This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to megalencephaly (also 742.4 Other specified anomalies of brain), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on megalencephaly. Given parents' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.
|Publisher:||Icon Group International, Incorporated|
|Product dimensions:||8.25(w) x 11.00(h) x 0.24(d)|
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers megalencephaly, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that megalencephaly is often considered a synonym or a condition closely related to the following: 742.4 Other specified anomalies of brain.
Table of Contents
PART I: THE ESSENTIALS
Chapter 1. The Essentials on Megalencephaly: Guidelines
What Are Cephalic Disorders?
What Are the Different Types of Cephalic Disorders?
Less Common Cephalies
What Research Is Being Done?
Where Can I Go for More Information?
What Is Megalencephaly?
Is There Any Treatment?
What Is the Prognosis?
What Research Is Being Done?
For More Information
More Guideline Sources
Chapter 2. Seeking Guidance
Finding a Neurologist
Selecting Your Child’s Doctor
Working with Your Child’s Doctor
Broader Health-Related Resources
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 3. Studies on Megalencephaly
The Combined Health Information Database
Federally Funded Research on Megalencephaly
The National Library of Medicine: PubMed
Chapter 4. Books on Megalencephaly
Chapters on Megalencephaly
General Home References
PART III. APPENDICES
Appendix A. Researching Your Child’s Medications
Your Child’s Medications: The Basics
Learning More about Your Child’s Medications
Contraindications and Interactions (Hidden Dangers)
A Final Warning
Appendix B. Researching Nutrition
Food and Nutrition: General Principles
Finding Studies on Megalencephaly
Federal Resources on Nutrition
Additional Web Resources
Appendix C. Finding Medical Libraries
Finding a Local Medical Library
Medical Libraries in the U.S. and Canada
Appendix D. Your Child’s Rights and Insurance
Your Child’s Rights as a Patient
Choosing an Insurance Plan
NORD’s Medication Assistance Programs
Online Dictionary Directories
General Dictionaries and Glossaries