I Know You're in There: Winning Our War Against Autism

by Marcia Hinds, James B. Adams PhD (Foreword by)

Overview

For parents of children with autism and doctors treating autism, this groundbreaking guide will give you the tools to help your child.

There was something wrong with Ryan. His parents knew it before the psychiatrist predicted he would end up in an institution. Ryan was diagnosed with autism at age four. That day changed everything. There was no recovery from autism . . . there was no cure . . . there
was no hope. Or was there?

I Know You’re in There tells the true story of how, through diet, applied behavior analysis, consistent and rigorous medical treatment, and more, Ryan’s family was able to overcome autism. It took a lot of trial and error, but today Ryan is an aerospace engineer, has friends, and lives a happy “typical” life. His recovery wasn’t miraculous, but instead the result of getting proper medical care, and his parents never taking “no” for an answer.

Marcia provides real world examples and actionable steps to take to get your child the treatment and care that could help them beat autism. If your child has been diagnosed with autism, or the warning signs are there, which are also covered here, I Know You’re in There is an indispensable resource in your fight against autism spectrum disorder.

Product Details

ISBN-13:	9781510748255
Publisher:	Skyhorse
Publication date:	01/28/2020
Pages:	408
Product dimensions:	9.10(w) x 6.10(h) x 1.50(d)

About the Author

Marcia Hinds will make you rethink autism. She has degrees in psychology and sociology from UCLA and teaching credentials. But Marcia’s most impressive credential is that she is Ryan’s mom and their family survived autism. 

Dr. James B. Adams is an autism researcher with over forty publications focused on biomedical causes of autism and treatments for it, the president of the Autism Society of Greater Phoenix for nineteen years, the president of the Autism Nutrition Research Center, the co-leader of the scientific advisory board of the Autism Research Institute, and the co-founder of the Neurological Health Foundation.

Table of Contents

Preface My Son, Ryan Hinds xv

Foreword Dr. James B. Adams xvii

Introduction: Don't Believe Everything You're Told xxi

Part 1 Our Arrival on Autism Island

1 We Had No Idea Ryan Would Change Us Forever 1

2 It's a Boy! 10

3 Life Seemed Perfect and Then the Doubts Started 15

4 The Signs Were There but We Didn't See Them 20

5 Hanging On By My Fingernails 25

6 Road Rage in a Buffet Line 33

7 Nothing Was Normal Anymore 38

8 Megan Had the Answer Before We Did 45

9 I Can't Pretend This Isn't Happening Anymore 55

Part 2 A Diagnosis and a Prescription to Nowhere

10 Please Let This Be Anything Else 61

11 Our Initial Search for Answers 71

12 No Instant Cures and Many Missteps 79

Part 3 Searching for Solutions

13 Thinking Outside the Lunchbox 89

14 Everybody Had a Theory but Nobody Agreed On Anything 99

15 Finally a Doctor with a Plan 105

16 Testing, Testing, 1-2-3 and More Testing 113

17 Dr. Harvey, AKA the Cookie Monster 116

18 Getting Better Takes Time 124

Part 4 Escape from Autism Island

19 Applied Behavior Analysis-To Do or Not to Do, That Is the Question 137

20 Mindi Changes the Game 143

21 The Doctor Who Saved Ryan and Why I Cancelled Our Next Appointment 151

22 Medical Treatment Alone Was Not Enough 154

23 The Not-So-Famous "Dr. Phil" Takes Over 162

24 Gena, Babysitter Extraordinaire 165

25 It Took All of Us and Then Some to Help Ryan 170

26 Pam Changed Ryan's Life and He Changed Hers 175

Part 5 Conquering the New World

27 School, IEP Meetings, and Other Challenges 183

28 Everything Ryan Needed to Know He Didn't Learn in Kindergarten 194

29 Sometimes It's Better to Keep Your Mouth Shut 206

30 Isn't First Grade Supposed to Be Fun? 216

31 Things Didn't Turn Out Like We Planned in Life or Second Grade 228

32 Almost Normal, but Not Normal Enough 234

33 The Social Skills are the Last to Come 248

34 Middle School was Bullying at Its Worst 258

35 The New and Improved Ryan in High School 271

36 Applying to College-Could They Make It Any Harder? 280

37 The Most Important Thing Ryan Learned in College Was Not Engineering 287

Part 6 Can a Family Survive Autism?

38 Will Our Marriage Make It? 301

39 Why Couldn't I Just Be a Dad?-By Ryan's Father, Frank 308

40 There's Never Enough of Me to Go Around! 314

41 Why Couldn't I Just Be a Mom? 321

Part 7 Are We There Yet?

42 Are We Ever Done with Our Kids? No! 327

43 If You Don't Know Where to Start, Start Here 331

Epilogue: We Must Win This War! 341

Part 8 Appendices and More Info

Appendix I Frank's Letter to the Doctor Who Diagnosed Ryan 353

Appendix II Autism-The Real Story Needs to Be Told 356

Appendix III Autism Groups, Another Way Off the Island 359

References 361

Bibliography 364

Acknowledgments 367

About the Author 369

Editorial Reviews

"Parents need to read I Know You’re In There. This motivating and encouraging story proves that optimal outcomes are possible for children with autism when families look positively to the future by embracing cutting-edge medical treatment combined with standard-of-care rehabilitation.” —Richard Frye, PhD, MD, Chief of The Division of Neurodevelopmental Disorders, Phoenix Children's Hospital neurologist and autism expert

“Marcia Hinds provides a detailed case history of how her child responded to various treatment interventions, many of which are not yet considered evidenced-bases by the scientific community. I truly hope this book will inspire researchers worldwide to study these interventions. Once validated, these treatments will likely become accepted by the autism and medical communities and covered by health insurance companies." — Steve Edelson, PhD, Executive Director, Autism Research Institute

“Ryan’s recovery was not miraculous. It was the result of having his medical illness treated. His family persisted in looking for answers until they found a doctor who would do just that. Maybe that was the miracle.”
—Bruce L. Russell, MD
 
“Autism doesn’t come with a manual. It only comes with a parent who never gives up.”
—Melinda Sharma, PhD, Autism Spectrum GPS
 
“I Know You’re in There shows that autism is not a hardwired impairment stamped into the brain by the child’s genes and destined to remain fixed forever, as we’re often told. Instead, it is the TOTAL LOAD of challenges to a child’s whole system that overloads the brain and causes
the behaviors associated with autism. Even a few treatments that reduce the load and increase supports can make a huge difference. Ryan’s recovery is a testimony to this approach.”
—Martha Herbert, MD, Harvard neurologist, researcher, and author of The Autism Revolution
 
“I Know You’re in There should be given to every family when they receive an autism diagnosis. This book will help parents understand the importance of digging deep to identify possible underlying immune dysfunction rather than just accepting therapy alone as the only option for improving development. More importantly Ryan’s story should serve as a source of encouragement to families struggling to manage daily life as they navigate the challenges of this complex disease process. The title is perfect. If you know your child is in there, use this book to inspire you in the hardest of times to never, ever give up hope that you can find a path to recovery.”
—Victoria L. Falcone, DO, Falcone Center for Functional and Integrative Medicine
 
“After reading Ryan’s story, parents will realize there is hope and recovery is possible. This book shows the medical treatment is different and individual for every child. I Know You’re in There helps the reader understand that medicine alone is not enough. We must use a child’s interests and strengths to help them overcome autism.”
—Sidney McDonald Baker, MD, founder of Autism360.org
 
“There is an urgent need for the worldwide autism paradigm to change: children with the diagnostic label of autism are medically ill and need help. With proper medical intervention, they can recover or significantly improve in health and function. Every child deserves that chance. Marcia Hinds’s book, I Know You’re in There, encourages parents, therapists, and others to give these precious children this opportunity. Marcia wants all children to have what her recovered son now has; she can’t leave the other kids behind.”
—Ed and Teri Arranga, president and executive director, AutismOne

From the Publisher