Every parent wants their kids to be ahead of the game and have the advantages perhaps they didn’t have. But it’s all all-too-common story for parents and caregivers—especially those caring for kids with special needs or disabilities who don’t carry the more common labels (autism, ADHD)—that they are often left navigating the system and fighting to get the support needed. Navigating a complex system of diagnosis and treatment for children with special needs—especially children with less obvious needs—can be a lonely and frustrating endeavor. Your Child’s Voice will empower parents and caregivers of children with mild to moderate disabilities be the voice for their children, and advocate for them the best they can. Drawing on the author’s experience as a patient advocate and her ongoing journey getting support for her own son, this book includes personal stories about fighting to ensure files didn’t get lost in the system; the challenges of getting support in school; getting tests in a timely manner; and also includes exercises and checklists to help caregivers prepare for appointments and ask for help.
About the Author
Cynthia Lockrey has worked as a newspaper editor, magazine writer, corporate trainer, conference speaker, patient advocate, university instructor, community engagement adviser, and public relations expert with more than 20 years of experience. Through her work on the perinatal health committee at London Health Sciences Centre in Ontario, she was able to provide a patient’s perspective on maternal health, labor and delivery, and neonatal intensive care.