Incompatible with life. The medical community said that Simon was "incompatible with life" but the Crosier family refused to accept that diagnosis. "I Am Not a Syndrome - My Name is Simon" is the moving and gripping story of a baby diagnosed with Trisomy 18, a genetic disorder in which a person has a third copy of material from chromosome 18. Produced by independent book publisher All Star Press, "I Am Not a Syndrome - My Name is Simon" details the struggle of Sheryl's son Simon from the early stages of pregnancy to his life here on earth.
During this difficult time, Sheryl confronts a sometimes difficult and indifferent medical system to advocate on Simon's behalf. This is a truly inspirational story with a strong pro-life message.
"I longed to tell Simon�s story of hope, faith, love and the peace which God granted me," explained Sheryl. "I write this book to demonstrate that our children are not a label and are not defects! They have a name and identity. They are children of God."
Born on September 7, 2010, in St. Louis, Missouri, Simon Dominic Crosier was diagnosed with Trisomy 18 and lived for three memorable months. Despite his disabilities, Simon had a huge impact on all who came into contact with him. The book is about Simon�s short and meaningful life, his family and his wonderful caregivers. "I Am Not a Syndrome - My Name is Simon" documents the family�s battle to advocate for their precious son against an oftentimes indifferent and callous medical community.
"Struggling with the fragility of Simon�s life was one thing. However, struggling with the popular pragmatic culture that measures human life in terms of dollars rather than dignity, is quite another. Yet, all along the way, again and again, Sheryl and Scott discovered and were made disciples of 'Life.' This story celebrates both the pain and the joy of love!" stated Rev. Robert J. Hermann, Bishop Emeritus in Residence, St. Louis Archdiocese of St. Louis.
The Crosier family had to overcome challenges put in their way by medical professionals and even extended family members who never valued Simon�s fragile existence the way they did. Author Sheryl Crosier's hope is that this story will help motivate health-care professionals and anyone else that reads this account. The lives of children, regardless of their diagnosis, possess inherent dignity and value, and they deserve the best care our advanced country has to offer.
"Numerous times I would say to medical professionals," explained Sheryl. �That we want Simon, special needs and all. But then we would hear callus responses such as 'incompatible with life' and 'failure to thrive' and 'not for Simon.'"
"I Am Not a Syndrome - My Name is Simon" is now available from publisher All Star Press - Books that Change Lives.
A portion of proceeds from every sale of this book will go to SOFT, Support Organization for Trisomy 18, 13 and Related Disorders.
"Be prepared for smiles, laughter and tears. This is a book well written by an amazing trisomy Mom!"
Executive director Trisomy Advocacy Group
"Sheryl Crosier�s memoir, I�m Not A Syndrome - My Name is Simon, of her journey during her pregnancy and her infant son Simon�s short but important life, is a story of the heart and spirit. It is also a story of the head that explores the capabilities and constraints of modern medicine and policy, parental rights and ethical decision making."
Pamela Healey, Ph.D. mother to Conor, Trisomy 18.
"This book is a love story shared by a family who believes that every life has purpose and worth."
Ann Barnes, RN and mother of Megan (1985-2004) born with Trisomy 18.
Co-author of Care of the Infant and Child with Trisomy 18 or 13 (2011)
|Publisher:||All Star Press|
|Sold by:||Barnes & Noble|
|File size:||1 MB|
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