The Iron Disorders Institute Guide to Hemochromatosis

The Iron Disorders Institute Guide to Hemochromatosis

by Cheryl Garrison

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Product Details

ISBN-13: 9781402229435
Publisher: Sourcebooks
Publication date: 11/01/2009
Pages: 348
Sales rank: 200,073
Product dimensions: 7.42(w) x 11.14(h) x 0.91(d)

About the Author

Cheryl Garrison was instrumental in her son's diagnosis and treatment for iron overload in 1997 and is now the founding director of the Iron Disorders Institute where she developed the institute's publications, including idInsight Magazine and the books Guide to Hemochromatosis, Guide to Anemia, and The Hemochromatosis Cookbook.

Table of Contents

Foreword vii

Acknowledgments xi

Introduction: Hemochromatosis, A Common, Under-diagnosed Iron Disorder xiv

Part 1 Iron-A Little Bit Goes a Long Way

1 Hemochromatosis: Not Just an Old Man's Disease 3

2 Iron in Your Body 7

3 Our One-Sided View of Iron 16

Part 2 Detecting and Diagnosing Hemochromatosis

4 Symptoms and Clues 20

5 Tests That Lead to Diagnosis 27

6 Biopsies, Quantitative Phlebotomies, and Scans 41

7 Benefits of Screening for Hemochromatosis 47

8 The HFE Gene 51

9 Role of a Genetic Counselor 55

10 Who Is a Candidate for Genetic Testing? 58

Part 3 Hemochromatosis and Body Systems

11 Liver, Spleen, Gallbladder, and Pancreas 64

12 Joints and Bones 77

13 Heart and Arteries 85

14 Brain and Spinal Cord 92

15 Hormone-Producing Organs: The Endocrine System 96

16 Skin, Nails, Hearing, and Vision 103

17 Lungs 108

18 Immune System 113

Part 4 Challenges

19 Frustrations of Getting the Diagnosis-Part 1 118

20 Frustrations of Getting the Diagnosis-Part 2 120

21 Women Don't Get Hemochromatosis, Do They? 128

22 Heterozygotes and the Other Homozygote 140

23 Emotions Crowd Out Reason 142

24 The Wrong Diagnosis 145

25 Multiple Symptoms That Can Prompt Diagnosis 148

26 You Must Be a Drinker 153

27 Lost Opportunity: Elevated Serum Iron 155

28 Ignoring the Doctor 158

29 Ignoring Diagnosed Family Members 161

30 One Woman's Legacy 163

Part 5 Hemochromatosis: How It Was, How It Is, How It Must Be

31 How It Was 168

32 The Way It Is Now 189

33 How It Must Be 194

Part 6 Taking Care of Yourself

34 Finding a Doctor and Treatment Center 198

35 Treatment Routine: Phlebotomy and Blood Donation 202

36Specialized Treatment 212

37 Diet, Supplements, and Behavior 220

38 Being Prepared for Emergencies 237

Part 7 Support

39 About the Iron Disorders Institute 242

40 Support across the United States and around the World 251

41 Role of U.S. Government Health Agencies 258

Appendix A Quick Checklist for Physicians 267

Appendix B Quick Checklist for Patients 269

Glossary 270

Bibliography 308

Index 341

Contacts 349

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Iron Disorders Institute Guide to Hemochromatosis 4.5 out of 5 based on 0 ratings. 2 reviews.
Anonymous More than 1 year ago
(I c. Just wondering) umm... lets not try that out
whitefinch12 More than 1 year ago
Recently being diagnosed with hemochromatosis this book has answered so many questions for me. I am also paying closer attention to other family members watching for indicators they may have this iron overload problem also.