Beauty without the Breast
Felicia Knaul, an economist who has lived and worked for two decades in Latin America on health and social development, documents the personal and professional sides of her breast cancer experience. Beauty without the Breast contrasts her difficult but inspiring journey with that of the majority of women throughout the world who face not only the disease but stigma, discrimination, and lack of access to health care. This wrenching contrast is the cancer divide—an equity imperative in global health.

Knaul exposes barriers affecting women in low and middle-income countries and highlights the role of men, family, and community in responding to the challenge of breast cancer. She shares striking data about breast cancer, a leading killer of young women in developing countries, and narrates the process of applying this evidence and launching Tómatelo a Pecho (also the book title in Spanish)—a Mexico-based program promoting awareness and access to health care. The book concludes with letters from Dr. Julio Frenk, her husband and former Minister of Health of Mexico, written while they shared the trauma of diagnosis and treatment. With force and lucidity, the book narrates the journey of patient and family as they courageously navigate disease and survivorship.

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Beauty without the Breast
Felicia Knaul, an economist who has lived and worked for two decades in Latin America on health and social development, documents the personal and professional sides of her breast cancer experience. Beauty without the Breast contrasts her difficult but inspiring journey with that of the majority of women throughout the world who face not only the disease but stigma, discrimination, and lack of access to health care. This wrenching contrast is the cancer divide—an equity imperative in global health.

Knaul exposes barriers affecting women in low and middle-income countries and highlights the role of men, family, and community in responding to the challenge of breast cancer. She shares striking data about breast cancer, a leading killer of young women in developing countries, and narrates the process of applying this evidence and launching Tómatelo a Pecho (also the book title in Spanish)—a Mexico-based program promoting awareness and access to health care. The book concludes with letters from Dr. Julio Frenk, her husband and former Minister of Health of Mexico, written while they shared the trauma of diagnosis and treatment. With force and lucidity, the book narrates the journey of patient and family as they courageously navigate disease and survivorship.

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Overview

Felicia Knaul, an economist who has lived and worked for two decades in Latin America on health and social development, documents the personal and professional sides of her breast cancer experience. Beauty without the Breast contrasts her difficult but inspiring journey with that of the majority of women throughout the world who face not only the disease but stigma, discrimination, and lack of access to health care. This wrenching contrast is the cancer divide—an equity imperative in global health.

Knaul exposes barriers affecting women in low and middle-income countries and highlights the role of men, family, and community in responding to the challenge of breast cancer. She shares striking data about breast cancer, a leading killer of young women in developing countries, and narrates the process of applying this evidence and launching Tómatelo a Pecho (also the book title in Spanish)—a Mexico-based program promoting awareness and access to health care. The book concludes with letters from Dr. Julio Frenk, her husband and former Minister of Health of Mexico, written while they shared the trauma of diagnosis and treatment. With force and lucidity, the book narrates the journey of patient and family as they courageously navigate disease and survivorship.


Product Details

ISBN-13: 9780982914410
Publisher: Harvard University Press
Publication date: 01/14/2013
Series: Women, Health, and Equity , #1
Pages: 410
Product dimensions: 5.90(w) x 9.00(h) x 1.00(d)

About the Author

Felicia Marie Knaul, Ph.D., is Director of the Harvard Global Equity Initiative, Associate Professor at Harvard Medical School, and Senior Economist at the Mexican Health Foundation. She is also the founder of Cáncer de mama: Tómatelo a Pecho.

Paul Farmer, M.D., Ph.D., is Kolokotrones University Professor and Chair of the Department of Global Health and Social Medicine at Harvard Medical School and Editor-in-Chief of Health and Human Rights: An International Journal.

Julie R. Gralow, M.D., is Professor of Medicine at the University of Washington School of Medicine and Director of Breast Medical Oncology at the Seattle Cancer Care Alliance.

Julio Frenk is President of the University of Miami. He is also the former Minister of Health of Mexico.

Table of Contents

Forewords XIII

Dr. Julie R. Gralow XV

Dr. Paul Farmer XVII

Introduction XXI

Part 1 Doubting

Chapter 1 Could it be...? 3

Mammogram at 40 3

The mammogram and the precipice 6

What is a BI-RADS? 12

I am not overreacting 16

Tell me I am overreacting! 21

Next steps; first decision 24

Chapter 2 Pause to enjoy the world of the healthy 27

The wait 27

Disneyland... To go or not to go 32

Though it sounds childish: The magic of Disney 38

Part 2 Knowing

Chapter 3 It is 43

The biopsy: Now I know 43

Lunch in Tlalpan 49

One afternoon to get my life in order 53

Hannah's question 57

Chapter 4 Meeting my altered-self 61

Becoming a patient 61

The first surgery 67

The first night 70

My mother 75

Next steps amid tribulations 78

Celebrate life as if you were healthy 84

Decisions, round one 88

Part 3 Accepting

Chapter 5 Tómatelo a Pecho 95

The birth of an idea 95

Juanita 106

Chapter 6 A tempest of decisions 109

Facing my fear 109

The friendly tumor board 111

I am cancerous 116

My first, second opinion 120

Alone, for the first time 123

Chapter 7 In search of answers 129

The trip to Seattle 129

A cancer hospital with a view of the bay 132

Some answers and more questions 134

Navigating the labyrinth 140

Chapter 8 Time with friends 143

Decisions 143

Cushions 145

Moving forward 147

Chapter 9 To mastectomize or not to mastectomize? 151

Confusion 151

My first MRI 154

Results and progress 157

A gift to myself: painting with hospitalized children 160

The second trip to Seattle 166

Radiation or mastectomy 168

I finally cry 170

Part 4 Embarking

Chapter 10 A farewell to health 175

Bridging the worlds of the healthy and the sick 175

Sky, sand, sea, and moon 176

The rock of singing seals 178

Mastectomy is right for me 179

Inner peace 183

Chapter 11 The mastectomy 187

The surgery will be in Mexico 187

Presenting Tómatelo a Pecho 188

The mastectomy 190

I can do this 194

Chapter 12 Facing Chemotherapy 199

Concentration camps and chemotherapy 199

Becoming a patient 202

With Maha's help 208

Chapter 13 Preparing for chemotherapy 211

The wig business 211

Looking in the mirror 217

Breast 'inflation' 219

Acapulco 220

Chapter 14 The first dose: FEC #1 225

The haircut 225

The day before 228

The day finally arrives 233

Chemotherapy begins 238

Unveiling the wigs 243

Part 5 Learning

Chapter 15 I lose my hair and rediscover myself 251

The loss begins 251

I decide to live life 253

Helping Maha to assimilate loss 257

Hair just keeps falling 259

With Hannah, I manage to end the endless hair loss 261

I develop a new identity 263

Chapter 16 Life with chemotherapy 269

Coping strategies 269

Healing myself through exercise 272

Taking heart: opportunities to enjoy life 274

Finding inspiration 275

Chapter 17 Expectations mold perceptions 283

My last dose of chemotherapy 283

Venturing back 284

Sepsis 287

Part 6 Surviving, living, and giving

Chapter 18 Entering survivorship 297

Why survivorship 297

Life post-chemotherapy 302

Chapter 19 Living survivorship 311

Some surprising improvements 314

Breast reconstruction ...an ongoing dilemma 320

Sexual non-health 328

Ongoing challenges 334

Living with the fear of recurrence 340

Chapter 20 The many forms of prayer 345

I was blessed with many prayers 345

Giving back is a way of healing 349

A chapter of beginnings 355

Moments mean so much more 355

Feeling health 355

To loving life 358

Epilogue: The partner's perspective: four love letters Julio Frenk 361

Bibliography & Websites

Bibliography 373

Websites 381

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