This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to juvenile rheumatoid arthritis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on juvenile rheumatoid arthritis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Juvenile Rheumatoid Arthritis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Juvenile Rheumatoid Arthritis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Juvenile Rheumatoid Arthritis; Chapter 5. Books on Juvenile Rheumatoid Arthritis; Chapter 6. Multimedia on Juvenile Rheumatoid Arthritis; Chapter 7. Periodicals and News on Juvenile Rheumatoid Arthritis; Chapter 8. Physician Guidelines and Databases; Chapter 9. Dissertations on Juvenile Rheumatoid Arthritis; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Questions and Answers about Arthritis Pain; Appendix F. More on Rheumatic Diseases and Arthritis; ONLINE GLOSSARIES; JUVENILE RHEUMATOID ARTHRITIS GLOSSARY; INDEX. Related topics include: Juvenile arthritis, Juvenile chronic arthritis, Juvenile chronic polyarthritis, Juvenile polyarthritis, Still disease, Still's disease.
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers juvenile rheumatoid arthritis, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that juvenile rheumatoid arthritis is often considered a synonym or a condition closely related to the following: Juvenile arthritis; Juvenile chronic arthritis; Juvenile chronic polyarthritis; Juvenile polyarthritis; Still disease; Still's disease.
Table of ContentsIntroduction
PART I: THE ESSENTIALS
Chapter 1. The Essentials on Juvenile Rheumatoid Arthritis: Guidelines
What Is Arthritis?
What Is Juvenile Rheumatoid Arthritis?
What Causes Juvenile Rheumatoid Arthritis?
What Are the Symptoms and Signs of Juvenile Rheumatoid Arthritis?
How Is Juvenile Rheumatoid Arthritis Diagnosed?
Who Treats Juvenile Rheumatoid Arthritis? What Are the Treatments?
How Can the Family Help a Child Live Well with JRA?
What Are Researchers Trying to Learn about Juvenile Rheumatoid Arthritis?
Where Can I Get More Information about Juvenile Rheumatoid Arthritis?
More Guideline Sources
Chapter 2. Seeking Guidance
Associations and Juvenile Rheumatoid Arthritis
Finding More Associations
Finding a Rheumatologist
Selecting Your Doctor
Working with Your Doctor
Broader Health-Related Resources
Chapter 3. Clinical Trials and Juvenile Rheumatoid Arthritis
Recent Trials on Juvenile Rheumatoid Arthritis
Benefits and Risks
Keeping Current on Clinical Trials
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Juvenile Rheumatoid Arthritis
The Combined Health Information Database
Federally-Funded Research on Juvenile Rheumatoid Arthritis
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Chapter 5. Books on Juvenile RheumatoidArthritis
Book Summaries: Federal Agencies
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on Juvenile Rheumatoid Arthritis
General Home References
Chapter 6. Multimedia on Juvenile Rheumatoid Arthritis
Bibliography: Multimedia on Juvenile Rheumatoid Arthritis
Chapter 7. Periodicals and News on Juvenile Rheumatoid Arthritis
News Services & Press Releases
Newsletters on Juvenile Rheumatoid Arthritis
Academic Periodicals covering Juvenile Rheumatoid Arthritis
Chapter 8. Physician Guidelines and Databases
Other Commercial Databases
The Genome Project and Juvenile Rheumatoid Arthritis
Chapter 9. Dissertations on Juvenile Rheumatoid Arthritis
Dissertations on Juvenile Rheumatoid Arthritis
PART III. APPENDICES
Appendix A. Researching Your Medications
Your Medications: The Basics
Learning More about Your Medications
Contraindications and Interactions (Hidden Dangers)
A Final Warning
Appendix B. Researching Alternative Medicine
What Is CAM?
What Are the Domains of Alternative Medicine?
Can Alternatives Affect My Treatment?
Finding CAM References on Juvenile Rheumatoid Arthritis
Additional Web Resources
Appendix C. Researching Nutrition
Food and Nutrition: General Principles
Finding Studies on Juvenile Rheumatoid Arthritis
Federal Resources on Nutrition
Additional Web Resources
Appendix D. Finding Medical Libraries
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix E. Questions and Answers about Arthritis Pain
What Is Arthritis?
What Is Pain?
What Causes Arthritis Pain? Why Is It So Variable?
How Do Doctors Measure Arthritis Pain?
What Will Happen When You First Visit a Doctor for Your Arthritis Pain?
Who Can Treat Arthritis Pain?
How Is Arthritis Pain Treated?
What Alternative Therapies May Relieve Arthritis Pain?
How Can You Cope with Arthritis Pain?
What Research Is Being Conducted on Arthritis Pain?
Where Can You Find More Information on Arthritis Pain?
Appendix F. More on Rheumatic Diseases and Arthritis
What Are Rheumatic Diseases and What Is Arthritis?
Examples of Rheumatic Diseases
What Causes Rheumatic Disease?
Who Is Affected by Arthritis and Rheumatic Conditions?
What Are the Symptoms of Arthritis?
How Are Rheumatic Diseases Diagnosed?
Physical Examination and Laboratory Tests
What Are the Treatments?
Myths about Treating Arthritis
What Can Be Done to Help?
What Is Some of the Current Research Being Done on Arthritis?
Online Dictionary Directories
JUVENILE RHEUMATOID ARTHRITIS GLOSSARY
General Dictionaries and Glossaries