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Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma

Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma

Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma

Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma


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Addresses the needs of parents of children who experience medical trauma - negative experiences in the healthcare system that may cause resistance among children to even going for routine care Afraid of the Doctor is the first book written for parents with the primary goal of equipping them with the knowledge and skills to support their children through medical challenges on a day-to-day basis, and specifically with medical trauma-experiences in healthcare that can profoundly affect a child's response and willingness to even go to the doctor. The challenge of medical trauma is often under-recognized and overlooked in the healthcare system, leaving parents to learn about it and manage it on their own. When parents understand medical trauma and learn strategies to reduce and even prevent it, they become empowered to better care for their child's emotional and physical health. Afraid of the Doctor integrates character stories throughout the book to illustrate the signs and symptoms of medical trauma and the roles parents and caregivers play in supporting their child through medical challenges. Readers will find twelve distinct strategies they can implement to help prevent and reduce medical trauma and otherwise support their child while facing medical interventions or a chronic condition. These strategies are illustrated through anecdotes, step-by-step guides, examples, and research evidence. With compassion and empathy, Meghan Marsac and Melissa Hogan offer parents the tools they need to choose the strategies that will work best for their children and their families, and how to modify them to address their unique situations. In addition to addressing the traumas that children may face, the authors carefully discuss the types of trauma that a parent may experience as they care for a child with a medical condition, equipping them with tools to recognize and address their own trauma experience related to their child's medical care.

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Product Details

ISBN-13: 9781538149188
Publisher: Rowman & Littlefield Publishers, Inc.
Publication date: 07/16/2021
Pages: 264
Sales rank: 1,088,000
Product dimensions: 5.80(w) x 8.60(h) x 1.00(d)

About the Author

Melissa J. Hogan, JD, is a parent to a child with a rare, genetic disease who has faced a countless number of surgeries, specialists, and as a result, medical trauma. In addition to caregiving and advocating for her son’s needs, she is a consultant for clinical trials in rare and neurodegenerative disorders and has published in several medical journals. She also founded the leading research and advocacy foundation in Hunter syndrome, Project Alive, which has raised millions of dollars for research, and previously worked as a attorney in the healthcare field. She is a frequent speaker on health care and educational advocacy, rare diseases, and clinical trials. She lives with her three sons and a service dog outside Nashville, Tennessee. Meghan L. Marsac, PhD, is a pediatric psychologist with expertise in helping children and families adjust to and deal with medical conditions. She is currently a tenured, Associate Professor at the University of Kentucky. She has published her NIH and foundation-funded research on medical trauma in lead medical and psychology journals. She has presented at national conferences for the American Academy of Pediatrics, the International Society of Traumatic Stress Studies, the Society of Pediatric Psychology and the Academy of Pediatric Physical Therapy among others. She has ongoing international collaborations on the impact of COVID-19 on preschool children and their caregivers. She also leads medical trauma training for healthcare professionals through the national Center for Pediatric Traumatic Stress. In addition, she is the lead creator of the Cellie Coping Kit for children with medical conditions. She lives with her family in Lexington, Kentucky.

Table of Contents

Acknowledgements How to Use This Book Preface PART 1 THE REALITY OF MEDICAL TRAUMA Chapter 1: Where Love Meets Medicine Chapter 2: Parenting Through Medical Challenges Chapter 3: The Medical Journey PART 2 MEDICAL TRAUMA 101 Chapter 4: What Exactly Is Medical Trauma? Chapter 5: How Do I Know if My Child has Medical Trauma? Chapter 6: What Isn’t Medical Trauma? Chapter 7: Medical Sprints Versus Medical Marathons Chapter 8: Your Family and the Health Care System PART 3 WHO ARE YOU? Chapter 9: You Are a Person, Then a Parent Chapter 10: You Are a Caregiver Chapter 11: You Are the Leader of Your Child’s Medical Team Chapter 12: You Are a C.O.A.C.H. PART 4 STRATEGIES FOR PREVENTING AND REDUCING MEDICAL TRAUMA Chapter 13: General Strategies: Parenting Children with Medical Conditions Chapter 14: Planning Ahead: “Planning Makes... Better” Chapter 15: Communication: “Let’s Talk About It” Chapter 16: Consistency: “Knowing What to Expect” Chapter 17: Behavior Charts: “Not Bribing, Rewarding” Chapter 18: Additional Visual Supports: “Creative Preparation” Chapter 19: Desensitization: “Let’s Get Used to It” Chapter 20: Medical Play: “Children Learn Through Play” Chapter 21: Adapting the Environment: “Make Yourself at Home” Chapter 22: Timing: “6 am or 6 pm?” Chapter 23: Distraction: “Squirrel!” Chapter 24: Reinforcement: “Walk the Line” Chapter 25: Body Control: “Mind-Body Connection” Chapter 26: Switching Strategies: “If at First You Don’t Succeed, Try Again” PART 5 SPECIAL POPULATIONS Chapter 27: Children with Cognitive Impairment Chapter 28: Children Who Are Nonverbal or Who Have Communication Needs Chapter 29: Very Young Children PART 6 CAN PARENTS DEVELOP MEDICAL TRAUMA TOO? Chapter 30: Medical Trauma in Parents Chapter 31: What’s “Wrong” With Me? Chapter 32: How Can I Support Myself? PART 7 WRAPPING UP Chapter 33: Seeking More Help Chapter 34: Epilogue Additional Resources Bibliography Notes Index About the Authors

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