Palliative Care in Amyotrophic Lateral Sclerosis: From Diagnosis to Bereavement / Edition 2

Palliative Care in Amyotrophic Lateral Sclerosis: From Diagnosis to Bereavement / Edition 2

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Oxford University Press
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Palliative Care in Amyotrophic Lateral Sclerosis: From Diagnosis to Bereavement / Edition 2

Palliative Care in Amytrophic Lateral Sclerosis remains the only book focusing on the palliative care aspects of treating a patient with ALS (or Motor Neurone Disease), and this second edition brings this important text up to date. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow the disease. Palliative care must therefore be integral to the clinical approach to the disease. The new subtitle, From Diagnosis to Bereavement, reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease.

Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in a discussion of bereavement. The experience of patients and families are considered and case studies are provided to show the practical application of the theoretical knowledge. Different models of care are explored, and this new edition utilises the increase in both the evidence base and available literature on the subject. Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care ensure that this new edition remains the essential guide to palliative care in ALS. This is a practical book to be used in the day-to-day care of patients with ALS. It will therefore appeal to all members of the multidisciplinary palliative careteam, and neurologists dealing primarily with the management of the disease. It will also prove an invaluable reference for family doctors supporting an ALS patient.

Product Details

ISBN-13: 9780198570486
Publisher: Oxford University Press
Publication date: 12/28/2006
Pages: 368
Product dimensions: 9.20(w) x 6.10(h) x 0.80(d)

Table of Contents

Preface     vii
List of Contributors     ix
Amyotrophic lateral sclerosis/motor neuron disease   Christopher Shaw     1
Palliative care   David Oliver     19
Communication: breaking the news   Richard Sloan   Dieter E. Pongratz   Gian Domenico Borasio     27
Decision making   Wendy Johnston     43
Advance directives   Gian Domenico Borasio   Raymond Voltz     55
Control of symptoms: dyspnoea and respiratory symptoms   Rebecca Lyall   Deborah Gelinas     63
Control of symptoms: dysphagia   Edith Wagner-Sonntag   Mario Prosiegel     95
Control of symptoms: cognitive dysfunction   Laura Goldstein     111
Control of symptoms: other symptoms (including depression)   Gian Domenico Borasio   David Oliver     129
Psychosocial care   Donal Gallagher   Barbara Monroe     143
Spiritual care   Robert Lambert     169
Multidisciplinary care: physiotherapy   Ulrike Hammerbeck   Alison Garrett     187
Multidisciplinary care: occupational therapy   Chris Kingsnorth     203
Multidisciplinary care: speech and language therapy   Amanda Scott   Maryanne McPhee     213
Multidisciplinary care: psychology   Jos Kerkvliet     229
Multidisciplinary care: nursing care   Dallas Forshew     243
International aspects of care   David Oliver     255
End of life care: ethical issues   Leo McCluskey   Lauren Elman     265
End of life care   Nigel Sykes     287
Bereavement   Ann McMurray   Amanda Harris     301
Personal experiences: one day at a time: the experience of an ALS caregiver   Linda Centers     325
Personal experiences: amyotrophic lateral sclerosis and how it affects my life   Phil Hankins     333
Suppliers     337
Websites     339
Index     341

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