Heart Warriors: A Family Faces Congenital Heart Disease

Heart Warriors: A Family Faces Congenital Heart Disease

by Amanda Rose Adams



Product Details

ISBN-13: 9781933016801
Publisher: Behler Publications, LLC
Publication date: 04/24/2012
Pages: 313
Product dimensions: 5.58(w) x 8.28(h) x 0.72(d)

About the Author

Amanda Adams is a “Heart Mom” and a powerful voice within the CHD community by working closely with cardiologists, cardiothoracic surgeons, and nurses from Harvard University, Baylor University, University of Southern California, University of Illinois, and CU Boulder Medical. She founded two 501 c3 nonprofit organizations for CHD, organizes medical conferences for Hypoplastic Right Hearts, attends medical advisory board meetings and national chapter presidents meetings for the Children’s Heart Foundation, and chaired the Congenital Heart Walk in Colorado. As a pioneer of CHD advocacy, she is also firmly rooted in the social network of CHD parents and survivors.

Amanda has done several press interviews and addressed a variety of audiences on behalf of the American Heart Association, including her speech to over 10,000 walkers and the press for the 2006 American Heart Association Heart Walk in metro Denver.

Table of Contents


1 – In the Thick of It
2 – Blissful Ignorance
3 – My Death and Resurrection
4 -–Areas of Specialization
5 – A Baby’s Story
6 – Three Choices
7 – To Live or Die in LA
8 – What I Never Expected When I Was Expecting
9 – A Simple Plan
10 – Dear Random Stranger, Please Don’t Diagnose My Child
11– Catalyst
12 – Back So Soon?
13 – One Angry Mother
14 – Picking Up a Fourth Passenger in the Game of Life
15 – What are You Waiting For? . . . Living with Anticipatory Grief
16 – Informed Consent
17 – A Change of Plans
18 – Visiting Hours
19 – The House that Love Built
20 – Promises, Promises
21 – Gallows Humor at the Tower of Bablefish
22 – The Heartland
23 – Little Losses
24 – Never Better, or It’s Complicated
25 – Apples to Oranges, Cuts to Bruises
26 – A Mortal Coil
27 – Jenny McCarthy is Not the Anti-Christ and Oprah is not Our Fairy Godmother
28 – How to Change the World in Six Excruciatingly Difficult Steps
29 – Death in the Family
30 – Not My Life to Take
31 – William (Liam) James Adams, You’ve Got A Lot of Names
32 – We’re All In This Together
33 – Fighting An Invisible Disease
34 – All the World is a Stage, but Grief Has Five
35 – We Don’t Know What We Don’t Know
36 – Me and the Virgin Mary on a Tightrope
37 – Psychiatry, 5 Cents
38 – A Man on a Mission
39 – Paling around with Pandora
40 – And the Beat Goes On . . . For Now
41 – The Last Word, an Epilogue for my Ladies, or What to Expect when You’re Expecting the Worst

Heart Warrior’s Field Manual-TOC:

Lay of the Land
Glossary of Native Terms (or words Microsoft refuses to acknowledge)
Supplies for the Battlefield
Safe Harbors
Friends of the Mission Nationally
How to Find Local Resources:
Words of Warning about the Internet
Tactical Guide for Civilians on the Home front
The Last Resort (Heart Transplant)
The Final Word About Raising a Heart Warrior


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Heart Warriors: A Family Faces Congenital Heart Disease 5 out of 5 based on 0 ratings. 4 reviews.
Anonymous More than 1 year ago
Omg made me want to cry
Anonymous More than 1 year ago
I read this book while in the comfort of our local hospital as our oldest daughter was recovering from complications after her 2nd open heart surgery. In hindsight, I believe it was the only thing keeping me sane and holding me together. I have wonderful 'heart mom' connections locally, but it isn't always easy to express OUT LOUD what we are thinking, feeling, or fearing. Amanda gives the gift of relatability in a time where it is needed it most. I highly encourage ANYONE to read Heart Warriors - whether you know a family or child dealing with CHD, other illness, or not - because the best lesson Amanda gives through her book is HOPE. Hope in any shape, in any form, and I don't believe there's a person out there that couldn't benefit from that gift. Thank you Amanda for giving a voice to our 'heart mom fears', laying them out for all to see, and in the end for putting hope in their place... heart hugs!
Anonymous More than 1 year ago
This book describes exactly what it is like to have a child with congenital heart disease. Our experience was over 25 years ago, but very little has changed. I strongly recommend the book to anyone who has a seriously ill child. It is good to know that you are not alone.
Anonymous More than 1 year ago
This book was so good!! I have a heart warrior of my own and really wish this book had been out when I was pregnant with her and going through all her surgeries. Would of helped me out quite a bit. I recommend this book to everyone not just heart damiles. I think everyone should be more aware of CHD's. It affects so many!!!