Living With Sickle Cell Disease: : The Struggle to Survive

Living With Sickle Cell Disease: : The Struggle to Survive

by Judy Gray Johnson, Leroy Williams Jr.

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Product Details

ISBN-13: 9781493597482
Publisher: CreateSpace Publishing
Publication date: 05/01/2012
Pages: 156
Product dimensions: 6.00(w) x 9.00(h) x 0.33(d)

About the Author

Judy Gray Johnson has nearly 40 years of experience in public education, having taught elementary, middle, and high school in Virginia and Maryland. She holds a Master's Degree in Special Education from Virginia State University, in Petersburg, Virginia, and a Bachelor's Degree in Elementary Education from South Carolina State University in Orangeburg, South Carolina. Ms. Johnson is also certified in the Commonwealth of
Virginia as an Elementary and Secondary School Principal. She completed the coursework for the doctorate in Educational Administration & Supervision from Virginia Polytechnic Institute &
State University in Blacksburg, Virginia. For three years, she served as president of the Fairfax County Federation of Teachers (the second-largest teachers union in the state of Virginia,) representing teachers and aides in the largest school district in the state of Virginia.

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Living With Sickle Cell Disease: The Struggle to Survive 5 out of 5 based on 0 ratings. 4 reviews.
Anonymous More than 1 year ago
Read the book! I say read the book and you be the judge. The author describes the excruciating pain she had to endure everytime she had a sickle cell attack, the humiliation of being characterized as a drug addict because of the medication she had to have to eliminate the pain, the lack of empathy she encountered from medical professionals when she had to be admitted to the different hospitals (ER). I recommend reading this book to enlighten your knowledge of the "sickle cell disease" and most definite read the book if you are in the medical profession.
RTSWM More than 1 year ago
Judy Gray Johnson's Book, "Living With Sickle Cell Disease, The Struggle to Survive," is a gift to anyone who has or is battling with the razor sharp pain associated with Sickle Cell. It's also a blessing to those who want to better understand what it's like for people living with a chronic illness. Judy shares her personal struggle with Sickle Cell disease while educating the public. Her attempt is to prevent others from going through what she has gone through and continues to manage today. With humor, insight and passion, Judy's story will both enlighten and evoke tears as she weaves her story of determination through childrearing, a troubled marriage, financial barriers and a public who simply doesn't understand what it's like to live with Sickle Cell disease. Judy is a natural story teller.
Anonymous More than 1 year ago
If you want your family to know what having sickle cell feels like read this book.
SwirlQueen More than 1 year ago
It was hard to put down this book. I thought I knew something about Sickle Cell Anemia. "Living With Sickle Cell Disease", educated me on a subject the majority of Americans (including African Americans) don't even give a second thought. I tried to compare my own experiences of when adults just would not listen (out of ignorance or just not caring) to those of the writer who so candidly shares her story and struggle to just get some answers. But I find it so believable from what I know about the segregated South and ignorance on the part of so many. Still, I cannot imagine a child having to endure the pain of an unknown illness and scrutiny of those around the writer only too quick to label her as lazy and sickly. But belief in oneself coupled with determination, drive and opportunity can do wonders for the human spirit. In "Living With Sickle Cell Disease", I found the story of childhood, coming of age, marriage, pregnancy, divorce, single motherhood and professional neatly packaged leading me up episodes of utter desperation and the point of dire frustration as a mature adult deals mainly with so-called medical industry professionals. From insecure and power wielding principals to doctors with horrible bedside manner (and ignorance), I felt as if I was watching a movie anxiously awaiting good to overcome evil. Cover ups and ridiculous excuses abound, but like in a good movie the writer eventually does find her answers and is triumphant. However, she still endures the pain of Sickle Cell Disease. In this day and age, I find it shocking that more is not known about Sickle Cell Disease. There are a few isolated areas where one may find those who have dedicated time and resources to research and treatment of Sickle Cell; but because it affects so many people globally, more should be known. Medical school and nursing students should be taught more, and clinics and treatment centers should be more numerous. I don't for one minute feel that the writer is attempting to evoke sympathy. She is empowered with knowledge, and conveys that knowledge is power indeed! Ms. Johnson had to be patient, advocate, soldier and general fighting her battles with the precision of any well thought out strategic battle plan. She did not win them all, but fought the good fight and will help and inspire countless others with her experience! I walked away from the book truly shocked, enlightened, angry, hopeful and optimistic. It is a true story of overcoming obstacles, confronting adversity and finding truth. Ms. Johnson's labor of love was an awesome read and I highly recommend it!