Kidowed

Kidowed

by Jessica Kenley

NOOK Book(eBook)

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Overview

Kidowed by Jessica Kenley

In this book you'll find the the struggles, sorrows, and triumphs of the author after she has two children with a rare and universally fatal genetic disease. As she travels through her hellish journey, you will experience unexpected humor, endless love, and learn how strong one family can be while they walk beside her.

Product Details

BN ID: 2940046059014
Publisher: Jessica Kenley
Publication date: 06/16/2014
Series: Walking The Mile
Sold by: Smashwords
Format: NOOK Book
File size: 262 KB
Age Range: 18 Years

About the Author

Jessica Bonczar Kenley was born in Buffalo, New York and has since lived many places in New York and Pennsylvania. She has been married and divorced twice and has had a total of 5 children. The first two, Ethan and Kaylee, were afflicted with Epidermolysis Bullosa, a rare and under-researched (because of under-funding) children's disease that causes serious and very painful skin wounds. Ethan and Kaylee died from the Junctional-Herlitz subtype of EB in 2005 and 2008, respectively. Jessica wrote Kidowed as a journal while caring for her daughter Kaylee and coping with the medical system in the United States and her own emotional rage and pain. The book, Kidowed, serves as a tool for awareness for EB, which has been called, "The Worst Disease You Never Heard Of."

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