highly recommend "How to be Sick". There are some good "coping" strategies.) Change "somewhat disappointed" to "sorely disappointed".