Purple Stew: A Journey to Joubert Syndrome

Purple Stew: A Journey to Joubert Syndrome

by Karen Tompkins

NOOK Book(eBook)

FREE
Available on Compatible NOOK Devices and the free NOOK Apps.
LendMe® See Details
Want a NOOK ? Explore Now

Overview

Purple Stew: A Journey to Joubert Syndrome by Karen Tompkins

This is a book about Erin Tompkins, my daughter. It is also about my journey to being the best mom I can be for her needs. Erin has Joubert Syndrome, a very rare genetic disorder that disrupts the messages between her body and brain. For more information on this disorder or to find how how you can help, visit the Joubert Syndrome and Related Disorders Foundation on the web.

Product Details

ISBN-13: 9781312078802
Publisher: Lulu.com
Publication date: 04/07/2014
Sold by: Barnes & Noble
Format: NOOK Book
Sales rank: 1,111,593
File size: 121 KB

Customer Reviews

Most Helpful Customer Reviews

See All Customer Reviews

Purple Stew: A Journey to Joubert Syndrome 4 out of 5 based on 0 ratings. 1 reviews.
GiraffeLadyNJ More than 1 year ago
I enjoyed the story, I could feel what the mother was going through, the fears, ups and downs, lost hope and finally acceptance.