Non-Epileptic Seizures in Our Experience: Accounts of Healthcare Professionals
376
Non-Epileptic Seizures in Our Experience: Accounts of Healthcare Professionals
376Paperback
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Overview
Not least because the changes in the brain that underpin PNES cannot be visualised easily with clinical tests (such as the EEG), there are many uncertainties and controversies surrounding the condition. Patients often provoke a mixture of emotions in healthcare professionals. In the authors' previous book, In Our Words: Personal Accounts of Living with Non-Epileptic Seizures, over 100 individuals with PNES and their family wrote about their experiences with the condition. While some had positive care experiences, many were left feeling confused, angry, and abandoned by the clinicians they had encountered.
Non-Epileptic Seizures in Our Experience: Accounts of Health Care Professionals complements the authors' previous book by presenting the perspectives of over 90 members of different healthcare professions from around the world. The anonymous publication format has enabled many not only to share success stories but also to be open about difficulties and failures. This volume will be an invaluable resource for both highly experienced professionals as well as relative novice and those experiencing PNES. This book will challenge negative attitudes surrounding the condition, improve understanding between healthcare professionals and patients, and - ultimately - advance the quality of care provided for those with PNES.
Product Details
| ISBN-13: | 9780190927752 |
|---|---|
| Publisher: | Oxford University Press |
| Publication date: | 05/01/2020 |
| Pages: | 376 |
| Product dimensions: | 9.10(w) x 6.10(h) x 1.00(d) |
About the Author
Gregg H. Rawlings is currently a Trainee Clinical Psychologist at The University of Sheffield, UK. He has completed a BSc and MSc in Psychology, and more recently, a PhD in Clinical Neuroscience. His doctoral thesis involved exploring the subjective experience of living with epileptic or nonepileptic seizures. He was lead author of the first systematic review investigating healthcare professional's perceptions of PNES involving nearly 4000 professionals worldwide.
Steven C. Schachter is Chief Academic Officer for the Consortia for Improving Medicine with Innovation & Technology (CIMIT) and a Professor of Neurology at Harvard Medical School. He is Past President of the American Epilepsy Society and serves on the Epilepsy Foundation of America Board of Directors. Dr. Schachter has published over 250 articles and chapters and edited or written 35 books. He is a member of the Administrative Committee of the IEEE Engineering in Medicine and Biology Society (EMBS), the Clinical Editor for Journal of Translational Engineering in Health and Medicine and founding editor and editor-in-chief of the medical journals Epilepsy & Behavior and Epilepsy & Behavior Case Reports.
Table of Contents
Foreword Asti Hustvedt xi
Foreword Peter Wolf xvii
Foreword Gretha Cronje xix
Preface xxv
Acknowledgments xxix
List of Common Abbreviations xxxiii
Cover Artwork xxxv
Professional Accounts
1 Neurologist, 25 years' experience, UK 3
2 Neuropsychologist, 5 years' experience, Germany 8
3 Psychologist, 30 years' experience, UK 13
4 Epilepsy Specialist Nurse, 30 years' experience, UK 15
5 Epilepsy Specialist Nurse, 7 months' experience, UK 16
6 Psychologist, 16 years' experience, USA 19
7 Epilepsy Nurse, 21 years' experience, UK 22
8 Psychiatrist, 45 years' experience, USA 24
9 Clinical Hypnotherapist, 1 year's experience, UK 26
10 Psychotherapist, 4 years' experience, UK 28
11 Clinical Nurse Specialist in Epilepsy, over 2 years' experience, UK 31
12 Neuropsychologist, 13 years' experience, USA 33
13 Nurse, 1 year's experience, UK 36
14 Psychotherapist, 7 years' experience, UK 38
15 Neurologist, 10 years' experience, UK 40
16 Psychotherapist, 3 years' experience, UK 42
17 Neurologist, 5 years' experience, Azerbaijan; Neurologist, 30 years' experience, Turkey 45
18 Neuropsychiatrist, 25 years' experience, USA 48
19 Consultant Nurse, 18 years' experience, UK 51
20 Neurologist, 8 years' experience, USA 54
21 Neurologist, Psychotherapist, Yoga Teacher, 5 years' experience, Germany 56
22 Neuropsychologist, Psychologist, 3 years' experience, USA 59
23 Neurologist, 11 years' experience, USA 63
24 Neurologist, 30 years' experience, New Zealand 68
25 Three Psychiatrists, 33, 18, and 8 years' experience, India 70
26 Social Worker and Researcher, USA 77
27 Neurologist, 27 years' experience, USA 80
28 Psychiatrist, 12 years' experience, USA 82
29 Neurologist, 20 years' experience, USA 84
30 Psychiatrist, 17 years' experience, Australia 85
31 Neurologist, 29 years' experience, USA 86
32 Clinical Psychologist, 3 years' experience, UK 89
33 Junior Doctor (Core Medical Training), 3 years' experience, UK 91
34 Neurologist, 15 years' experience, UK 94
35 Clinical Psychologist, 2 years' experience, UK 97
36 Neurologist, 22 years' experience, Germany 98
37 Psychiatrist, Psychotherapist, 25 years' experience, Canada 101
38 Clinical Psychologist, 10 years' experience, Hong Kong 104
39 Neurologist, 30+ years' experience, Canada, Germany, Jamaica 108
40 Psychiatric Consultation Liaison Clinical Nurse Specialist, 26 years' experience, USA 112
41 Assistant Psychologist and Trainee Clinical Psychologist, 1 year's experience, UK 116
42 Psychotherapist/Dramatherapist, 10 years' experience, Greece 118
43 Psychiatrist, 6 years' experience, Australia 121
44 Psychologist, 2 years' experience, USA; Psychologist, 5 years' experience, USA 122
45 Resident in Neurology, 4 years' experience, Italy 126
46 Neurologist, 6 years' experience, China; Neurosurgeon, 10 years' experience, China 130
47 Neurologist (20+ years' experience) and Junior Doctor, Luxembourg 133
48 Neurologist, Psychiatrist, 20 years' experience, USA 137
49 Neuropsychologist, 14 years' experience, France; Neuropsychology Intern, France 139
50 Psychological Therapist, 35 years' experience, Germany 141
51 Psychologist, 1 year's experience, Germany 145
52 Social Worker, Therapist for Systemic Therapy, 13 years' experience, Germany 147
53 Social and Environmental Pedagogue, 15+ years' experience, Germany 149
54 Nurse, 30+ years' experience, Germany 150
55 Nurse, 30+ years' experience, Germany 152
56 Epilepsy Nurse Specialist, 15 years' experience, UK 154
57 Neurologist, 20+ years' experience, France 158
58 Neurologist, 13 years' experience, Italy 160
59 Epilepsy Specialist Nurse, 10 years' experience, UK 162
60 Doctor, over 2 years' experience, UK 165
61 General Practitioner, 7 years' experience, UK 168
62 Neurologist, 23 years' experience, UK 171
63 Psychotherapist, 10+ years' experience, UK 175
64 Director of the Epilepsy Information Service-Psychiatric Social Worker, 45 years' experience, USA 177
65 Clinical Neuropsychologist, 30 years' experience, UK 179
66 Neuropsychologist, 20 years' experience, UK 183
67 Linguist, 5 years' experience, Italy 188
68 Neurologist, 10 years' experience, UK 193
69 Researcher and Trainee Clinical Psychologist, 4 years' experience, UK 195
70 Neurologist, 50+ years' experience, Germany 201
71 Neurologist, 13 years' experience, Australia 204
72 Psychologist, 32 years' experience, Puerto Rico 207
73 Psychologist, over 1 year's experience, UK 211
74 Clinical Psychologist, 3 years' experience, UK 215
75 Epileptologist, 7 years' experience, USA 219
76 Neurologist, 7 years' experience, India 223
77 Neurologist, 20 years' experience, India 225
78 Clinical Neuropsychologist, 20 years' experience, UK 229
79 Assistant Psychologist, 3 years' experience, UK 233
80 Neuropsychologist, 7 years' experience, UK 236
81 Clinical Psychologist in Neuropsychology, 9 years' experience, UK 241
82 Consultant Clinical Psychologist/Neuropsychologist and two Assistant Psychologists, combined experience 23 years, UK 244
83 Neurologist, 15 years' experience, UK 246
84 Nurse, 30 years' experience, Norway 247
85 Neurologist, 27 years' experience, South Africa 252
86 Neurologist, 30 years' experience, Italy 257
87 Clinical Psychologist, 4 years' experience, UK 260
88 Specialist Cognitive Behavioral Therapist in NEAD, 6 years' experience, UK 264
89 Neurologist, 26 years' experience, Turkey 269
90 Clinical Psychologist, 2 years' experience, USA 272
91 Clinical Research as a Neuroscientist, 4 years' experience, UK 275
92 Neurologist, 1 year's experience, USA 278
93 Therapist with PNES, USA 282
94 Neurologist and Psychoanalyst, 40 years' experience, Germany 287
95 Psychologist, 9 years' experience, UK 294
96 Neurologist, 7 years' experience, Kenya 300
Useful Resources 305
Index 307