In this book you'll find the the struggles, sorrows, and triumphs of the author after she has two children with a rare and universally fatal genetic disease. As she travels through her hellish journey, you will experience unexpected humor, endless love, and learn how strong one family can be while they walk beside her.
About the Author
Jessica Bonczar Kenley was born in Buffalo, New York and has since lived many places in New York and Pennsylvania. She has been married and divorced twice and has had a total of 5 children. The first two, Ethan and Kaylee, were afflicted with Epidermolysis Bullosa, a rare and under-researched (because of under-funding) children's disease that causes serious and very painful skin wounds. Ethan and Kaylee died from the Junctional-Herlitz subtype of EB in 2005 and 2008, respectively. Jessica wrote Kidowed as a journal while caring for her daughter Kaylee and coping with the medical system in the United States and her own emotional rage and pain. The book, Kidowed, serves as a tool for awareness for EB, which has been called, "The Worst Disease You Never Heard Of."