Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma

Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma

Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma

Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma

Hardcover

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Overview

Addresses the needs of parents of children who experience medical trauma – negative experiences in the healthcare system that may cause resistance among children to even going for routine care

Afraid of the Doctor is the first book written for parents with the primary goal of equipping them with the knowledge and skills to support their children through medical challenges on a day-to-day basis, and specifically with medical trauma—experiences in healthcare that can profoundly affect a child’s response and willingness to even go to the doctor. The challenge of medical trauma is often under-recognized and overlooked in the healthcare system, leaving parents to learn about it and manage it on their own. When parents understand medical trauma and learn strategies to reduce and even prevent it, they become empowered to better care for their child’s emotional and physical health.

Afraid of the Doctor integrates character stories throughout the book to illustrate the signs and symptoms of medical trauma and the roles parents and caregivers play in supporting their child through medical challenges. Readers will find twelve distinct strategies they can implement to help prevent and reduce medical trauma and otherwise support their child while facing medical interventions or a chronic condition. These strategies are illustrated through anecdotes, step-by-step guides, examples, and research evidence. With compassion and empathy, Meghan Marsac and Melissa Hogan offer parents the tools they need to choose the strategies that will work best for their children and their families, and how to modify them to address their unique situations.

In addition to addressing the traumas that children may face, the authors carefully discuss the types of trauma that a parent may experience as they care for a child with a medical condition, equipping them with tools to recognize and address their own trauma experience related to their child’s medical care.


Product Details

ISBN-13: 9781538149188
Publisher: Rowman & Littlefield Publishers, Inc.
Publication date: 07/16/2021
Pages: 264
Product dimensions: 5.80(w) x 8.60(h) x 1.00(d)

About the Author

Meghan L. Marsac, PhD, is a pediatric psychologist with expertise in helping children and families adjust to and deal with medical conditions. She is currently the Acting Chief of Psychology in the Department of Pediatrics at the University of Kentucky. She has published her NIH and foundation-funded research on medical trauma in lead medical and psychology journals. She has presented at national conferences for the American Academy of Pediatrics, the International Society of Traumatic Stress Studies, the Society of Pediatric Psychology and the Academy of Pediatric Physical Therapy, among others. She has ongoing international collaborations on the impact of COVID-19 on preschool children and their caregivers. She also leads medical trauma training for healthcare professionals through the national Center for Pediatric Traumatic Stress. In addition, she is the lead creator of the Cellie Coping Kit for children with medical conditions. She lives with her family in Lexington, Kentucky.

Melissa J. Hogan, JD, is a parent to a child with a rare, genetic disease who has faced a countless number of surgeries, specialists, and as a result, medical trauma. In addition to caregiving and advocating for her son’s needs, she is a practicing attorney, specializing in the area of abuse and trauma. She also founded the leading research and advocacy foundation in Hunter syndrome, Project Alive, which has raised millions of dollars for research. She lives with her son and his service dog outside Nashville, Tennessee, where she enjoys hiking, hot yoga, and writing.

Table of Contents

Acknowledgements

How to Use This Book

Preface

PART 1 THE REALITY OF MEDICAL TRAUMA

Chapter 1: Where Love Meets Medicine

Chapter 2: Parenting Through Medical Challenges

Chapter 3: The Medical Journey

PART 2 MEDICAL TRAUMA 101

Chapter 4: What Exactly Is Medical Trauma?

Chapter 5: How Do I Know if My Child has Medical Trauma?

Chapter 6: What Isn’t Medical Trauma?

Chapter 7: Medical Sprints Versus Medical Marathons

Chapter 8: Your Family and the Health Care System

PART 3 WHO ARE YOU?

Chapter 9: You Are a Person, Then a Parent

Chapter 10: You Are a Caregiver

Chapter 11: You Are the Leader of Your Child’s Medical Team

Chapter 12: You Are a C.O.A.C.H.

PART 4 STRATEGIES FOR PREVENTING AND REDUCING MEDICAL TRAUMA

Chapter 13: General Strategies: Parenting Children with Medical Conditions

Chapter 14: Planning Ahead: “Planning Makes... Better”

Chapter 15: Communication: “Let’s Talk About It”

Chapter 16: Consistency: “Knowing What to Expect”

Chapter 17: Behavior Charts: “Not Bribing, Rewarding”

Chapter 18: Additional Visual Supports: “Creative Preparation”

Chapter 19: Desensitization: “Let’s Get Used to It”

Chapter 20: Medical Play: “Children Learn Through Play”

Chapter 21: Adapting the Environment: “Make Yourself at Home”

Chapter 22: Timing: “6 am or 6 pm?”

Chapter 23: Distraction: “Squirrel!”

Chapter 24: Reinforcement: “Walk the Line”

Chapter 25: Body Control: “Mind-Body Connection”

Chapter 26: Switching Strategies: “If at First You Don’t Succeed, Try Again”

PART 5 SPECIAL POPULATIONS

Chapter 27: Children with Cognitive Impairment

Chapter 28: Children Who Are Nonverbal or Who Have Communication Needs

Chapter 29: Very Young Children

PART 6 CAN PARENTS DEVELOP MEDICAL TRAUMA TOO?

Chapter 30: Medical Trauma in Parents

Chapter 31: What’s “Wrong” With Me?

Chapter 32: How Can I Support Myself?

PART 7 WRAPPING UP

Chapter 33: Seeking More Help

Chapter 34: Epilogue

Additional Resources

Bibliography

Notes

Index

About the Authors

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