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Living with Spina Bifida: A Guide for Families and Professionals
     

Living with Spina Bifida: A Guide for Families and Professionals

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by Adrian Sandler, Peter Bedick (Illustrator)
 

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It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition.

Accurate, accessible, and up-to-date, Living with Spina

Overview

It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition.

Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.

Editorial Reviews

Doody's Review Service
Reviewer: Charles Kantrow, MD (Ochsner Clinic Foundation)
Description: This book describes in detail the cause and effects of spina bifida with detailed descriptions of all involved systems and associated problems. It is written for both the parents of children with spina bifida as well as those providing medical care to them. This updated edition with a new preface replaces the 1997 edition.
Purpose: The purpose is to provide an insightful view into the life of spina bifida patients and their families. This is an important subject as these children often have subspecialty care but not always primary care. Issues surrounding this condition should be understood by all involved in care of these patients. This book fills that void.
Audience: The book was written for families of patients as well as medical and other professional personnel involved in their care. It is useful both for generalists as well as specialty physicians who care for the child. The author is very credible in this area.
Features: Specific issues of the cause of spina bifida, treatment and prevention are covered. The book provides a description of issues, both medical and psychosocial, that are significant to these patients at various stages of their life from infancy to adult. This book does an excellent job of providing both information as well as perspective from both the practitioner's and patient's points of view. It is very helpful having information clearly marked for patients and for medical professionals.
Assessment: This is an excellent, readable book that provides an abundance of useful and easily understandable information about this complex issue. I will recommend it highly to my patients and residents in trying to understand spina bifida.
Reviewer: Charles Kantrow, MD(Ochsner Clinic Foundation)
Description: "This book describes in detail the cause and effects of spina bifida with detailed descriptions of all involved systems and associated problems. It is written for both the parents of children with spina bifida as well as those providing medical care to them. This updated edition with a new preface replaces the 1997 edition.
Purpose: The purpose is to provide an insightful view into the life of spina bifida patients and their families. This is an important subject as these children often have subspecialty care but not always primary care. Issues surrounding this condition should be understood by all involved in care of these patients. This book fills that void.
Audience: The book was written for families of patients as well as medical and other professional personnel involved in their care. It is useful both for generalists as well as specialty physicians who care for the child. The author is very credible in this area.
Features: Specific issues of the cause of spina bifida, treatment and prevention are covered. The book provides a description of issues, both medical and psychosocial, that are significant to these patients at various stages of their life from infancy to adult. This book does an excellent job of providing both information as well as perspective from both the practitioner's and patient's points of view. It is very helpful having information clearly marked for patients and for medical professionals.
Assessment: This is an excellent, readable book that provides an abundance of useful and easily understandable information about this complex issue. I will recommend it highly to my patients and residents in trying to understand spina bifida.
Library Journal
Spina bifida ("divided spine") is a common if complex birth defect occurring during embryonic development and resulting in moderate to profound disabilities. Pediatrician Sandler has written a valuable handbook that addresses patients' biopsychosocial and developmental needs from birth through adolescence and into adulthood. Sandler's holistic approach encourages families to focus more on the child and less on the disability while providing abundant information about this condition. Parents of children with spina bifida add their personal insights in several chapters. Included are a glossary, a list of spina bifida associations, and suggested readings. Reassuring but realistic, this uniquely multidisciplinary guide is for parents, pediatricians, neurosurgeons, orthopedists, rehabilitation and physical therapists, teachers, and others involved in the care of children and adults with spina bifida. Highly recommended.Anne C. Tomlin, Auburn Memorial Hosp. Lib., N.Y.

Product Details

ISBN-13:
9780807855478
Publisher:
The University of North Carolina Press
Publication date:
03/15/2004
Edition description:
Updated Edition
Pages:
296
Sales rank:
350,798
Product dimensions:
6.12(w) x 9.25(h) x 0.80(d)

What People are Saying About This

From the Publisher
[As] the parent of a child with spina bifida, I've never found a book that so completely addresses the multiple facets of his disability. Dr. Sandler's work is a refreshingly direct and highly readable, detailed look at a complete life-long condition."-Judy Woodruff, CNN

An authoritative summary of the current issues facing both patients and their families."-W. Jerry Oakes, M.D., Children's Hospital of Alabama

Meet the Author

Adrian Sandler, M.D., is medical director of the Olson Huff Center at Mission Children's Hospital in Asheville, North Carolina.

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Living with Spina Bifida: A Guide for Families and Professionals 5 out of 5 based on 0 ratings. 3 reviews.
Anonymous More than 1 year ago
He ran in.
Anonymous More than 1 year ago
He padded in
Anonymous More than 1 year ago
B