Ruthie: A Family's Struggle with ALS

Ruthie: A Family's Struggle with ALS

by Lynn Miclea

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Overview

Ruthie: A Family's Struggle with ALS by Lynn Miclea

Ruth grew up in the 1920s with two sisters in a loving home in New York. A peacekeeper by nature, she was a strong, independent, and passionate woman. Dedicated to making a difference in the world, she worked as an occupational therapist and devoted her working career to helping others. She married at the young age of nineteen and had two children in a loving and supportive family environment, with only the occasional volatile dynamics.

Everything was going well until amyotrophic lateral sclerosis (ALS) entered the family's lives. ALS, more commonly known as Lou Gehrig's disease, crept in silently.

A progressive and fatal motor neuron disease that causes muscle atrophy, ALS is a brutal, debilitating illness that is difficult to diagnose and has no known cure. This disease began stealing her strength, her independence, and her ability to function.

Filled with heartrending honesty, Ruthie: A Family's Struggle with ALS documents one family's dynamic struggle with the disease. From the initial confusing symptoms to the heartbreaking conclusion, Lynn Miclea's touching words offer insight into this cruel illness and give advice on how to care for a loved one suffering from it.

Gripping and dramatic, yet ultimately inspirational, this book will both empower and encourage anyone dealing with a similar progressive, terminal illness.

Product Details

ISBN-13: 9781500955830
Publisher: CreateSpace Publishing
Publication date: 12/11/2014
Pages: 234
Product dimensions: 6.00(w) x 9.00(h) x 0.49(d)

About the Author

LYNN MICLEA grew up in New York and moved to California while in her twenties. A certified hypnotherapist, Reiki master practitioner, and musician, with a bachelor's degree in psychology, she spent many years working in the medical field and in various offices in an administrative capacity.

After her mother, Ruth, became ill with ALS, Lynn spent several years researching the disease and learning ways to help her mother. She believes all patients should be treated with respect, and that patients' wishes regarding their care should be honored. She hopes Ruthie: A Family's Struggle with ALS will offer encouragement and support to others struggling with the disease and honor her mother's memory.

Lynn currently lives in the Los Angeles area with her husband and two dogs.

Please visit www.lynnmiclea.com for more information.

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Ruthie: A Family's Struggle with ALS 4.9 out of 5 based on 0 ratings. 10 reviews.
AZTracy More than 1 year ago
I loved this book. While Ruthie, the author's mother, was nominally the sick person, her illness rippled through the family. What struck me immediately was that everyone involved had a different way of coping. The father was angry with the narrator's efforts to provide practical help to her mother, and Ruthie was angry and sad because her husband still expected her to handle "women's" chores. Every time the narrator went to check on her parents, she walked on eggshells. What's wonderful about this memoir is that it takes a calm look back at the trajectory of the disease, including the physical changes and efforts to provide psychosocial support to a couple going through a change neither expected. Anyone who is walking the walk with Lynn as she tries to support her parents will see that "taking care" of someone with ALS puts you in the thick of a family drama that you never expected. Readers will appreciate the "lessons learned" in the Addendum. This is truly a useful book for anyone wondering what's in store.
Anonymous More than 1 year ago
Lynn has given us a harrowingly honest portrait of a family trying to cope with a devastating disease. She sensitively portrays her father's difficulty accepting his wife's diagnosis, and the pain his denial caused  Ruthie and also Lynn herself. She details her confusion and hurt at her mother's refusal to allow her in to her  world, even as that world was collapsing. Lynn brings us right along with her as we experience the tumult, the  small unexpected moments of joy, and the family's eventual acceptance as the disease progressed, This memoir acts as a guidebook acts as a valuable guidebook for families confronting the ravages of this debilitating disease, as well as a heartfelt, loving tribute to Lynn's extraordinary mother, Ruthie. Nancy Baumoel  
rodierno More than 1 year ago
This is a tale of love and the progression of a debilitating disease, told from the perspective of the daughter of an ALS patient, as she meanders through the pitfalls of misdiagnoses, false hopes and finally grief, as the journey with ALS comes to a conclusion. Told  with compassion and love, this is a "how-to" manual for anyone dealing with illness, terminal or otherwise. How to respect the patient’s  wishes, understanding frustration and how to overcome it, how to search out viable resources, and how to be patient and supportive of your loved one throughout the illness whether the result is recovery or further deterioration and having the strength to carry on no matter what the outcome. A compelling and informative story, bringing heartfelt insights to anyone dealing with illness. Well written and done in a flowing style, Ms. Miclea has accomplished much in this small volume and I highly recommend this book. 
Anonymous More than 1 year ago
Honest, engaging and informative  This book is a personal story of a daughter's love, insight and encouragement. I thoroughly enjoyed reading it. "Ruthie" takes you from the early signs to the later development of ALS. It shows how the patient's loved ones learned how to be supportive and provide a proper environment, which helped to ease the patient's struggle with her illness. Miclea's practical suggestions are invaluable for readers caring for a loved one battling this disease.
Anonymous More than 1 year ago
Dramatic and Compelling - Excellent Read!  This book is a compelling story of a woman’s battle with ALS, as told from the point of view of the daughter. It is dramatic and heartbreaking, honest and raw. I was caught up in the drama and felt like I was experiencing it along with the family. It was powerful and fascinating and hard to put the book down. It is well written and has good insights throughout the story regarding dealing with illness and how to help anyone with a debilitating disease.  It is informative and touching and gives the reader a lot to think about. Excellent read – I highly recommend this book.  
DOUG-BROOKS More than 1 year ago
This is a story that can become anyone's story. ALS strikes about 5,000 Americans each year and knows no ethnic, gender or race biases. Lynn's story is personal and informative. She documents the strength and hope her mother embodied as well as the family ups and downs in dealing with the disease. It's an easy read with helpful information throughout as she chronicles the progression of this killer disease. If you are researching for information because a family member, friend or yourself has been diagnosed with ALS this is a good first primer to help you understand what's going to happen, what you can do to help, where you can turn and more.
leslie-bouvier More than 1 year ago
Although I picked up this book with some trepidation, knowing the progression of "Lou Gehrig's Disease" never has a happy ending, Ruthie proved to be a gripping and ultimately triumphant true story. With searing honesty, author Lynn Miclea describes a family learning to adjust to their loved one's battle with ALS each in his or her own imperfect way. Miclea's style has a raw immediacy that brings the reader deep inside the family's dynamic in a way that everyone will be able to relate to. For those who have a loved one suffering from this or any other challenging condition, this bravely told personal testimony offers insight and suggestions to help guide another through a journey down a bumpy road, but a road that nevertheless has unexpected bright spots along the way.  
Steve_Pollaine More than 1 year ago
This is the story of a woman with ALS, and how her family coped with it. It details how her daughter tried to help her as best she could, the initial denial of the seriousness of it by her husband and how he later helped keep her alive. It moves fast and I couldn't put the book down. I learned a lot about the varieties of ALS, and how the disease progresses. I recommend this book to anyone struggling to help with the sickness of a family member.
TiffTiff More than 1 year ago
ALS is a disease that takes over the body very rapidly and it leaves you in frustration and heartache. This story tells you of very strong-willed woman, Lynn Miclea. She didn’t want to believe what her mother was dealing with, but when she saw her mom and struggles she instantly did research and vowed to help her mom no matter what. Although painful to watch this disease progress in conquer, she would not let her mother feel less than the wonderful woman that she was. I respect and love that about Lynn. Miclea found different ways to keep her mother feeling like the woman she has always been. She bought her pens, paper, a support group and a computer. I loved how she reassured her mom that she was the person that she has always been on the inside, even if the outside of her was changing. This made me cry. It’s so frustrating to read her mother’s struggle. Denial is a big form of not wanting to accept the truth about something. Her father didn’t want to believe what was going on, but it happens with every hard truths with any major diagnoses from doctors. As time went on, it sadden me for the help Ruth needed, but wasn’t getting from her husband. Every tear she cried, I cried with her. I read further on and it sadden me. Lynn is an awesome daughter and she deserves nothing but prosperity for the love she showed to her mother. She and her husband were awesome. I rate this with absolute 100 out of 5. I felt all the emotion run through me with this story of incredible insight. Lynn you are and awesome writer keep up the excellent work.
Tondaleo More than 1 year ago
This book is about a woman's struggle with ALS, and how her family struggled watching as the disease progressed. I read the book in one day and couldn't put it down. I cried as I read what Ruthie and her family went through. The book is very touching but also very readable, giving much clinical information about ALS and similar diseases. I highly recommend this book!