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Health Humanities Reader

Over the past forty years, the health humanities, previously called the medical humanities, has emerged as one of the most exciting fields for interdisciplinary scholarship, advancing humanistic inquiry into bioethics, human rights, health care, and the uses of technology. It has also helped inspire medical practitioners to engage in deeper reflection about the human elements of their practice.

In Health Humanities Reader, editors Therese Jones, Delese Wear, and Lester D. Friedman have assembled fifty-four leading scholars, educators, artists, and clinicians to survey the rich body of work that has already emerged from the field—and to imagine fresh approaches to the health humanities in these original essays. The collection’s contributors reflect the extraordinary diversity of the field, including scholars from the disciplines of disability studies, history, literature, nursing, religion, narrative medicine, philosophy, bioethics, medicine, and the social sciences. 

With warmth and humor, critical acumen and ethical insight, Health Humanities Reader truly humanizes the field of medicine. Its accessible language and broad scope offers something for everyone from the experienced medical professional to a reader interested in health and illness.

Product Details

ISBN-13: 9780813562469
Publisher: Rutgers University Press
Publication date: 08/31/2014
Edition description: New Edition
Pages: 416
Sales rank: 593,608
Product dimensions: 7.00(w) x 9.90(h) x 1.00(d)

About the Author

THERESE JONES is an associate professor at the Center for Bioethics and Humanities and director of the Arts and Humanities in Healthcare Program at the University of Colorado Anschutz Medical Campus. She is the editor of the Journal of Medical Humanities, and her extensive publications include Sharing the Delirium: Second Generation AIDS Plays and Performances.

DELESE WEAR is a professor of behavioral and community health sciences at Northeast Ohio Medical University. She has written and edited numerous books, including Educating for Professionalism: Creating a Culture of Humanism in Medical Education.

LESTER D. FRIEDMAN is chair of media and society at Hobart and William Smith Colleges. A leading scholar on media representations of medicine, he is the editor of Cultural Sutures: Medicine and Media and co-editor of Picture of Health: Medical Ethics and the Movies.

Table of Contents

Foreword: Too Long Too Short Mark Vonnegut ix

Acknowledgments xiii

Introduction: The Why, the What, and the How of the Medical/Health Humanities Therese Jones Delese Wear Lester D. Friedman 1

Part I Disease and Illness

Chapter 1 Being a Good Story: The Humanities as Therapeutic Practice Arthur W. Frank 13

Chapter 2 Illuminating the It; Thee, and We of Disease and Illness: The Metamorphosis and Related Works David H. Flood Rhonda L. Soricelli 26

Chapter 3 "This Weird, Incurable Disease": Competing Diagnoses in the Rhetoric of Morgellons Lisa Keränen 36

Chapter 4 My Quest for Health Michael Sappol Shelley Wall 50

Part II Disability

Chapter 5 Disability in Two Doctor Stories Martha Stoddard Holmes 63

Chapter 6 Music and Disability Joseph N. Straus 77

Chapter 7 American Narrative Films and Disability: An Uneasy History Martin F. Norden 87

Chapter 8 Standout Lisa I. Iezzoni 97

Part III Death and Dying

Chapter 9 When the Doctor Is Not God: The Impact of Religion on Medical Decision Making at the End of Life Felicia Cohn 103

Chapter 10 Postmodern Death and Dying: A Literary Analysis Martha Montello John Lantos 113

Chapter 11 Second Degree Block: Poem and Commentary Amy Haddad 122

Part IV Patient-Professional Relationships

Chapter 12 Social Studies: The Humanities, Narrative, and the Social Context of the Patient-Professional Relationship Rebecca Garden 127

Chapter 13 Humanities and the Medical Home Mark Clark Howard Brody Rebecca Hester 138

Chapter 14 Occupational Medicine Jack Coulehan 149

Part V The Body

Chapter 15 The Virtues of the Imperfect Body Rosemarie Tong 155

Chapter 16 Seeing Bodies in Pain Sander L. Gilman 171

Chapter 17 Public Fetuses Bernice L. Hausman 186

Chapter 18 More Body: A Performance for Five (or More) Bodies Gretchen A. Case 196

Part VI Gender and Sexuality

Chapter 19 Adult Intake Form

Chapter 20 What Is Sex For? or, The Many Uses of the Vag Alice Dreger 207

Chapter 21 "I Always Prefer the Scissors": Isaac Baker Brown and Feminist Histories of Medicine Marjorie Levine-Clark 215

Chapter 22 Comics in the Health Humanities: A New Approach to Sex and Gender Education Susan M. Squier 226

Chapter 23 I Am Gula, Hear Me Roar: On Gender and Medicine Rafael Campo 242

Part VII Race and Class

Chapter 24 Listening as Freedom: Narrative, Health, and Social Justice Sayantani Dasgupta 251

Chapter 25 Race and Mental Health Jonathan M. Metzl 261

Chapter 26 Law's Hand in Race, Class, and Health Inequities: On the Humanities and the Social Determinants of Health Daniel Goldberg 268

Chapter 27 The Rooms of Our Souls Maren Grainger-Monsen 277

Part VIII Aging

Chapter 28 "Old Age Isn't a Battle, It's a Massacre": Reading Philip Roth's Everyman Thomas R. Cole Benjamin Saxton 285

Chapter 29 "Do You Remember Me?" Constructions of Alzheimer's Disease in Literature and Film E. Ann Kaplan 295

Chapter 30 Love in the Time of Dementia Jerald Winakur 304

Part IX Mental Illness

Chapter 31 Narrating Our Sadness, with a Little Help from the Humanities Brad Lewis 311

Chapter 32 Teaching Narratives of Mental Illness Anne Hudson Jones 321

Chapter 33 Community Psychiatry and the Medical Humanities Michael Rowe 330

Chapter 34 Culpability Ian Williams 341

Part X Spirituality and Religion

Chapter 35 Rites of Bioethics Tod Chambers 365

Chapter 36 Health and Humanities: Spirituality and Religion Raymond C. Barfield Lucy Selman 376

Chapter 37 Scientia Mortis and the Ars Moriendi: To the Memory of Norman Jeffrey P. Bishop 387

Chapter 38 Meditations of an Anesthesiologist: Poem and Commentary Audrey Shafer 403

Part XI Science and Technology

Chapter 39 Andromeda's Futures: A Story of Humanities, Technology, Science, and Art Catherine Belling 409

Chapter 40 Knowing and Seeing: Reconstructing Frankenstein Paul Root Wolpe 419

Chapter 41 A Brief History of Love: A Rationale for the History of Epidemics Allison B. Kavey 430

Chapter 42 Calcedonies Jeff Nisker 442

Part XII Health Professions Education

Chapter 43 Teaching Autism through Naturalized Narrative Ethics: Closing the Divide between Bioethics and Medical Humanities Julie M. Aultman 479

Chapter 44 Courting Discomfort in an Undergraduate Health Humanities Classroom Michael Blackie Erin Gentry Lamb 490

Chapter 45 The Medical Humanities in Medical Education: Toward a Medical Aesthetics of Resistance Alan Bleakley 501

Chapter 46 In Defense of Cheaper Stethoscopes Jay Baruch 511

References 517

Notes on Contributors 569

Index 575

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