It affects all of us in different ways.
For some, Neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more.
Many of us are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all teh effects of NF.
Stereotyped, ignored, or shunned by a world who thinks we either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks.
In a society that values beauty so highly, NF'ers often choose to hide from others, and end up hiding from themselves.
In 2007, Kristi chose to stop hiding, and start Thriving, as NF became a bigger part of my life than ever before, taking a firm grip on the health of three of my six children.
Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive.
And so do YOU.
Thriving with Neurofibromatosis. We ALL have a story, this is mine.
|Product dimensions:||6.00(w) x 9.00(h) x 0.28(d)|
About the Author
After spending the majority of her youth in Southern California, Kristi now resides in Broomfield, CO. When she's not managing the household, she's actively working to let the world know more about Neurofibromatosis.
Kristi's blog, http://thrivingwithneurofibromatosis.blogspot.com has been the cornerstone of her passion for evangelizing on behalf of NFer's around the world since she started it in 2009.
Kristi welcomes the opportunity to speak to your group about Thriving with Neurofibromatosis. Contact her at Kristi.Hopkins@gmail.com for details on how to book her at your next event.
Most Helpful Customer Reviews
An inspiring yet realistic look at life with NF. I face this same challenge and deeply appreciate Kristi's portrait of courage. If the public at large (including medical professionals who sometimes fall short) are expected to accept and respect this issue and work towards a solution...we must first accept ourselves. Thanks for providing a shining light on this path!
Truley amazing my son set down with me and i read it all to him.
This is a great book, for those who do not understand or what to know what its like to have Neurofibromatosis or NF read this book. You are one of NF Hero's Kristi
Type 1 but i am getting them removed and i am small for my age because nf type 1 grows on the end of me nerves causing me not to grow very fast