The Guide to Good Health for Teens and Adults with Down Syndromeby Brian Chicoine, Dennis Eugene McGuire
The authors of the bestselling Mental Wellness in Adults with Down Syndrome turn their attention to the physical health of teens and adults with Down syndrome. Drs. Chicoine and McGuire provide invaluable insight into what health problems are more common in their patients, and how medical issues can "present" differently in people with Down syndrome. In a clear,
The authors of the bestselling Mental Wellness in Adults with Down Syndrome turn their attention to the physical health of teens and adults with Down syndrome. Drs. Chicoine and McGuire provide invaluable insight into what health problems are more common in their patients, and how medical issues can "present" differently in people with Down syndrome. In a clear, empathetic style, they discuss how to promote a healthy lifestyle to prevent problems, and how to recognize health problems early on to ensure appropriate care and the best outcome. The Guide to Good Health is a resource families and caregivers can refer to over and over again, whether it's to find strategies to get a teen or adult to cooperate with treatment, or to consider if a symptom is being misdiagnosed or misunderstood.
Key topics include:
• Characteristics of Down syndrome that can affect health care;
• More commonly occurring medical issues;
• The connection between mental & physical Health;
• Dealing with hospitalizations;
• Long term health and well being throughout the lifespan;
• Advance directives and end of life issues;
• Specific medical conditions (ranging from skin and nail problems, eye, nose and throat issues, and cardiac concerns, to thyroid disorder, diabetes, Alzheimer disease, and sleep problems).
For each condition, the authors discuss symptoms, the diagnostic process, and treatment options. Real-life examples from the authors' decades of experience help to illustrate how some medical problems can mistakenly be attributed to characteristics of Down syndrome. As the average person with Down syndrome lives considerably longer than in previous generations, The Guide to Good Health can also help families know what to expect during the aging process.
Description: This is a practical guide to healthcare for adults and adolescents (ages 12 and above) with Down syndrome.
Purpose: The purpose is to draw attention to differences in promoting the health of adults with Down syndrome, address adult problems that are more common in Down syndrome patients, and focus on the unique manner in which some common adult health problems present in patients with Down syndrome. These are worthy objectives, and the book goes beyond providing simple guidelines for families and practitioners, by giving tips on diagnosis and treatment that the author has gleaned from his many years caring for Down syndrome patients.
Audience: The book is written primarily for family and home caregivers of adults with Down syndrome. It also targets internists who likely were not trained in the unique aspects of Down syndrome care, yet may be asked to be an important part of the medical home of these patients as they advance in years beyond the care of pediatricians.
Features: The book covers the major body systems and a discussion of common problems that occur in each of these in Down syndrome patients. Throughout these discussions, the interaction between mental and physical health is highlighted in the diagnosis and treatment of each system. Discussions on healthy sexuality and avoiding and identifying abuse are included, as well as one on advance directives. Two useful addendums on drinking more fluids and health screening recommendations for adults with Down syndrome are also included.
Assessment: This is an excellent addition to the array of medical reference books available to caregivers of people with Down syndrome. Its focus on the care of adolescents and adults is unique. This is important today, and in the future, as patients with Down syndrome continue to have longer life expectancies.
- Woodbine House
- Publication date:
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- Product dimensions:
- 6.90(w) x 9.80(h) x 0.90(d)
What People are Saying About This
"Chicoine and McGuire have more experience caring for the physical and mental health of teens and adults with Down syndrome than anyone. Their experience has produced The Guide to Good Health for Teens & Adults with Down Syndrome which is filled with thoughtful, practical advice and written in a straight forward style making their recommendations accessible for families and healthcare professionals. They have simplified the complex and interrelated physical and mental health issues found in Down syndrome and produced an incredible guide."
--(Nancy J. Roizen, M.D.
Director, Division of Developmental-Behavioral Pediatrics, Rainbow Babies and
Children's Hospital, Cincinnati, Ohio)
Meet the Author
Brian Chicoine, M.D., is the Medical Director of the Adult Down Syndrome Center of Lutheran General Hospital in suburban Chicago.
Dennis McGuire, Ph.D., is the Director of Psychosocial Services for the Adult Down Syndrome Center.
Together they founded The Center in 1992 and have served more than 4,000 adults with Down syndrome since its inception.
Most Helpful Customer Reviews
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The Guide to Good Health for Teens and Adults with Down syndrome is a book that I guarantee will grab you in the first few minutes and then inform, educate, and move you to a level of understanding of Down syndrome that I did not think possible. I am much more emotionally attuned and adequately informed on health issues in the adult with Down syndrome after reading this excellent work of Brian Chicoine, Dennis Eugene McGuire. I recommend this book be read from cover to cover by parents, advocates and guardians of individuals with Down syndrome. This is not a book for the parent of the newborn or adolescent but a must read for the afore mentioned where the individual with Ds is twelve to ninety nine.