What Would You Do?: Juggling Bioethics and Ethnography available in Hardcover
- Pub. Date:
- University of Chicago Press
In hospital rooms across the country, doctors, nurses, patients, and their families grapple with questions of life and death. Recently, they have been joined at the bedside by a new group of professional experts, bioethicists, whose presence raises a host of urgent questions. How has bioethics evolved into a legitimate specialty? When is such expertise necessary? How do bioethicists make their decisions? And whose interests do they serve?
Renowned sociologist Charles L. Bosk has been observing medical care for thirty-five years. In What Would You Do? he brings his extensive experience to bear on these questions while reflecting on the ethical dilemmas that his own ethnographic research among surgeons and genetic counselors has provoked. Bosk considers whether the consent given to ethnographers by their subjects can ever be fully voluntary and informed. He questions whether promises of confidentiality and anonymity can or should be made. And he wonders if social scientists overestimate the benefits of their work while downplaying the risks.
Vital for practitioners of both the newly prominent field of bioethics and the long-established craft of ethnography, What Would You Do? will also engross anyone concerned with how our society addresses difficult health care issues.
|Publisher:||University of Chicago Press|
|Product dimensions:||6.00(w) x 9.00(h) x (d)|
About the Author
Charles L. Bosk is professor of sociology at the University of Pennsylvania and the author of Forgive and Remember: Managing Medical Failure and All God’s Mistakes: Genetic Counseling in a Pediatric Hospital, both published by the University of Chicago Press.
Table of Contents
Introduction • What Would You Do? Juggling Bioethics and Ethnography
ONE • THE ETHNOGRAPHY OF ETHICS
1. Professional Ethicist Available: Logical, Secular, Friendly
2. The Licensing and Certification of Ethics Consultants: What Part of "No!" Was So Hard to Understand?
3. Institutional Ethics Committees: Sociological Oxymoron, Empirical Black Box
4. Margin of Error: The Sociology of Ethics Consultation
5. Bureaucracies of Mass Deception: Institutional Review Boards and Ethics of Ethnographic Research with Raymond G. De Vries
TWO • THE ETHICS OF ETHNOGRAPHY: GENETIC COUNSELORS REVISITED
6. Invitation to Ethnography
7. A Twice-Told Tale of Witnessing
8. Irony, Ethnography, and Informed Consent
THREE • THE ETHICS OF ETHNOGRAPHY: SURGEONS REVISITED
9. The Field-Worker and the Surgeon
10. An Ethnographer's Apology, A Bioethicist's Lament: The Surgeon and the Sociologist Revisited
11. A Moment of Silence: On Not Giving Up Dr. Arthur's Ghost
CONCLUSION • PROFESSIONAL EXPERTISE AND MORAL COWARDICE
Counterfeit Courage and the Noncombatant