Cystic Fibrosis: The Ultimate Teen Guide

by Melanie Ann Apel

Overview

The day-to-day dealings of life as a cystic fibrosis patient are described through a series of flashbacks to a time when the author was an 18-year-old volunteer at cystic fibrosis overnight camp. From diagnosis to death, this book leaves no aspect of CF untold as it includes a description of the illness; a comprehensive discussion of who gets the disease and why; an explanation of the procedures involved in diagnosing the disease; coverage of the arduous daily therapies involved in maintaining the life of a person with cystic fibrosis; and, now that people who have CF are living longer because of available therapies, the new challenges of dealing with CF-related diabetes as well as making decisions regarding lung transplants are all covered.

Product Details

ISBN-13:	9780810848214
Publisher:	Rowman & Littlefield Publishers, Inc.
Publication date:	04/17/2006
Series:	It Happened to Me Series , #14
Pages:	280
Product dimensions:	7.37(w) x 10.35(h) x 0.92(d)
Age Range:	12 - 17 Years

About the Author

Melanie Ann Apel began writing about CF in 1995 and has since published more than 40 non-fiction books for children and young adults. She worked as a pediatric respiratory therapist at Children's Memorial Hospital in Chicago for six years.

Table of Contents

Part 1 Medical Disclaimer Part 2 Acknowledgments Part 3 Introduction Chapter 4 1. Cystic Fibrosis: The Facts Chapter 5 2. A Genetic Disorder Chapter 6 3. A Diagnosis Chapter 7 4. A Daily Challenge Chapter 8 5. Good Days and Bad Days Chapter 9 6. Living and Laughing Chapter 10 7. Other Complications Chapter 11 8. A Second Chance: The Lung Transplant Chapter 12 9. In the End Chapter 13 10. Just over the Horizon Part 14 Afterword Part 15 The Fabulous List of CF Resources Part 16 Glossary Part 17 Glossary of CF Meds Part 18 Bibliography Part 19 Index Part 20 About the Author

Editorial Reviews

...this great resource gives extensive medical and technical information as well as profound insight in the disease's human impact....this entry offers excellent research information for patients, families, and students. Its additional pages, however, provide even greater depth. Gripping personal accounts will pull in readers, teenage and adult, who are not familiar with the disease.

VOYA

A solid introduction to the disease...A plethora of stories accompanies each chapter....Young adults with the disease will feel a part of a worldwide community after reading this book. There is optimism as well as sadness here, but most of all there is the resonance of CF sufferers' voices telling others, 'You are not alone.'--School Library Journal, 10/1/2006

...this great resource gives extensive medical and technical information as well as profound insight in the disease's human impact....this entry offers excellent research information for patients, families, and students. Its additional pages, however, provide even greater depth. Gripping personal accounts will pull in readers, teenage and adult, who are not familiar with the disease.--VOYA

From the Publisher

Gr 9 Up-A solid introduction to the disease-the facts, the challenges, the complications, and the outlook for the future. A plethora of personal stories accompanies each chapter. The book opens with the author's account of going to CF camp for several years, the friends she made there, and the ones she lost. Each chapter has a small black-and-white photograph of her fellow campers. An anecdote about something that happened at camp follows the picture; it is italicized and in small print, making it difficult to read. Interspersed throughout the text are geometrical boxes with additional facts. Famous people who have the disease or who have a child, parent, or friend with it are mentioned. Large caption boxes are filled with quotes or poignant poems written by CF patients, and eye-opening statistics appear throughout. Notes follow each chapter. The afterword tells of the individuals mentioned in the book who accomplished something they never expected to live long enough to do, while others tell of the deaths of some of the teens introduced. Young adults with the disease will feel a part of a worldwide community after reading this book. There is optimism as well as sadness here, but most of all there is the resonance of CF sufferers' voices telling others, "You are not alone."-Marilyn Fairbanks, Azure IRC, Brockton High School, MA Copyright 2006 Reed Business Information.

School Library Journal