Still Phyllis: A Caregiver's Memoir of Dementia and Creutzfeldt-Jakob Disease

Still Phyllis: A Caregiver's Memoir of Dementia and Creutzfeldt-Jakob Disease

by Donald Friedman
Still Phyllis: A Caregiver's Memoir of Dementia and Creutzfeldt-Jakob Disease

Still Phyllis: A Caregiver's Memoir of Dementia and Creutzfeldt-Jakob Disease

by Donald Friedman

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Overview

Phyllis was a vital, single woman, a photographer and writer, who was enjoying life in the city when she was suddenly stricken by Creutzfeldt-Jakob Disease (CJD), a disease rarer than a lightning strike that spreads, incredibly, via a non-living molecule called a prion. Terrified to realize she couldn't perform her duties at work, Phyllis very soon couldn't even find her way to her desk or to her apartment from the corner store. Informed of his sister's diagnosis with this dementing and always fatal illness, her estranged brother, her only living relative, brought her home (against the advice of her doctors) to care for her with his wife.

The profoundly affecting memoir illuminates how closeness can deepen when words are lost—an inspiring truth to anyone with a friend or family member with dementia.


Product Details

ISBN-13: 9781476694344
Publisher: McFarland & Company, Inc., Publishers
Publication date: 06/19/2024
Pages: 205
Sales rank: 712,818
Product dimensions: 6.00(w) x 9.00(h) x 0.42(d)
Age Range: 18 Years

About the Author

Donald Friedman is the author of several novels, The Writer’s Brush: Paintings, Drawings, and Sculpture by Writers, and a regular contributor to Interfaces, a French/English scholarly journal devoted to the relationship between text and image. His blogs, essays, short stories, on-camera interviews with famous writer-artists and art gallery can be found at DonaldFriedman.com. He divides his time between Rhinebeck, New York, and Sarasota, Florida.

Table of Contents

Table of Contents

Acknowledgments
Preface
 1. Dancing in the Street
 2. The Breakdown
 3. The Psychiatric Referral
 4. CJD
 5. I Bring Her Home
 6. The Diagnosis
 7. Cleaning Her Apartment
 8. August 20, 1998: Back in the Neighborhood
 9. Cannibals and Contagion, Love and Support
10. Compassion Manifest
11. Be Frightened
12. A Surprising Joke
13. The Days Were Lovely
14. Canyon Ranch and a Phyllis Vision
15. Crying Because I Needed To
16. Conversation with Phyllis
17. The Witches Gather
18. Taking Notes and Learning Nothing
19. How Long Do We Give Them?
20. 24/7 with Phyllis
21. Going to Florida
22. Visitors
23. Guilt Again
24. Phyllis Excursions
25. Indulgences
26. Christmas Day
27. New Year’s Celebrations
28. Montego Bay, January 1999
29. Eating Newspaper and Peeing on the Bathtub
30. “We’ll have to find out”
31. “It’s been so long”
32. Carolyn Taking Over
33. Snow
34. Brazil
35. “I’ve had it”
36. Back from the Dead
37. Phyllis’s Birthday
38. Paralysis Overcome; Getting Philosophical
39. Two Days in Roseville, California
40. July 4th Fireworks
41. Heart Strong, Lungs Clear
42. The End
43. Writing the Eulogy
Index
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