This insightful book demonstrates the conversations you should be having with your Doctor, presented in discussion format from both the patient's and doctor's perspective.
Autoimmune diseases are chronic inflammations of various parts of the body. Lupus in particular,
can present such a wide variety of symptoms and on-going health issues that it is critical to maintain an open-communicative relationship between patient and physician(s). In a familiar question and answer style, the authors show you how it's done. What should I tell my Doctor? How do I know if a symptom is important? What does it mean to the Doctor in m overall treatment plan? By example, the authors have demonstrated the development of the sacred relationship between doctor and patient. They cover common issues of daily living with thoughtful discussions of the variety of symptoms, how they may effect your lifestyle and those of your family. This guide provides constructive, adjustment strategies for a productive lifestyle. Offering both patient and doctor viewpoints, Lupus, My Doctor and Me, will leave each reader a clearer understanding for management of this syndrome. Whether part of your personal library or the public library, this guide will provide an insightful narrative for family and friends.
There are over 5 million people with lupus worldwide with close to 1.4 million diagnosed in the US. Family and friends of patients will find insights as participants in caregiving. Those millions of autoimmune disease patients, including those with multiple sclerosis, diabetes, Crohn's disease, fibromyalgia, rheumatoid arthritis, Sjögren's syndrome, and Raynaud's disease will also find insights and useful tools in the book. This book is a valuable collection addition to all 16,000 US public libraries.
|Publisher:||Astute Press LLC|
|Product dimensions:||0.46(w) x 6.00(h) x 9.00(d)|
About the Author
Anita is living positively with lupus. For over 10 years she has written extensively about her lupus experiences and has given lectures and workshops on the subject. In 2006 she received the Humanitarian Award from the Lupus Foundation of Colorado for her extensive volunteer contributions including serving on its Executive Committee and as the newsletter editor. She is on the Board of the Lupus Research Institute and has spoken numerous times before Congressional Committees to advocate for additional research funding. She graduated from Boston University, Upsala College and the Iliff School of Theology where she received a Master of Arts degree. Prior to retirement she was Director of Education at Temple Sinai in Denver and the CEO of the American Jewish Committee of Colorado. Anita has received many honors and awards; including, the Mayor's Proclamation for Service to the Community, the Denver City and County Appreciation Award, the Iliff School of Theology Alumna of the Year Award. She lives in the Denver suburbs with her husband, Rich, where they frequently spend time with their 3 children and 7 grandchildren. An advocate of clear communications, she and her doctor have created the relationship we would like with our physician, enabling her to continuing contributing to the lives of others.
Dr. Kassan is a nationally recognized expert in rheumatology. Known internationally, his expertise in the treatment and research of various autoimmune diseases has allowed him to develop a significant perspective on the practice of medicine as a cooperative effort with the patient. For 30 years he has been a clinical professor of medicine (rheumatic diseases) at the University of Colorado Health Sciences Center in Denver. Dr. Kassan currently serves as President of the Colorado Rheumatology Association, Chairman of the Board of the Arthritis Foundation, Rocky Mountain Chapter, and a member of the Board of Directors of the National Arthritis Foundation. An author of over 35 articles, chapters, and books dealing with arthritis and related diseases, including the recently published book, Chronic Pain for Dummies, John Wiley & Sons Imprint; 9780471751403, he has been chosen on numerous occasions as a national "Top Doctor" by the Center for The Study of Service.
Table of Contents
Section 1: You and Your Doctor: Medical Considerations
Chapter 1: What Your Doctor Needs from You.
Chapter 2: Not Every Illness Is Lupus-Related.
Chapter 3: Taking Your Own Advice
Chapter 4: The ER Experience.
Chapter 5: The Internet: Help or Interference?
Chapter 6: When All Else Fails: Surgery
Chapter 7: Medicare Part D and Other Insurance
Chapter 8: More on Medicare Part D and Other Insurance Oddities
Chapter 9: Medicare: How It All Turned Out
Chapter 10: Chicken Soup.
Section 2: Learning to Live Well: Attitude Adjustments
Chapter 11: Control.
Chapter 12: Depression
Chapter 13: Chronic Pain.
Chapter 14: Wipe That Smile Off Your Face, I'm Having a Meltdown!
Chapter 15: The Power of Love.
Chapter 16: Loss
Chapter 17: Stress.
Chapter 18: Tea Parties
Section 3: Learning to Live Well: Lifestyle Adjustments
Chapter 19: Does It Interfere with Your Daily Life?
Chapter 20: Finding Balance.
Chapter 21: Limitations
Chapter 22: Reducing Stress through Planning
Chapter 23: Dealing with Adversity
Chapter 24: A Workaholic? Not Anymore
Chapter 25: Clutter
Chapter 26: Traveling Well
Chapter 27: Reorganizing Your Life
Chapter 28: Nutrition
Chapter 29: Independence
Chapter 30: Relaxation
Chapter 31: Reconditioning
Chapter 32: Fitness
Chapter 33: Therapy
Chapter 34: Sun Exposure
Section 4: Support Systems
Chapter 35: What Helps, What Doesn't.
Chapter 36: AlexHe Knows We Care
Chapter 37: I Need Help
Chapter 38: Helping Others Help You
Chapter 39: Advice for Caregivers
Chapter 40: Relationships
Chapter 41: Intimacy
Section 5: The Future of My "New" Life
Chapter 42: Turning
Chapter 43: How Far Have We Come?
Chapter 44: Clinical Trials
Chapter 45: You Are a Unique Human Being
Afterword: A Fond Memory
What People are Saying About This
As bold and innovative Lupus Research Institute scientists search relentlessly for a cure, people with lupus are pioneering discoveries of their own-strategies and lifestyle approaches for coping and even thriving despite the illness. In this frank and moving personal dialogue, Anita Fricklas and her long-time rheumatologist, Dr. Stuart Kassan, give readers opportunities to absorb and leverage many powerful coping tools to help manage their disease. What a safe and inspiring place to reach for answers as we race to find a cure together. (Lupus Research Institute, President, Margaret G. Dowd)
An insightful memorialization of a complex personal struggle not unlike that experienced by many lupus patients. It constructively helps those who are trying to navigate the land mines of lupology. (Daniel J. Wallace MD Clinical Professor of Medicine David Geffen School of Medicine at UCLA; Best Selling author of The Lupus Book: A Guide for Patients and Their Families, 4th ed)
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