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Overview
When met with the news that a child has been diagnosed with an illness or disability, the emotions many families experience include shock, fear, denial, grief, guilt, anger, confusion, and advocacy. I observed my parents experience these feelings when they learned their youngest child was severely and profoundly deaf, and I too upon learning my oldest child was diagnosed with dyslexia. Several years later, I would be called upon to care for a grandson who was premature and diagnosed with cerebral palsy. By the time of my grandson's birth, I would be intimately familiar with the discrimination, stares, disgust, and condemnation from people in the community.
Always finding myself in situations that required me to advocate for my brother, son, and grandson, prompted me to formally educate myself and earn a Master's degree in Exceptional Student Education. A few years later, I opened St. Jude Academy, a school for "other abled" students. It was at my school where I first met the author Sherri Snow, when she and another parent were searching for a private school to help educate their special needs children. It was a pleasure to work with them. Ms. Snow had a wealth of knowledge gained from years of advocating for her son, Collin. Our professional relationship evolved from one of mutual understanding of the needs of children with disabilities, to that of a lasting friendship. We were able to share the fruits of our separate experiences, and I learned a lot from her.
"The Journey of a Lifetime" is an amazing compilation of truth, fortitude, grit, and love. I admit more than a few tears were shed during my reading of it. From the moment they learned the diagnoses of their children, these courageous women share their experiences, good and bad, and their hopes and dreams for their children with eyes on their futures. The subjects in this work all have different "exceptionalities," and yet the pattern of responses has been the same. They worked through all crises and hardships with strong will, and the determination to obtain the best options for their "special child." They also share moments of triumph and joy. The knowledge they gained has come from years of personal research, intense observation, consultations with professionals and sharing experiences with others, who like themselves, are searching for answers on how best to navigate their own journeys.
For anyone out there who has been given the news that their precious child, grandchild, niece/nephew, cousin, sibling will need a lot of love, understanding, patience, and therapy, and will never be "normal," I recommend this book as a primer into the world of raising a child with special needs. Written from actual experiences, this book may help to ease some of the fear and shock that comes with the diagnosis. It may help the reader to recognize that he/she is not alone, and act as a guiding light toward the path of becoming the child's best advocate. The lifetime journey of raising a child with special needs from birth to adulthood and beyond, is the most hard-earned education a person can experience. No degree is awarded. Nor are there public recognitions in the forms of plaques, trophies, certificates, or medals, only the satisfaction of a job well done.
"I have fought the good fight, I have finished the course, I have kept the faith:" 2 Timothy 4:7-8
Barbara Q. McCabe, M.Ed.
Always finding myself in situations that required me to advocate for my brother, son, and grandson, prompted me to formally educate myself and earn a Master's degree in Exceptional Student Education. A few years later, I opened St. Jude Academy, a school for "other abled" students. It was at my school where I first met the author Sherri Snow, when she and another parent were searching for a private school to help educate their special needs children. It was a pleasure to work with them. Ms. Snow had a wealth of knowledge gained from years of advocating for her son, Collin. Our professional relationship evolved from one of mutual understanding of the needs of children with disabilities, to that of a lasting friendship. We were able to share the fruits of our separate experiences, and I learned a lot from her.
"The Journey of a Lifetime" is an amazing compilation of truth, fortitude, grit, and love. I admit more than a few tears were shed during my reading of it. From the moment they learned the diagnoses of their children, these courageous women share their experiences, good and bad, and their hopes and dreams for their children with eyes on their futures. The subjects in this work all have different "exceptionalities," and yet the pattern of responses has been the same. They worked through all crises and hardships with strong will, and the determination to obtain the best options for their "special child." They also share moments of triumph and joy. The knowledge they gained has come from years of personal research, intense observation, consultations with professionals and sharing experiences with others, who like themselves, are searching for answers on how best to navigate their own journeys.
For anyone out there who has been given the news that their precious child, grandchild, niece/nephew, cousin, sibling will need a lot of love, understanding, patience, and therapy, and will never be "normal," I recommend this book as a primer into the world of raising a child with special needs. Written from actual experiences, this book may help to ease some of the fear and shock that comes with the diagnosis. It may help the reader to recognize that he/she is not alone, and act as a guiding light toward the path of becoming the child's best advocate. The lifetime journey of raising a child with special needs from birth to adulthood and beyond, is the most hard-earned education a person can experience. No degree is awarded. Nor are there public recognitions in the forms of plaques, trophies, certificates, or medals, only the satisfaction of a job well done.
"I have fought the good fight, I have finished the course, I have kept the faith:" 2 Timothy 4:7-8
Barbara Q. McCabe, M.Ed.
Product Details
| ISBN-13: | 9798369263983 |
|---|---|
| Publisher: | Barnes & Noble Press |
| Publication date: | 07/12/2023 |
| Pages: | 230 |
| Product dimensions: | 6.00(w) x 9.00(h) x 0.48(d) |
About the Author
Ms. Snow was a Paralegal for over 25 years, working on many high-profile cases in Texas and Florida. She decided to become a full-time caregiver to her son Collin, which allowed her to become an advocate for other families. She served as the Co-Chair for the Family Care Council Florida, Area 4, and served as a Guardian Ad Litem for 7 years in Clay County, Florida. Ms. Snow and her son enjoy volunteering for many organizations in their community.
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