Young People and Chronic Illness is a must-read for teens suffering from a chronic illness, and for those people who know and love them. Huegel speaks openly about her own battle with Crohn's disease since the age of twelve, and how she refused to become a victim of her illness. She'll show you how to do the same, as you are introduced to ten exceptional teens who suffer the effects of chronic illnesses like diabetes, cancer, and hemophilia. Their stories will touch your heart as you learn how they cope socially, physically, and emotionally with chronic illness every day. You will also find the information in the second part of the book to be a godsend, with answers to questions about everything from school, support groups, hospitals, and family. Huegel has done a huge favor by writing this book, and after you finish it, you will never again think the same way about chronic illness.
Children's Literature - Helen Pavick
Gr 5 Up-In the first section of this book, Huegel introduces 10 young people, each of whom has a chronic illness. They explain how they were diagnosed; medical management; and how they deal with family, friends, and school. They share how they have fashioned a satisfying life for themselves despite the limitations their conditions might impose. The diseases discussed are hemophilia, diabetes, epilepsy, asthma, cancer, inflammatory bowel disease, juvenile rheumatoid arthritis, congenital heart defect, and lupus. Each chapter is accompanied by a small black-and-white photograph of its subject, followed by questions and answers about the disease and a list of resources including organizations, books, and Web sites. Part two discusses strategies for managing an illness; maintaining a relationship with a doctor; dealing with friends, family, and school; battling fear of hospitals; finding a support group; and planning for the future. The text, written in a conversational, sympathetic tone, is sprinkled with upbeat quotes. Advice is terse, well organized, and to the point, making it easy to remember, if difficult to carry out. There are many books that relate stories about the disease of the month, but Huegel's focus is on how these kids manage their own lives and how their experiences can help others cope with chronic illness. A good choice for any collection.-Martha Gordon, formerly at South Salem Library, NY
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