Your Child with Arthritis: A Family Guide for Caregiving

Your Child with Arthritis: A Family Guide for Caregiving




Your Child with Arthritis is designed to help parents and other family members with the challenging task of raising a child with a rheumatic disease. The authors—two pediatric rheumatologists, a physical thera pist, and the parent of a child with juvenile arthritis—offer a wealt h of information on rheumatic illnesses and explore a range of solutio ns for medical, emotional, and social and school-related problems. The y also emphasize the important message that children should be encoura ged to enjoy as many activities as possible, find and pursue their own interests, and develop independence and self-confidence.

Product Details

ISBN-13: 9780801865343
Publisher: Johns Hopkins University Press
Publication date: 10/28/2000
Series: A Johns Hopkins Press Health Book
Edition description: Reprint
Pages: 256
Product dimensions: 6.82(w) x 8.75(h) x 0.87(d)

About the Author

Lori B. Tucker, M.D., is a clinical associate professor in the Division of Rheumatology at the British Columbia Children's Hospital, Vancouver. Bethany A. DeNardo, M.P.H., P.T., is a physical therapist and former research associate for the Division of Pediatric Rheumatology at New England Medical Center. Judith A. Stebulis, M.A., is the parent of a child with juvenile arthritis and a recent medical school graduate. Jane G. Schaller, M.D., is the David and Leona Karp Professor of Pediatrics and head of the Division of Pediatric Rheumatology at the Floating Hospital for Children/New England Medical Center Hospital.

Table of Contents




Chapter 1

The Rheumatic Diseases of Childhood

About the Rheumatic Diseases

Juvenile Rheumatoid Arthritis

Juvenile Spondyloarthropathy Syndromes

Systemic Lupus Erythematosus




Laboratory Tests and Procedures

Chapter 2

Options for Medical Care: Health

Care Professionals and Health Care Settings

Choosing a Specialty Care Physician

The Specialty Care Center

The Interdisciplinary Health Care Team

The Clinic Guide

Chapter 3

The Range of Available Medications

Nonsteroidal Anti-inflammatory Drugs

Slow-Acting Antirheumatic Drugs

Immunosuppressive Drugs


Other Drugs

Getting Your Child to Take Medications without a Fight

Chapter 4

Physical and Occupational Therapy

Therapeutic Exercises

Splints, Crutches, and Other Devices

Sample Range-of-Motion Exercise Program

Chapter 5

Other Treatments for Children with

Rheumatic Disease

Managing Arthritis Pain

Caring for Your Child's Eyes


Hospitalization and Surgery

Unproven Remedies

Chapter 6

Monitoring Your Child's Progress

Directory of Health Care Providers

The Medical History

Recording Office Visits

Schedule of Treatments

Growth Chart


Chapter 7

Creating a Positive School Environment

Reducing the Impact of Rheumatic Illness in School

Federal and State Laws Governing Education and Civil Rights

Strategies for Effective Communication

Checklist for Students with JRA

Checklist of Items for Consideration in

Developing Individualized Education Plans (IEP) for Students with Physical Disabilities or Special Health Needs

Sample Letters

Telephone Log for School-Related Issues

Chapter 8

Financing Health Care

Health Insurance: Terms and Common Practices

Private Health Insurance Plans

Public Health Care Financing

Other Funding Sources

Resolving Disputed Claims

Chapter 9

The Child with Rheumatic Disease

What Your Child May Be Feeling

Growing Up with a Rheumatic Disease

Helping Your Child with Daily Life

Sports and Other Recreational Activities

In Their Own Words

Chapter 10

Rheumatic Disease and the Family

What You May Be Feeling

Brothers and Sisters

Your Spouse and Your Marriage

Special Concerns of Working Families

Using a Baby-sitter

Appendix 1 Sample Clinic Guide

Appendix 2 Other Sources of Help: Agencies and Organizations




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