Bringing together the empirical work of researchers from a variety of disciplines, this volume provides insight into the physical, psychological and social needs of the growing number of elderly people caring for adults with developmental disabilities. Issues explored include: the needs of elderly parents caring for adult offspring with learning difficulties; changes in care-giving activities; the increasing burden of care-giving; the ordeal of planning future out-of-home placement; and the needs of care-givers of ageing adults with Down's syndrome and Alzheimer's disease. A concluding chapter draws together implications for future directions in practice, policy and research.
About the Author
Karen A. Roberto, Ph.D., is the Director of the Center for Gerontology, Founding Director of the Institute of Society, Culture, and Environment, and Professor of Human Development at Virginia Polytechnic Institute and State University. She also holds adjunct appointments in the Departments of Internal Medicine and Psychiatry and Behavioral Medicine at the Virginia Tech Carilion School of Medicine. She has published over 150 scholarly articles and book chapters, is the editor/author of ten books, and has earned numerous university and professional awards, including the Gerontological Society of America Behavioral and Social Science Distinguished Mentorship in Gerontology Award
Table of Contents
PART ONE: REVIEW OF THE CAREGIVING LITERATUREFamily Caregivers of Aging Adults With Disabilities - Karen A Roberto A Review of the Caregiving LiteraturePART TWO: ISSUES AND CONCERNS OF OLDER CAREGIVERSAging Caregivers of Persons With Developmental Disabilities - Tamar Heller Changes in Burden and Placement DesireOlder Caregivers of Family Members With Developmental Disabilities - Karen A Roberto Changes in Roles and PerceptionsCaring for Adult Children With Mental Retardation - Ellie Brubaker and Timothy H Brubaker Concerns of Elderly ParentsAging Adults With Down Syndrome - Barbara A Hawkins, Susan J Eklund and B L Martz Biological and Psychosocial Considerations for CaregiversAdults with Down Syndrome and Alzheimer's - Elizabeth A Noelker and Lauren C Somple Clinical Observations of Family CaregiversPART THREE: INTERACTIONS BETWEEN OLDER CAREGIVERS AND THE SERVICE COMMUNITYPlanning for the Transfer of Care - Joan B Wood Social and Psychological IssuesCurrent and Future Service Needs of Aging Individuals With Developmental Disabilities Living With Relatives - Jean P Lehmann and Karen A RobertoFamily Satisfaction With Case Management and Service Provision - Christine Rinck and Carl Calkins Rural and Urban Perspectives for Older Families of Persons With Developmental DisabilitiesCase Managers' Perceptions of Practice With Older Parents of Adults With Developmental Disabilities - Gregory C Smith and Sheldon S TobinPART FOUR: PRACTICE, RESEARCH, AND POLICY DIRECTIVESEmpowering Elderly Caregivers - Edward F Ansello and Karen A Roberto Practice, Research, and Policy Directives