From New York Times bestselling author and neuroscientist Lisa Genova comes the definitive—and illuminating—novel about Alzheimer’s disease. Now a major motion picture starring Oscar winner Julianne Moore! Look for Lisa Genova's latest novel Inside the O’Briens.
Alice Howland is proud of the life she worked so hard to build. At fifty years old, she’s a cognitive psychology professor at Harvard and a world-renowned expert in linguistics with a successful husband and three grown children. When she becomes increasingly disoriented and forgetful, a tragic diagnosis changes her life—and her relationship with her family and the world—forever. As she struggles to cope with Alzheimer’s, she learns that her worth is comprised of far more than her ability to remember.
At once beautiful and terrifying, Still Alice is a moving and vivid depiction of life with early-onset Alzheimer’s disease that is as compelling as A Beautiful Mind and as unforgettable as Ordinary People.
About the Author
Acclaimed as the Oliver Sacks of fiction and the Michael Crichton of brain science, Lisa Genova is the New York Times bestselling author of Still Alice, Left Neglected, Love Anthony, and Inside the O’Briens. Still Alice was adapted into an Oscar-winning film starring Julianne Moore, Alec Baldwin, and Kristen Stewart. Lisa graduated valedictorian from Bates College with a degree in biopsychology and holds a PhD in neuroscience from Harvard University. She travels worldwide speaking about the neurological diseases she writes about and has appeared on The Dr. Oz Show, Today, PBS NewsHour, CNN, and NPR. Her TED talk, What You Can Do To Prevent Alzheimer's, has been viewed over 2 million times.
Read an Excerpt
Alice sat at her desk in their bedroom distracted by the sounds of John racing through each of the rooms on the first floor. She needed to finish her peer review of a paper submitted to the Journal of Cognitive Psychology before her flight, and she’d just read the same sentence three times without comprehending it. It was 7:30 according to their alarm clock, which she guessed was about ten minutes fast. She knew from the approximate time and the escalating volume of his racing that he was trying to leave, but he’d forgotten something and couldn’t find it. She tapped her red pen on her bottom lip as she watched the digital numbers on the clock and listened for what she knew was coming.
She tossed her pen onto the desk and sighed. Downstairs, she found him in the living room on his knees, feeling under the couch cushions.
“Keys?” she asked.
“Glasses. Please don’t lecture me, I’m late.”
She followed his frantic glance to the fireplace mantel, where the antique Waltham clock, valued for its precision, declared 8:00. He should have known better than to trust it. The clocks in their home rarely knew the real time of day. Alice had been duped too often in the past by their seemingly honest faces and had learned long ago to rely on her watch. Sure enough, she lapsed back in time as she entered the kitchen, where the microwave insisted that it was only 6:52.
She looked across the smooth, uncluttered surface of the granite countertop, and there they were, next to the mushroom bowl heaping with unopened mail. Not under something, not behind something, not obstructed in any way from plain view. How could he, someone so smart, a scientist, not see what was right in front of him?
Of course, many of her own things had taken to hiding in mischievous little places as well. But she didn’t admit this to him, and she didn’t involve him in the hunt. Just the other day, John blissfully unaware, she’d spent a crazed morning looking first all over the house and then in her office for her BlackBerry charger. Stumped, she’d surrendered, gone to the store, and bought a new one, only to discover the old one later that night plugged in the socket next to her side of the bed, where she should have known to look. She could probably chalk it all up for both of them to excessive multitasking and being way too busy. And to getting older.
He stood in the doorway, looking at the glasses in her hand but not at her.
“Next time, try pretending you’re a woman while you look,” said Alice, smiling.
“I’ll wear one of your skirts. Ali, please, I’m really late.”
“The microwave says you have tons of time,” she said, handing them to him.
He grabbed them like a relay runner taking a baton in a race and headed for the front door.
“Will you be here when I get home on Saturday?” she asked his back as she followed him down the hallway.
“I don’t know, I’ve got a huge day in lab on Saturday.”
He collected his briefcase, phone, and keys from the hall table.
“Have a good trip, give Lydia a hug and kiss for me. And try not to battle with her,” said John.
She caught their reflection in the hallway mirror—a distinguished-looking, tall man with white-flecked brown hair and glasses; a petite, curly-haired woman, her arms crossed over her chest, each readying to leap into that same, bottomless argument. She gritted her teeth and swallowed, choosing not to jump.
“We haven’t seen each other in a while. Please try to be home?” she asked.
“I know, I’ll try.”
He kissed her, and although desperate to leave, he lingered in that kiss for an almost imperceptible moment. If she didn’t know him better, she might’ve romanticized his kiss. She might’ve stood there, hopeful, thinking it said, I love you, I’ll miss you. But as she watched him hustle down the street alone, she felt pretty certain he’d just told her, I love you, but please don’t be pissed when I’m not home on Saturday.
They used to walk together over to Harvard Yard every morning. Of the many things she loved about working within a mile from home and at the same school, their shared commute was the thing she loved most. They always stopped at Jerri’s—a black coffee for him, a tea with lemon for her, iced or hot, depending on the season—and continued on to Harvard Yard, chatting about their research and classes, issues in their respective departments, their children, or plans for that evening. When they were first married, they even held hands. She savored the relaxed intimacy of these morning walks with him, before the daily demands of their jobs and ambitions rendered them each stressed and exhausted.
But for some time now, they’d been walking over to Harvard separately. Alice had been living out of her suitcase all summer, attending psychology conferences in Rome, New Orleans, and Miami, and serving on an exam committee for a thesis defense at Princeton. Back in the spring, John’s cell cultures had needed some sort of rinsing attention at an obscene hour each morning, but he didn’t trust any of his students to show up consistently. So he did. She couldn’t remember the reasons that predated spring, but she knew that each time they’d seemed reasonable and only temporary.
She returned to the paper at her desk, still distracted, now by a craving for that fight she hadn’t had with John about their younger daughter, Lydia. Would it kill him to stand behind her for once? She gave the rest of the paper a cursory effort, not her typical standard of excellence, but it would have to do, given her fragmented state of mind and lack of time. Her comments and suggestions for revision finished, she packaged and sealed the envelope, guiltily aware that she might’ve missed an error in the study’s design or interpretation, cursing John for compromising the integrity of her work.
She repacked her suitcase, not even emptied yet from her last trip. She looked forward to traveling less in the coming months. There were only a handful of invited lectures penciled in her fall semester calendar, and she’d scheduled most of those on Fridays, a day she didn’t teach. Like tomorrow. Tomorrow she would be the guest speaker to kick off Stanford’s cognitive psychology fall colloquium series. And afterward, she’d see Lydia. She’d try not to battle with her, but she wasn’t making any promises.
ALICE FOUND HER WAY EASILY to Stanford’s Cordura Hall on the corner of Campus Drive West and Panama Drive. Its white stucco exterior, terra-cotta roof, and lush landscaping looked to her East Coast eyes more like a Caribbean beach resort than an academic building. She arrived quite early but ventured inside anyway, figuring she could use the extra time to sit in the quiet auditorium and look over her talk.
Much to her surprise, she walked into an already packed room. A zealous crowd surrounded and circled a buffet table, aggressively diving in for food like seagulls at a city beach. Before she could sneak in unnoticed, she noticed Josh, a former Harvard classmate and respected egomaniac, standing in her path, his legs planted firmly and a little too wide, as if he was ready to dive at her.
“All this, for me?” asked Alice, smiling playfully.
“What, we eat like this every day. It’s for one of our developmental psychologists, he was tenured yesterday. So how’s Harvard treating you?”
“I can’t believe you’re still there after all these years. You ever get too bored over there, you should consider coming here.”
“I’ll let you know. How are things with you?”
“Fantastic. You should come by my office after the talk, see our latest modeling data. It’ll really knock your socks off.”
“Sorry, I can’t, I have to catch a flight to L.A. right after this,” she said, grateful to have a ready excuse.
“Oh, too bad. Last time I saw you I think was last year at the psychonomic conference. I unfortunately missed your presentation.”
“Well, you’ll get to hear a good portion of it today.”
“Recycling your talks these days, huh?”
Before she could answer, Gordon Miller, head of the department and her new superhero, swooped in and saved her by asking Josh to help pass out the champagne. As at Harvard, a champagne toast was a tradition in the psychology department at Stanford for all faculty who reached the coveted career milestone of tenure. There weren’t many trumpets that heralded the advancement from point to point in the career of a professor, but tenure was a big one, loud and clear.
When everyone was holding a cup, Gordon stood at the podium and tapped the microphone. “Can I have everyone’s attention for a moment?”
Josh’s excessively loud, punctuated laugh reverberated alone through the auditorium just before Gordon continued.
“Today, we congratulate Mark on receiving tenure. I’m sure he’s thrilled to have this particular accomplishment behind him. Here’s to the many exciting accomplishments still ahead. To Mark!”
Alice tapped her cup with her neighbors’, and everyone quickly resumed the business of drinking, eating, and discussing. When all of the food had been claimed from the serving trays and the last drops of champagne emptied from the last bottle, Gordon took the floor once again.
“If everyone would take a seat, we can begin today’s talk.”
He waited a few moments for the crowd of about seventy-five to settle and quiet down.
“Today, I have the honor of introducing you to our first colloquium speaker of the year. Dr. Alice Howland is the eminent William James Professor of Psychology at Harvard University. Over the last twenty-five years, her distinguished career has produced many of the flagship touchstones in psycholinguistics. She pioneered and continues to lead an interdisciplinary and integrated approach to the study of the mechanisms of language. We are privileged to have her here today to talk to us about the conceptual and neural organization of language.”
Alice switched places with Gordon and looked out at her audience looking at her. As she waited for the applause to subside, she thought of the statistic that said people feared public speaking more than they feared death. She loved it. She enjoyed all of the concatenated moments of presenting in front of a listening audience—teaching, performing, telling a story, teeing up a heated debate. She also loved the adrenaline rush. The bigger the stakes, the more sophisticated or hostile the audience, the more the whole experience thrilled her. John was an excellent teacher, but public speaking often pained and terrified him, and he marveled at Alice’s verve for it. He probably didn’t prefer death, but spiders and snakes, sure.
“Thank you, Gordon. Today, I’m going to talk about some of the mental processes that underlie the acquisition, organization, and use of language.”
Alice had given the guts of this particular talk innumerable times, but she wouldn’t call it recycling. The crux of the talk did focus on the main tenets of linguistics, many of which she’d discovered, and she’d been using a number of the same slides for years. But she felt proud, and not ashamed or lazy, that this part of her talk, these discoveries of hers, continued to hold true, withstanding the test of time. Her contributions mattered and propelled future discovery. Plus, she certainly included those future discoveries.
She talked without needing to look down at her notes, relaxed and animated, the words effortless. Then, about forty minutes into the fifty-minute presentation, she became suddenly stuck.
“The data reveal that irregular verbs require access to the mental . . .”
She simply couldn’t find the word. She had a loose sense for what she wanted to say, but the word itself eluded her. Gone. She didn’t know the first letter or what the word sounded like or how many syllables it had. It wasn’t on the tip of her tongue.
Maybe it was the champagne. She normally didn’t drink any alcohol before speaking. Even if she knew the talk cold, even in the most casual setting, she always wanted to be as mentally sharp as possible, especially for the question-and-answer session at the end, which could be confrontational and full of rich, unscripted debate. But she hadn’t wanted to offend anyone, and she’d drunk a little more than she probably should have when she became trapped again in passive-aggressive conversation with Josh.
Maybe it was jet lag. As her mind scoured its corners for the word and a rational reason for why she’d lost it, her heart pounded and her face grew hot. She’d never lost a word in front of an audience before. But she’d never panicked in front of an audience either, and she’d stood before many far larger and more intimidating than this. She told herself to breathe, forget about it, and move on.
She replaced the still blocked word with a vague and inappropriate “thing,” abandoned whatever point she’d been in the middle of making, and continued on to the next slide. The pause had seemed like an obvious and awkward eternity to her, but as she checked the faces in the audience to see if anyone had noticed her mental hiccup, no one appeared alarmed, embarrassed, or ruffled in any way. Then, she saw Josh whispering to the woman next to him, his eyebrows furrowed and a slight smile on his face.
She was on the plane, descending into LAX, when it finally came to her.
LYDIA HAD BEEN LIVING IN Los Angeles for three years now. If she’d gone to college right after high school, she would’ve graduated this past spring. Alice would’ve been so proud. Lydia was probably smarter than both of her older siblings, and they had gone to college. And law school. And medical school.
Instead of college, Lydia first went to Europe. Alice had hoped she’d come home with a clearer sense of what she wanted to study and what kind of school she wanted to go to. Instead, upon her return, she’d told her parents that she’d done a little acting while in Dublin and had fallen in love. She was moving to Los Angeles immediately.
Alice nearly lost her mind. Much to her maddening frustration, she recognized her own contribution to this problem. Because Lydia was the youngest of three, the daughter of parents who worked a lot and traveled regularly, and had always been a good student, Alice and John had ignored her to a large extent. They’d granted her a lot of room to run in her world, free to think for herself and free from the kind of micromanagement placed on a lot of children her age. Her parents’ professional lives served as shining examples of what could be gained from setting lofty and individually unique goals and pursuing them with passion and hard work. Lydia understood her mother’s advice about the importance of getting a college education, but she had the confidence and audacity to reject it.
Plus, she didn’t stand entirely alone. The most explosive fight Alice had ever had with John had followed his two cents on the subject: I think it’s wonderful, she can always go to college later, if she decides she even wants to.
Alice checked her BlackBerry for the address, rang the doorbell to apartment number seven, and waited. She was just about to press it again when Lydia opened the door.
“Mom, you’re early,” said Lydia.
Alice checked her watch.
“I’m right on time.”
“You said your flight was coming in at eight.”
“I said five.”
“I have eight o’clock written down in my book.”
“Lydia, it’s five forty-five, I’m here.”
Lydia looked indecisive and panicky, like a squirrel caught facing an oncoming car in the road.
“Sorry, come in.”
They each hesitated before they hugged, as if they were about to practice a newly learned dance and weren’t quite confident of the first step or who should lead. Or it was an old dance, but they hadn’t performed it together in so long that each felt unsure of the choreography.
Alice could feel the contours of Lydia’s spine and ribs through her shirt. She looked too skinny, a good ten pounds lighter than Alice remembered. She hoped it was more a result of being busy than of conscious dieting. Blond and five foot six, three inches taller than Alice, Lydia stood out among the predominance of short Italian and Asian women in Cambridge, but in Los Angeles, the waiting rooms at every audition were apparently full of women who looked just like her.
“I made reservations for nine. Wait here, I’ll be right back.”
Craning her neck, Alice inspected the kitchen and living room from the hallway. The furnishings, most likely yard sale finds and parent hand-me-downs, looked rather hip together—an orange sectional couch, retro-inspired coffee table, Brady Bunch–style kitchen table and chairs. The white walls were bare except for a poster of Marlon Brando taped above the couch. The air smelled strongly of Windex, as if Lydia had taken last-second measures to clean the place before Alice’s arrival.
In fact, it was a little too clean. No DVDs or CDs lying around, no books or magazines thrown on the coffee table, no pictures on the refrigerator, no hint of Lydia’s interests or aesthetic anywhere. Anyone could be living here. Then, Alice noticed the pile of men’s shoes on the floor to the left of the door behind her.
“Tell me about your roommates,” she said as Lydia returned from her room, cell phone in hand.
“They’re at work.”
“What kind of work?”
“One’s bartending and the other delivers food.”
“I thought they were both actors.”
“I see. What are their names again?”
“Doug and Malcolm.”
It flashed only for a moment, but Alice saw it and Lydia saw her see it. Lydia’s face flushed when she said Malcolm’s name, and her eyes darted nervously away from her mother’s.
“Why don’t we get going? They said they can take us early,” said Lydia.
“Okay, I just need to use the bathroom first.”
As Alice washed her hands, she looked over the products sitting on the table next to the sink—Neutrogena facial cleanser and moisturizer, Tom’s of Maine mint toothpaste, men’s deodorant, a box of Playtex tampons. She thought for a moment. She hadn’t had her period all summer. Did she have it in May? She’d be turning fifty next month, so she wasn’t alarmed. She hadn’t yet experienced any hot flashes or night sweats, but not all menopausal women did. That would be just fine with her.
As she dried her hands, she noticed the box of Trojan condoms behind Lydia’s hairstyling products. She was going to have to find out more about these roommates. Malcolm, in particular.
They sat at a table outside on the patio at Ivy, a trendy restaurant in downtown Los Angeles, and ordered two drinks, an espresso martini for Lydia and a merlot for Alice.
“So how’s Dad’s Science paper coming?” asked Lydia.
She must’ve talked recently with her father. Alice hadn’t heard from her since a phone call on Mother’s Day.
“It’s done. He’s very proud of it.”
“How’s Anna and Tom?”
“Good, busy, working hard. So how did you meet Doug and Malcolm?”
“They came into Starbucks one night while I was working.”
The waiter appeared, and each of them ordered dinner and another drink. Alice hoped the alcohol would dilute the tension between them, which felt heavy and thick and just beneath the tracing-paper-thin conversation.
“So how did you meet Doug and Malcolm?” she asked.
“I just told you. Why don’t you ever listen to anything I say? They came into Starbucks one night talking about looking for a roommate while I was working.”
“I thought you were waitressing at a restaurant.”
“I am. I work at Starbucks during the week and waitress on Saturday nights.”
“Doesn’t sound like that leaves a lot of time for acting.”
“I’m not cast in anything right now, but I’m taking workshop classes, and I’m auditioning a lot.”
“What kind of classes?”
“And what’ve you been auditioning for?”
“Television and print.”
Alice swirled her wine, drank the last, big gulp, and licked her lips. “Lydia, what exactly is your plan here?”
“I’m not planning on stopping, if that’s what you’re asking.”
The drinks were taking effect, but not in the direction Alice had hoped for. Instead, they served as the fuel that burned that little piece of tracing paper, leaving the tension between them fully exposed and at the helm of a dangerously familiar conversation.
“You can’t live like this forever. Are you still going to work at Starbucks when you’re thirty?”
“That’s eight years away! Do you know what you’ll be doing in eight years?”
“Yes, I do. At some point, you need to be responsible, you need to be able to afford things like health insurance, a mortgage, savings for retirement—”
“I have health insurance. And I might make it as an actor. There are people who do, you know. And they make a hell of a lot more money than you and Dad combined.”
“This isn’t just about money.”
“Then what? That I didn’t become you?”
“Lower your voice.”
“Don’t tell me what to do.”
“I don’t want you to become me, Lydia. I just don’t want you to limit your choices.”
“You want to make my choices.”
“This is who I am, this is what I want to do.”
“What, serving up Venti lattes? You should be in college. You should be spending this time in your life learning something.”
“I am learning something! I’m just not sitting in a Harvard classroom killing myself trying to get an A in political science. I’m in a serious acting class for fifteen hours a week. How many hours of class a week do your students take, twelve?”
“It’s not the same thing.”
“Well, Dad thinks it is. He’s paying for it.”
Alice clenched the sides of her skirt and pressed her lips together. What she wanted to say next wasn’t meant for Lydia.
“You’ve never even seen me act.”
John had. He’d flown out alone last winter to see her perform in a play. Swamped with too many urgent things at the time, Alice couldn’t free up to go. As she looked at Lydia’s pained eyes, she couldn’t remember now what those urgent things had been. She didn’t have anything against an acting career itself, but she believed her daughter’s singular pursuit of it, without an education, bordered on reckless. If she didn’t go to college now, acquire a knowledge base or formal training in some field, if she didn’t get a degree, what would she do if acting didn’t pan out?
Alice thought about those condoms in the bathroom. What if Lydia got pregnant? Alice worried that Lydia might someday find herself trapped in a life that was unfulfilled, full of regret. She looked at her daughter and saw so much wasted potential, so much wasted time.
“You’re not getting any younger, Lydia. Life goes by too fast.”
The food came, but neither of them picked up a fork. Lydia dabbed her eyes with her hand-embroidered linen napkin. They always fell into the same battle, and it felt to Alice like trying to knock down a concrete wall with their heads. It was never going to be productive and only resulted in hurting them, causing lasting damage. She wished Lydia could see the love and wisdom in what she wanted for her. She wished she could just reach across the table and hug her daughter, but there were too many dishes, glasses, and years of distance between them.
A sudden flurry of activity a few tables away pulled their attention from themselves. Several camera flashes popped, and a small crowd of patrons and waitstaff gathered, all focused on a woman who looked a bit like Lydia.
“Who’s that?” asked Alice.
“Mom,” said Lydia in a tone both embarrassed and superior, perfected at the age of thirteen. “That’s Jennifer Aniston.”
They ate their dinner and talked only of safe things, like the food and the weather. Alice wanted to discover more about Lydia’s relationship with Malcolm, but the embers of Lydia’s emotions still glowed hot, and Alice feared igniting another fight. She paid the bill and they left the restaurant, full but dissatisfied.
“Excuse me, ma’am!”
Their waiter caught up to them on the sidewalk.
“You left this.”
Alice paused, trying to comprehend how their waiter might come to possess her BlackBerry. She hadn’t checked her email or calendar in the restaurant. She felt inside her bag. No BlackBerry. She must’ve removed it when she fished her wallet out to pay.
Lydia looked at her quizzically, as if she wanted to say something about something other than food or weather, but then didn’t. They walked back to her apartment in silence.
Alice waited, suspended in the front hallway, holding the handle of her suitcase. Harvard Magazine lay on the top of a pile of unclaimed mail strewn on the floor in front of her. The clock in the living room ticked and the refrigerator hummed. A warm, sunny late afternoon at her back, the air inside felt chilly, dim, and stale. Uninhabited.
She picked up the mail and walked into the kitchen, her suitcase on wheels accompanying her like a loyal pet. Her flight had been delayed, and she was late getting in, even according to the microwave. He’d had a whole day, a whole Saturday, to work.
The red voice-mail light on their answering machine stared her down, unblinking. She checked the refrigerator. No note on the door. Nothing.
Still clutching the handle of her suitcase, she stood in the dark kitchen and watched several minutes advance on the microwave. The disappointed but forgiving voice in her head faded to a whisper as the volume of a more primal one began to build and spread out. She thought about calling him, but the expanding voice rejected the suggestion outright and refused all excuses. She thought about deciding not to care, but the voice, now seeping down into her body, echoing in her belly, vibrating in each of her fingertips, was too powerful and pervasive to ignore.
Why did it bother her so much? He was in the middle of an experiment and couldn’t leave it to come home. She’d certainly been in his shoes innumerable times. This was what they did. This was who they were. The voice called her a stupid fool.
She spotted her running shoes on the floor next to the back door. A run would make her feel better. That was what she needed.
Ideally, she ran every day. For many years now, she’d treated running like eating or sleeping, as a vital daily necessity, and she’d been known to squeeze in a jog at midnight or in the middle of a blinding snowstorm. But she’d neglected this basic need over the last several months. She’d been so busy. As she laced her shoes, she told herself she hadn’t bothered bringing them with her to California because she’d known she wouldn’t have the time. In truth, she’d simply forgotten to pack them.
When starting from her house on Poplar Street, she invariably followed the same route—down Massachusetts Avenue, through Harvard Square to Memorial Drive, along the Charles River to the Harvard Bridge over by MIT, and back—a little over five miles, a forty-five-minute round-trip. She had long been attracted to the idea of running in the Boston Marathon but each year decided that she realistically didn’t have the time to train for that kind of distance. Maybe someday she would. In excellent physical condition for a woman her age, she imagined running strong well into her sixties.
Clustered pedestrian traffic on the sidewalks and intermittent negotiations with car traffic in street intersections littered the first part of her run through Harvard Square. It was crowded and ripe with anticipation at that time of day on a Saturday, with crowds forming and milling around on street corners waiting for walk signals, outside restaurants waiting for tables, in movie theater lines waiting for tickets, and in double-parked cars waiting for an unlikely opening in a metered space. The first ten minutes of her run required a good deal of conscious external concentration to navigate through it all, but once she crossed Memorial Drive to the Charles River, she was free to run in full stride and completely in the zone.
A comfortable and cloudless evening invited a lot of activity along the Charles, yet the grassy area beside the river felt less congested than the streets of Cambridge. Despite a steady stream of joggers, dogs and their owners, walkers, Rollerbladers, cyclists, and women pushing babies in jogger strollers, like an experienced driver on a regularly traveled stretch of road, Alice retained only a vague sense for what went on around her now. As she ran along the river, she became mindful of nothing but the sounds of her Nikes hitting the pavement in syncopated rhythm with the pace of her breath. She didn’t replay her argument with Lydia. She didn’t acknowledge her growling stomach. She didn’t think about John. She just ran.
As was her routine, she stopped running once she made it back to the John Fitzgerald Kennedy Park, a pocket of manicured lawns abutting Memorial Drive. Her head cleared, her body relaxed and rejuvenated, she began walking home. The JFK Park funneled into Harvard Square through a pleasant, bench-lined corridor between the Charles Hotel and the Kennedy School of Government.
At the other end of the corridor, she stood at the intersection of Eliot Street and Brattle, ready to cross, when a woman grabbed her forearm with startling force and said, “Have you thought about heaven today?”
The woman fixed Alice with a penetrating, unwavering stare. She had long hair the color and texture of a teased Brillo pad and wore a handmade placard hung over her chest that read AMERICA REPENT, TURN TO JESUS FROM SIN. There was always someone selling God in Harvard Square, but Alice had never been singled out so directly and intimately before.
“Sorry,” she said and, noticing a break in the flow of traffic, escaped to the other side of the street.
She wanted to continue walking but stood frozen instead. She didn’t know where she was. She looked back across the street. The Brillo-haired woman pursued another sinner down the corridor. The corridor, the hotel, the stores, the illogically meandering streets. She knew she was in Harvard Square, but she didn’t know which way was home.
She tried again, more specifically. The Harvard Square Hotel, Eastern Mountain Sports, Dickson Bros. Hardware, Mount Auburn Street. She knew all of these places—this square had been her stomping ground for over twenty-five years—but they somehow didn’t fit into a mental map that told her where she lived relative to them. A black-and-white circular “T” sign directly in front of her marked an entrance to the Red Line trains and buses underground, but there were three such entrances in Harvard Square, and she couldn’t piece together which one of the three this was.
Her heart began to race. She started sweating. She told herself that an accelerated heart rate and perspiration were part of an orchestrated and appropriate response to running. But as she stood on the sidewalk, it felt like panic.
She willed herself to walk another block and then another, her rubbery legs feeling like they might give way with each bewildered step. The Coop, Cardullo’s, the magazines on the corner, the Cambridge visitors’ center across the street, and Harvard Yard beyond that. She told herself she could still read and recognize. None of it helped. It all lacked a context.
People, cars, buses, and all kinds of unbearable noise rushed and wove around and past her. She closed her eyes. She listened to her own blood whoosh and pulse behind her ears.
“Please stop this,” she whispered.
She opened her eyes. Just as suddenly as it had left her, the landscape snapped snugly back into place. The Coop, Cardullo’s, Nini’s Corner, Harvard Yard. She automatically understood that she should turn left at the corner and head west on Mass Ave. She began to breathe easier, no longer bizarrely lost within a mile of home. But she’d just been bizarrely lost within a mile of home. She walked as fast as she could without running.
She turned onto her street, a quiet, tree-lined, residential road a couple of blocks removed from Mass Ave. With both feet on her road and her house in sight, she felt much safer, but not yet safe. She kept her eyes on her front door and her legs moving and promised herself that the sea of anxiety swelling furiously inside her would drain when she walked in the front hallway and saw John. If he was home.
He appeared in the threshold of the kitchen, unshaven, his glasses sitting on top of his mad-scientist hair, sucking on a red Popsicle and sporting his lucky gray T-shirt. He’d been up all night. As she’d promised herself, her anxiety began to drain. But her energy and bravery seemed to leak out with it, leaving her fragile and wanting to collapse into his arms.
“Hey, I was wondering where you were, just about to leave you a note on the fridge. How’d it go?” he asked.
“And how’s Lydia?”
The betrayal and hurt over Lydia, over him not being home when she got there, exorcised by the run and displaced by her terror at being inexplicably lost, reclaimed its priority in the pecking order.
“You tell me,” she said.
“You guys fought.”
“You’re paying for her acting classes?” she accused.
“Oh,” he said, sucking the last of the Popsicle into his red-stained mouth. “Look, can we talk about this later? I don’t have time to get into it right now.”
“Make the time, John. You’re keeping her afloat out there without telling me, and you’re not here when I get home, and—”
“And you weren’t here when I got home. How was your run?”
She heard the simple reasoning in his veiled question. If she had waited for him, if she had called, if she hadn’t done exactly what she’d wanted and gone for a run, she could’ve spent the last hour with him. She had to agree.
“I’m sorry, I waited as long as I could, but I’ve really got to get back to the lab. I’ve had an incredible day so far, gorgeous results, but we’re not done, and I’ve got to analyze the numbers before we get started again in the morning. I only came home to see you.”
“I need to talk about this with you now.”
“This really isn’t new information, Ali. We disagree about Lydia. Can’t it wait until I get back?”
“You want to walk over with me, talk about it on the way?”
“I’m not going to the office, I need to be home.”
“You need to talk now, you need to be home, you’re awfully needy all of a sudden. Is something else going on?”
The word needy smacked a vulnerable nerve. Needy equaled weak, dependent, pathological. Her father. She’d made a lifelong point of never being like that, like him.
“I’m just exhausted.”
“You look it, you need to slow down.”
“That’s not what I need.”
He waited for her to elaborate, but she took too long.
“Look, the sooner I go, the sooner I’ll be back. Get some rest, I’ll be home later tonight.”
He kissed her sweat-drenched head and walked out the door.
Standing in the hallway where he’d left her, with no one to confess to or confide in, she felt the full emotional impact of what she’d just experienced in Harvard Square flood over her. She sat down on the floor and leaned against the cool wall, watching her hands shake in her lap as if they couldn’t be hers. She tried to focus on steadying her breath as she did when she ran.
After minutes of breathing in and breathing out, she was finally calm enough to attempt to assemble some sense out of what had just happened. She thought about the missing word during her talk at Stanford and her missing period. She got up, turned on her laptop, and Googled “menopause symptoms.”
An appalling list filled the screen—hot flashes, night sweats, insomnia, crashing fatigue, anxiety, dizziness, irregular heartbeat, depression, irritability, mood swings, disorientation, mental confusion, memory lapses.
Disorientation, mental confusion, memory lapses. Check, check, and check. She leaned back in her chair and raked her fingers through her curly black hair. She looked over at the pictures displayed on the shelves of the floor-to-ceiling bookcase—her Harvard graduation day, she and John dancing on their wedding day, family portraits from when the kids were little, a family portrait from Anna’s wedding. She returned to the list on her computer screen. This was just the natural, next phase in her life as a woman. Millions of women coped with it every day. Nothing life-threatening. Nothing abnormal.
She wrote herself a note to make an appointment with her doctor for a checkup. Maybe she should go on estrogen replacement therapy. She read through the list of symptoms one last time. Irritability. Mood swings. Her recent shrinking fuse with John. It all added up. Satisfied, she shut down her computer.
She sat in the darkening study awhile longer, listening to her quiet house and the sounds of neighborhood barbecues. She inhaled the smell of hamburger grilling. For some reason, she wasn’t hungry anymore. She took a multivitamin with water, unpacked, read several articles from The Journal of Cognition, and went to bed.
Sometime after midnight, John finally came home. His weight in their bed woke her, but only slightly. She remained still and pretended to stay asleep. He had to be exhausted from being up all night and working all day. They could talk about Lydia in the morning. And she’d apologize for being so sensitive and moody lately. His warm hand on her hip brought her into the curve of his body. With his breath on her neck, she fell into a deep sleep, convinced that she was safe.
What People are Saying About This
"After I read Still Alice, I wanted to stand up and tell a train full of strangers, 'You have to get this book.'" Beverly Beckham, The Boston Globe
"This book is as important as it is impressive, and will grace the lives of those affected by this dread disease for generations to come." Phil Bolsta, author of Sixty Seconds
"With a master storyteller's easy eloquence, Lisa Genova shines a searing spotlight on this Alice's surreal wonderland. You owe it to yourself and your loved ones to read this book. It will inform you. It will scare you. It will change you." Julia Fox Garrison, author of Don't Leave Me This Way
"A work of pure genius." Charley Schneider, author of Don't Bury Me, It Ain't Over Yet
"A masterpiece that will touch lives in ways none of us can even imagine. This book is the best portrayal of the Alzheimer's journey that I have read." Mark Warner, Alzheimer's Daily News
"With grace and compassion, Lisa Genova writes about the enormous white emptiness created by Alzheimer's." The Improper Bostonian
"Heartbreaking." The Cape Cod Chronicle
"Heartbreakingly real.... So real, in fact, that it kept me from sleeping for several nights. I couldn't put it down....Still Alice is a story that must be told." Brunonia Barry, New York Times bestselling author of The Lace Reader
Reading Group Guide
1. When Alice becomes disoriented in Harvard Square, a place she's visited daily for twenty-five years, why doesn't she tell John? Is she too afraid to face a possible illness, worried about his possible reaction, or some other reason?
2. After first learning she has Alzheimer's disease, "the sound of her name penetrated her every cell and seemed to scatter her molecules beyond the boundaries of her own skin. She watched herself from the far corner of the room" (pg. 70). What do you think of Alice's reaction to the diagnosis? Why does she disassociate herself to the extent that she feels she's having an out-of-body experience?
3. Do you find irony in the fact that Alice, a Harvard professor and researcher, suffers from a disease that causes her brain to atrophy? Why do you think the author, Lisa Genova, chose this profession? How does her past academic success affect Alice's ability, and her family's, to cope with Alzheimer's?
4. "He refused to watch her take her medication. He could be mid-sentence, mid-conversation, but if she got out her plastic, days-of-the-week pill container, he left the room" (pg. 89). Is John's reaction understandable? What might be the significance of him frequently fiddling with his wedding ring when Alice's health is discussed?
5. When Alice's three children, Anna, Tom and Lydia, find out they can be tested for the genetic mutation that causes Alzheimer's, only Lydia decides she doesn't want to know. Why does she decline? Would you want to know if you had the gene?
6. Why is her mother's butterfly necklace so important to Alice? Is it only because she misses her mother? Does Alice feel a connection to butterflies beyond the necklace?
7. Alice decides she wants to spend her remaining time with her family and her books. Considering her devotion and passion for her work, why doesn't her research make the list of priorities? Does Alice most identify herself as a mother, wife, or scholar?
8. Were you surprised at Alice's plan to overdose on sleeping pills once her disease progressed to an advanced stage? Is this decision in character? Why does she make this difficult choice? If they found out, would her family approve?
9. As the symptoms worsen, Alice begins to feel like she's living in one of Lydia's plays: "(Interior of Doctor's Office. The neurologist left the room. The husband spun his ring. The woman hoped for a cure.)" (pg. 141). Is this thought process a sign of the disease, or does pretending it's not happening to her make it easier for Alice to deal with reality?
10. Do Alice's relationships with her children differ? Why does she read Lydia's diary? And does Lydia decide to attend college only to honor her mother?
11. Alice's mother and sister died when she was only a freshman in college, and yet Alice has to keep reminding herself they're not about to walk through the door. As the symptoms worsen, why does Alice think more about her mother and sister? Is it because her older memories are more accessible, is she thinking of happier times, or is she worried about her own mortality?
12. Alice and the members of her support group, Mary, Cathy, and Dan, all discuss how their reputations suffered prior to their diagnoses because people thought they were being difficult or possibly had substance abuse problems. Is preserving their legacies one of the biggest obstacles to people suffering from Alzheimer's disease? What examples are there of people still respecting Alice's wishes, and at what times is she ignored?
13. "One last sabbatical year together. She wouldn't trade that in for anything. Apparently, he would" (pg. 223). Why does John decide to keep working? Is it fair for him to seek the job in New York considering Alice probably won't know her whereabouts by the time they move? Is he correct when he tells the children she would not want him to sacrifice his work?
14. Why does Lisa Genova choose to end the novel with John reading that Amylix, the medicine that Alice was taking, failed to stabilize Alzheimer's patients? Why does this news cause John to cry?
15. Alice's doctor tells her, "You may not be the most reliable source of what's been going on" (pg. 54). Yet, Lisa Genova chose to tell the story from Alice's point of view. As Alice's disease worsens, her perceptions indeed get less reliable. Why would the author choose to stay in Alice's perspective? What do we gain, and what do we lose?
Enhance Your Book Club:
1. If you'd like to learn more about Alzheimer's or help those suffering from the disease, please visit www.actionalz.org or www.alz.org.
2. The Harvard University setting plays an important role in Still Alice. If you live in the Cambridge area, hold your meeting in one of the Harvard Square cafés. If not, you can take a virtual tour of the university at: http://www.hno.harvard.edu/tour/guide.html
3. In order to help her mother, Lydia makes a documentary of the Howlands' lives. Make one of your own family and then share the videos with the group.
4. To learn more about Still Alice, please visit www.lisagenova.com.
Most Helpful Customer Reviews
For anyone whose life has been touched by Alzheimer's disease (as so many have been, and many more will be), or for anyone who is approaching the far side of middle age, this book is at the same time clarifying and terrifying. The author takes the perspective of the Alzheimer's patient herself, one which is frequently overlooked by more "scholarly" works on the topic, and changes the whole tone of her writing as well as the subjects portrayed, as the narrator progresses further into the grip of the disease. She brings out many seldom-contemplated factors such as quality of life, support groups and counseling for the patient as well as the caregivers, and provides a gripping, touching, and horrifying sense of how it must be to feel yourself slipping away. I highly recommend this book to anyone. I have already passed around my advance copy and plan to buy several copies for family members and friends when it is released. A must-read for caregivers, relatives, and persons in the early stages of Alzheimers, and a goldmine for book groups.
Lisa Genova takes a subject that is so difficult to deal with and turns it into a time that all can learn from. If you have ever had a parent or sibling die from this disease, you will find this book a must to understand what happens from the patient's perspective of this long good bye. Lisa Genova takes the time to show how difficult it is for the patient as well as the family. As a caretaker you sometimes forget that there is a person locked inside this disease that is unable to remember but can still function at some level. Each stage is handled with care and openness, but will leave the reader asking questions about their own reactions if faced with such a situation. No one is left out. If you have not been confronted with this disease, you will gain a deeper understanding and appreciation for both the patient and caregivers through this piece of literature.
Once I started reading Still Alice, I couldn't stop!! I have had some personal experiences with a few friends that developed early onset of Alzheimer's Disease and I believe that the author totally captured all of the nuances that seem to go along with the disease. I think that the author depicted the progression of the disease very accurately as well as what happens to the family and friends that watch the person slowly but surely deteriorating no matter what the lifestyle or education of that person is. It was a book that touched my emotions because of my personal experiences. As I read the book, I sometimes found myself having to put it down because of my feelings....but moments later picking up the book to continue reading it. A must read!!
I am a slow reader and our book club chose this book for the month and I read it in 3 days. I always take the month to read the book. This is a book that really stays with you in your thoughts and will be a great discussion book for the club.
I could identify with so much in this book -- my husband was diagnosed 7 years ago with early onset Alzheimer's Disease when he was only 56 years old. He now knows none of his family and is in institutional care. The book was very accurate about the denial by patient, family members, friends -- and about the stigma of all forms of dementia. As portrayed in the book, friends often disappear, even family members eventually fade away as the patient's mind fades also. I think everyone should be encouraged to read this heartbreaking account of Alzheimer's and equally important, the story of caregiving. An excellent book, be prepared to be shocked, saddened, and educated by this story.
Still Alice is a compelling story about a Harvard Professor's decline into Alzheimer's disease and the revelation of what a person goes through on his or her journey down the road to dementia. This will tug at your heart as you feel 50 year old Alice's confusion and the toll it takes on family and friends.
LAUGHED, CRIED, AND WONDERED THIS BOOK STARTS OUT REGULAR AND ENDS WITH A BANG! AS THE STORY PROGRESSES YOU START TO WONDER MORE AND MORE ABOUT THE CHARACTERS CONDITION.THIS COMING FROM SOMEONE WHO PREFERS ROMANTIC/FICTIONAL NOVELS. WAS A BORROWED BOOK. WHEN I WAS DONE I HURRIED TO BARNES AND NOBLE, BOUGHT A HARDCOPY FOR ME AND A SPANISH VERSION FOR MY MOTHER. IT IS SUCH A GREAT READ!
This was one of the most powerful stories I've read in a long time. Having a family member suffering from dementia, reading the book gave me a deeper insight into our relative's behaviors. While it is a disturbing story, it is also one that will provoke conversation and give a greater understanding of those suffering from one of the illnesses involving memory loss.
I have to admit, I'm mostly a sci-fi person. I have no idea why I purchased this book, all I know is that I'm glad that I did! "Still Alice" takes you on a journey through the mind of a woman (Alice) who has been diagnosed with Alzheimer's Disease. Most of the book is told through Alice's eyes, and it is a fascinating and yet sad story of how Alice feels as she progresses through the different stages of the disease, as well as the conflicts within the family as each family member learns to deal with their own emotions about Alice having Alzheimers. When the family learns that the type of Alzheimers that Alice has is the type that is genetic, each of her three children must decide whether or not to get tested for the gene that carries the disease, and then make choices on whether or not to have children of their own who might also carry the gene. I found the trials of Alice's two daughters intriguing, as they are almost a story within the story as each daughter begins to make choices in her life based on Alice's diagnosis. I found this story to be acurate, intense, terrifying, heartbreaking and yet felt immense joy at a family who came together in the time of need.
I have early-onset. It scares me to death when i can't remember a word , a sentence or why i went into the kitchen 3 times in the last hour. What scares me most is i see my husband struggling trying to remember a word or where he put his key's or the checkbook. You will need kleenex but enjoy those laugh's you'll get. Please please please read this book. It's worth so much more than money & much more than 5 stars
This is a very accurate picture of what a family goes through when a parent is diagnosed with Early Onset Alzheimer's its hard to believe that its actually a fictional account. My father was diagnosed with Early Onset Alzheimer's and many of the things that happened to my father was exactly like the book. I just wish I had this book before he was diagnosed. It is uncanny how much Lisa Genova details in the book apply to people diagnosed with this disease. I can remember my father talking to me about his daughter when we where sitting at the kitchen table and having to tell him that I was his daughter. Just as Alice was speaking to Lydia the night of the play and not knowing who she was. This book was a great read. I would highly recommended it .
Originally when my book club suggested this book to read I didn't think I would enjoy reading it as I feared it would be too emotionally heavy. However, I thought it was sensitively written and did not leave the reader feeling sorry for Alice but more intrigued by how she dealt with her condition. It was also interesting to see how her family handled the changes in Alice and how it impacted even the youngest members of the family. It made me wonder how my own family and spouse would handle such a situation if it happened to me.
If you have ever searched for a word while mid-sentence in a conversation you will unfortunately be able to relate to Alice and have a small taste of her frustration of losing her mind. The author writes in a way that is easy to understand and straight to the point. As other reviewers pointed out, there is little literary merit but I just don't think that is what the book is about. The language does have a clinical and cold feeling at times but I think that is a wonderful way for the story of Alice to unfold. If it was all roses and sunsets or even a dark metaphorical path, we wouldn't be gaining any favors. Disturbing. Haunting. Depressing. You will feel the mind numbing sorrow that Alice experiences and find yourself praying that this horrible disease doesn't affect you or your loved ones.
When I first picked up this book at the store to read the jacket, my first thought was "I don't know if I want to read something that will be so sad." I am so glad that I didn't listen to that first thought. Still Alice gives us a look into the world of Alzheimer's from Alice's point of view - an intelligent woman who is trying to figure out how to deal with her mind. How many of us know someone with this disease? Do you treat them differently after you have learned? Once you read this book, you may look at your own actions in a different light.
It has been a long time since I have read a book that has had such an emotional impact on me as Still Alice did. Alice and her story gripped my heart. I found myself tearing up on more than one occasion, my heart ached as if Alice were my own mother. Well, let me just say that I was profoundly moved. Lisa Genova did an outstanding job of putting the reader inside the story. Inside of Alice's shoes. Frankly, it was a frightening place to be. I was very impressed with her way of telling Alice's story. I can see why the book has been so successful and I look forward to reading future works by Lisa Genova.
As a 56 year-old professional, this book evoked both fear and an appreciation for life. As a nurse, I have worked extensively with adults in the later stages of dementia and have never been a witness to the earlier, frightening evolution. An excellent look into the torment of memory loss.
Lisa Genova has captured the Alzheimer's victim from the inside out in her story 'Still Alice' and in such a way the reader finds themself as part of Alice's story. The research is extensive with regard to this disease and it, too, becomes a part of Alice's story. Because of this research, the reader sees the parallels between early onset Alzheimer's and Alzheimer's disease that affects so so many of our elderly. Many who read this book will purchase it because of the subject matter. I did. I had no idea the impact it would have on me. I believe for some time to come, this story and its impact will remain - I will think of Alice, a passage in Lisa's book, and each time I look at my mother who has Alzheimer's, I will remember. Lisa Genova has educated, enlightened, and she has written a book on a sensitive subject that will stay with you for a long time.
This is an ncredibly interesting book, not to be read where others will see you cry though.
I read this book in a weekend. Im not sure how realistic it is, but it seemed very real to me. Alice's kids seemed very involved once Alice got sick. I think most kids would be uncomfortable and stay away if possible. I hope I never get AD, or anyone I know. So sad
This is a must read...excellent writer
As a nurse of 30 years and having worked with dementia and Alzheimers for years, this book is terrifyingly "on" and really close to home as i am the same age as Alice and i was spooked for weeks after reading this. Excellent point made when comparing the quality of life and perception of the public of an Alzheimer victim vs a person with a cancer diagnosis. Alice's husband is all too real and true in his actions and emotional struggles. Love the support group for the patient as that is one thing that i have never heard of aside from care of the alzheimer person. Enlightening.
this book is a must read for anyone that has alzhimers or anyone that has a loved one with the diease. it is a wonderful book, must read for everyone. Loved it, it will break your heart, sad but very good book.
After seeing this book at my local Wal-Mart, I decided to give it a shot. I was blown away at the journey you take along with Alice. You can feel her pain and confusion. It is so heart breaking yet you have a front row seat to her experience. I highly recommend this book to anyone who wants to understand this condition.
This is an amazing book, moving and heartbreaking in every way. Alice has early onset Alzheimer's and this book is told by her point of view which is scary and heartbreaking to see this professor at Harvard go downhill. You feel for her as she loses more than memory she loses herself, her comfort, her meaning in life. Her husband kind of made me mad I've seen how hard Alzheimer's can be on the caregiver but this was the first thing I've read from the person with the disease's perspective, because of that it was harder for me to be sympathetic towards her husband. I hope to never be in Alice's shoes it must be so awful to not recognize your own children and family. This is a very powerful read that I would recommend whole heartedly. If you know anyone whose lives have been touched by Alzheimer's they need to read this book.
I couldn't put this book down. This fictional (but, oh, so real!) family's story broke my heart and scared me to death, while at the same time provided me understanding and hope. I loved the Alice character so much. The author combined research and her own neuroscience knowledge to incorporate Alzheimer's facts into a fictional case based on real experiences pulled from her interviews and research. I will keep this book in the event that Alzheimer's Disease enters the lives of my friends or family in the future. Everyone should read "Still Alice." This book includes discussion questions for book clubs and an interview with Dr. Genova.