"This book helps move healthcare forward by recognizing the range of issues across the lifespan that people with ASD may face. . . [and] brings together a wealth of expertise with information and strategies across the lifespan."
From the Foreword by Catherine Rice, PhD
National Center on Birth Defects and Developmental Disabilities
Center for Disease Control and Prevention
Autism Spectrum Disorder (ASD) is a growing health problem and nearly all nurses are likely to care for individuals with ASD. Designed as a textbook and a reference, this volume prepares nurses to recognize the unique challenges of providing evidence-based health care that meets the special needs of ASD patients across the lifespan and in multiple practice settings. Chapters include setting-specific case studies followed by consistently formatted information about key clinical issues, clinical assessment, and best practice nursing plans of care.
The book is organized on a social model of disability with a focus on the environmental, cultural, and economic barriers encountered by people with ASD. It highlights the significant role played by nurses in the treatment of ASD patients and helps nurses integrate the specialized information about ASD into their clinical practice. Each section of the book reflects a different life stage and is organized to include learning objectives and developmental needs at the beginning of a section, with key points, a guide to clinical problem solving, and thought-provoking review questions at the end.
- Provides evidence-based information for nurses about the special treatment needs of individuals with ASD
- Explains how functional deficits of people with ASD complicate health care delivery and how nurses can use this knowledge to provide quality care
- Addresses clinical issues across the lifespan and in multiple settings through case studies that illustrate best practice nursing care for a variety of problems
- Ideal for continuing education programs, post-master's certificate programs, and school nurse certification programs
|Publisher:||Springer Publishing Company|
|Edition description:||New Edition|
|Product dimensions:||7.00(w) x 9.90(h) x 1.00(d)|
About the Author
Ellen Giarell, EdD, RN, CRNP.is an Associate Professor in the Doctoral Nursing Program in the College of Nursing and Health Professions at Drexel University, Philadelphia. She is Adjunct Associate Professor in the Biobehavioral Research Center of the University of Pennsylvania, School of Nursing. Dr Giarelli received a BS in Nursing and a BS in Biology from the State University of New York at Stony Brook, a Masters Degree in Nursing from New York University, a Doctorate in Education from Rutgers, the State University of New Jersey, and Post-Doctoral education in Psychosocial Oncology and HIV/AIDS from the University of Pennsylvania School of Nursing. Before joining the faculty at Drexel University, Dr. Giarelli was Co-I of the CDC funded Study of Epidemiology of Early Development (SEED) and PI of an initiative funded by the Philadelphia Health Care Trust to integrate nursing into the care of people with ASD. She was Research Project Director of the UPENN School of Nursing CDC funded Center for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) and the Director of the Pennsylvania Autism and Developmental Disabilities Surveillance Program (PADDSP). In addition to the awards from the CDC, her funded projects included an R21 from NIH/NINR to study self-management of genetic disorders. She is a Certified Registered Nurse Practitioner in Pennsylvania and Investigator for several externally funded studies of autism spectrum disorders.
Marcia Gardner, PhD, RN, CRNP, CPN, is Associate Professor at Seton Hall University College of Nursing. She was a clinical fellow in the Leadership in Neurodevelopmental Disabilities program at Children's Hospital of Philadelphia and a fellow in the AACN Academic Leadership Program. With an extensive background in high-risk neonatal care , general pediatrics and care of families of developmentally vulnerable infants and children, she teaches pediatric and developmental concepts, and continues to investigate family-related issues in the care of individuals with developmental risks and concerns. She is certified in pediatric nursing and as a primary care pediatric nurse practitioner by the National Certification Board of Pediatric Nurse Practitioners and Nurses.
Table of ContentsTABLE OF CONTENTS
SECTION I: INTRODUCTION AND BACKGROUND: CORE FEATURES, ASD PREVALENCE AND THE ROLE OF NURSING
CH 1. AUTISM SPECTRUM DISORDER: CORE FEATURES AND MEDICAL CO-MORBIDITIES
CH 2. PREVALENCE, ETIOLOGY AND GENETICS
CH 3. INTRODUCTION TO THE INTEGRATED, COMPREHENSIVE NURSING CARE OF AUTISM SPECTRUM DISORDER
SECTION I DISCUSSION QUESTIONS
SECTION II. INTRODUCTION: NURSING CARE IN EARLY CHILDHOOD AND ADOLESCENCE
CH 4. CARING FOR THE PREGNANT WOMAN WITH A FAMILY HISTORY OF COGNITIVE/DEVELOPMENTAL DISABILITIES
CH 5. FINDING WHAT WE'RE LOOKING FOR: EVIDENCE-BASED EARLY IDENTIFICATION AND NURSING CARE OF YOUNG CHILDREN AT RISK FOR AUTISM SPECTRUM DISORDERS
CH 6 COMPLEX AUTISM: IS IT RARE OR A FAMILY AFFAIR?
CH 7. NURSING CARE OF THE CHILD WITH ASD SCHEDULED FOR A TONSILLECTOMY
CH 8. "KEEP CALM AND CARRY ON": THE SCHOOL NURSE AND STUDENTS ON THE AUTISM SPECTRUM
CH 9ADOLESCENT HEALTH AND DEVELOPMENT: THE UNIQUE EXPERIENCE OF THE ADOLESCENT WITH ASPERGER SYNDROME
SECTION II DISCUSSION QUESTIONS
SECTION III. INTRODUCTION: ADULTHOOD AND MID-LIFE
CH 10.TRANSITION TO COMMUNITY: ADOLESCENCE, EMPLOYMENT AND COMPANIONSHIP
CH 11. CARING FOR WOMEN WITH ASPERGER SYNDROME DURING THE CHILDBEARING CYCLE
CH 12. EMERGENCY NURSING CARE OF PATIENTS WITH AUTISM SPECTRUM DISORDER
CH 13 CANCER CARE FOR ADULTS WITH AUTISM SPECTRUM DISORDER: THE CASE OF PROSTATE CANCER
SECTION III. DISCUSSION QUESTIONS
SECTION IV. INTRODUCTION: OLDER YEARS AND END OF LIFE
CH 14. EVIDENCE-BASED CARE OF THE OLDER CLIENT WITH AUTISM
CH 15.THE NURSE'S ROLE IN MANAGING TRANSITIONS AND FUTURE PLANNING FOR AGING ADULTS WITH AUTISM AND THEIR FAMILIES
CH 16. ETHICAL ISSUES IN THE CARE OF INDIVIDUALS WITH ASD IN THE FAMILY AND THE COMMUNITY: HEARING THE VOICE OF THE PERSON WITH AUTISM AT THE END OF LIFE
SECTION IV DISCUSSION QUESTIONS
SECTION V. PULLING IT ALL TOGETHER- INTEGRATED CARE FOR INDIVIDUALS WITH ASD
CH 17. PROFESSIONAL NURSING PARTNERSHIPS AND THE FUTURE OF NURSING CARE FOR AUTISM SPECTRUM DISORDER
CH 18. LEGAL ISSUES & IMPLICATIONS FOR NURSING CARE OF AUTISM SPECTRUM DISORDER IN THE UNITED STATES
SECTION V DISCUSSION QUESTIONS