This is a book about Erin Tompkins, my daughter. It is also about my journey to being the best mom I can be for her needs. Erin has Joubert Syndrome, a very rare genetic disorder that disrupts the messages between her body and brain. For more information on this disorder or to find how how you can help, visit the Joubert Syndrome and Related Disorders Foundation on the web.
|Sold by:||Barnes & Noble|
|File size:||121 KB|
Most Helpful Customer Reviews
I enjoyed the story, I could feel what the mother was going through, the fears, ups and downs, lost hope and finally acceptance.