Autism Parent Handbook: Beginning with the End Goal in Mind

Autism Parent Handbook: Beginning with the End Goal in Mind


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Once a diagnosis of autism is made, questions arise. Why is this happening? What can I do? How will I cope? What will the future bring? We need a roadmap, a handbook to refer to when everything seems overwhelming. The priorities are to begin the healing process and to start treatment. The way to ensure success is to begin with the end goals in mind. Remarkably, things fall into place once a vision of the future is planned-a productive, upstanding, and most important, happy adult! The Autism Parent Handbook walks parents through the steps of early intervention by demonstrating ways to achieve the most optimal outcomes. We address the following: Happy adults have a positive outlook, feel valued when their passions are honored and when interest is shown in the things they love. We can help children foster those attitudes in early childhood. Productive adults regulate their emotions, manage their time, cope with change, make wise choices and accept responsibility for their actions. We illustrate how to develop these skills from the outset. Adults perform skills independently and complete tasks necessary for work and home life. We should expect children to do the same, and we outline ways how to do that. Wherever a parent is on their parenting journey, and whatever age the child is, now is the time to look forward and plant seeds for the future, beginning with the end in mind. Our shared goal is to honor the glory that is in all of us, and to enhance each child's journey towards their fullest potential. If you are now confused and overwhelmed, you need a compassionate and optimistic guide for the early years and beyond. Where to start? Right here.

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Product Details

ISBN-13: 9781949177664
Publisher: Future Horizons, Inc.
Publication date: 04/06/2021
Pages: 150
Sales rank: 644,563
Product dimensions: 6.00(w) x 9.00(h) x (d)

About the Author

Dr. Raun D. Melmed is a developmental and behavioral pediatrician and Director of the Melmed Center in Scottsdale, Arizona. He is also co-founder and Medical Director of the Southwest Autism Research and Resource Center, and Adjunct Senior Researcher at the Translational Genomics Institute in Phoenix. Dr. Melmed has established physician-training programs for the early identification of infants and toddlers with autism and other developmental and behavioral concerns. He is currently investigating the genetics and phenotypes of autism, as well as the use of novel therapeutic agents in the treatment of ADHD and autism. He is author of Autism and the Extended Family: A Guide for Those Outside the Immediate Family Who Know, Love Someone with Autism and Autism Early Intervention: Fast Facts: A Guide That Explains the Evaluations, Diagnoses, and Treatments for Children with Autism Spectrum Disorders.

Dr. Wendela Whitcomb Marsh, MA, BCBA, RSD, has been a special education teacher, school psychologist, autism specialist, speaker, writer, counselor, university instructor, and board-certified behavior analyst. She is the mother of two awesome individuals with autism, and was married for twenty-seven years to an amazing man with Asperger’s syndrome. People on the spectrum, and the dedicated teachers who work with them, are among her favorite people in the world. Dr. Marsh lives in Salem, Oregon with her three children.

Temple Grandin earned her Ph.D. in animal science from the University of Illinois and is currently a Professor at Colorado State University. Dr. Grandin is one of the most respected individuals with high-functioning autism in the world. She presents at conferences nationwide, helping thousands of parents and professionals understand how to help individuals with autism, Asperger’s syndrome, and PDD. She is the author of Emergence: Labeled Autistic, Thinking in Pictures, Animals in Translation (which spent many weeks on The New York Times Best-Seller List), The Autistic Brain, and The Loving Push, co-written with Debra Moore, Ph.D. One of the most celebrated -- and effective -- animal advocates on the planet, Dr. Grandin revolutionized animal movement systems and spearheaded reform of the quality of life for the world's agricultural animals.

Table of Contents

Foreword - Temple Grandin, Author of the Way I See It vii

Preface: Begin with the End in Mind (What of the Future?) ix

Part I First Steps

They Say It's Autism … What Does That-Mean? 1

Chapter 1 Hearing the News 3

Chapter 2 Responding to the News 15

Chapter 3 Looking Forward (Oh, for a crystal ball.) 23

Part II Home Base

Create an Environment that Works for Everyone 29

Chapter 4 Home, Safe Home 31

Chapter 5 Home, Sweet School 37

Chapter 6 Home, Sweet Home 45

Part III Healthy Habits Start at Home

The Right Path from Day One 49

Chapter 7 Nutrition Needs 51

Chapter 8 Exercise Needs 59

Chapter 9 Sleep Needs 63

Chapter 10 Stimulation Needs 67

Chapter 11 The Well-Child Checkup 75

Part IV Learn to Love the Parade

Get the Most out of Your Team 79

Chapter 12 Who Are All These People? 81

Chapter 13 What Should My Child Be Learning? 91

Chapter 14 What Shouldn't My Child Be Learning? 97

Part V Out and About

Venturing Forth into the Community 103

Chapter 15 The Unwritten Rules of the Park and Playground 105

Chapter 16 How to Go to the Grocery Store without Going Crazy 111

Chapter 17 Navigating Barber Shops, Dentists' Offices, and the Rest of the World 117

Chapter 18 Safety First … But What if They Get Lost Anyway? Prepare First

Responders to Find Your Child 123

Part VI Emotional Roller Coaster

When There is No Emoji to Express How They Feel 129

Chapter 19 Negative Feelings: Anxiety, Anger, Sadness 131

Chapter 20 Positive Feelings: Joy, Delight, Ecstasy 135

Chapter 21 Strategies for Dealing with Overstimulation 139

Part VII School Days

Navigating the IEP Process 143

Chapter 22 What is an IEP, Anyway? 145

Chapter 23 Transition: Vocational 151

Part VIII Transitions

Look the Future in the Eye Without Blinking. 159

Chapter 24 Pre-Adolescence and the Dreaded Teen Years 161

Chapter 25 Transition Planning: Educational 167

Chapter 26 Transition Planning: Financial 173

Chapter 27 Transition: Recreation 181

Part IX

Parents & Children in the Time of COVID 187

Postscript: Congratulations! You are on the Right Track & Moving

Forward 193

Resources 197

About The Authors 207

What People are Saying About This

From the Publisher

In the Autism Parent Handbook, Dr. Melmed creates a framework for families to understand, appreciate, and advocate for their child. The book is a comprehensive and easily readable guide for families, including tips on sleep, picky eating, working with schools and Early Intervention, and navigating all the therapeutic interventions available. The author takes on the difficult emotions felt by family members from the child's diagnosis of Autism through adult transition, providing practical strategies for addressing the anxiety and fatigue that comes with a child's chronic health condition. This is the kind of guide that families will use throughout their child's life. The final message, "Congratulations: you are on the right track and moving forward" says it all!

Colleen Kraft, MD, MBA, FAAP

2018 President, American Academy of Pediatrics

I have worked with many families as they begin to learn of their child’s diagnosis of autism. For some it brings a sigh of relief for the uncertainty of not knowing the causes of their child’s behavior or delays can be painful. A diagnosis can put them on a course to seek out appropriate support for themselves and their child. For others, receiving a diagnosis can be overwhelming. I have seen fear and anxiety, literally stop them in their tracks. No matter which end of the “parenting spectrum” you lean, The Autism Parent Handbook is a thorough and compassionate road map.

Think of this handbook as a gentle hand to guide you forward and a warm hand on your back for that added support when you feel tired, alone, confused, and stuck. Melmed and Marsh have your back. The in-depth understanding of what autism actually is and is not, along with the practical strategies provided, makes this and essential handbook.

The authors provide detailed strategies to help you to understand your child’s unique needs, navigate a confusing social world, manage their feelings and be an advocate for them when it is time to partner with school. Unlike other resources you may find for parenting your child with autism, the authors walk you through the teen years and into planning their adult life. They meet you along every step of the parenting journey. So many anecdotes and strategies within the book are helpful for parenting every child, not just one with autism. The beauty of parenting, in general, is to help our children feel safe, loved, and valued while nurturing their strengths, interests, and independence. This book sets you on a course to do just that.

Allison Morgan MA, OTR, E-RYT

CEO Zensational Kids

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