What Would You Do?: Juggling Bioethics and Ethnography

What Would You Do?: Juggling Bioethics and Ethnography

by Charles L. Bosk
What Would You Do?: Juggling Bioethics and Ethnography

What Would You Do?: Juggling Bioethics and Ethnography

by Charles L. Bosk

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Overview

In hospital rooms across the country, doctors, nurses, patients, and their families grapple with questions of life and death. Recently, they have been joined at the bedside by a new group of professional experts, bioethicists, whose presence raises a host of urgent questions. How has bioethics evolved into a legitimate specialty? When is such expertise necessary? How do bioethicists make their decisions? And whose interests do they serve?

Renowned sociologist Charles L. Bosk has been observing medical care for thirty-five years. In What Would You Do? he brings his extensive experience to bear on these questions while reflecting on the ethical dilemmas that his own ethnographic research among surgeons and genetic counselors has provoked. Bosk considers whether the consent given to ethnographers by their subjects can ever be fully voluntary and informed. He questions whether promises of confidentiality and anonymity can or should be made. And he wonders if social scientists overestimate the benefits of their work while downplaying the risks.

Vital for practitioners of both the newly prominent field of bioethics and the long-established craft of ethnography, What Would You Do? will also engross anyone concerned with how our society addresses difficult health care issues.

Product Details

ISBN-13: 9780226066776
Publisher: University of Chicago Press
Publication date: 12/01/2008
Edition description: New Edition
Pages: 288
Product dimensions: 5.90(w) x 8.90(h) x 0.70(d)

About the Author

Charles L. Bosk was professor of sociology at the University of Pennsylvania.

Table of Contents

Acknowledgements

Introduction • What Would You Do? Juggling Bioethics and Ethnography

ONE • THE ETHNOGRAPHY OF ETHICS

1. Professional Ethicist Available: Logical, Secular, Friendly

2. The Licensing and Certification of Ethics Consultants: What Part of "No!" Was So Hard to Understand?
 
3. Institutional Ethics Committees: Sociological Oxymoron, Empirical Black Box

4. Margin of Error: The Sociology of Ethics Consultation

5. Bureaucracies of Mass Deception: Institutional Review Boards and Ethics of Ethnographic Research with Raymond G. De Vries

TWO • THE ETHICS OF ETHNOGRAPHY: GENETIC COUNSELORS REVISITED

6. Invitation to Ethnography

7. A Twice-Told Tale of Witnessing

8. Irony, Ethnography, and Informed Consent

THREE • THE ETHICS OF ETHNOGRAPHY: SURGEONS REVISITED

9. The Field-Worker and the Surgeon

10. An Ethnographer's Apology, A Bioethicist's Lament: The Surgeon and the Sociologist Revisited

11. A Moment of Silence: On Not Giving Up Dr. Arthur's Ghost

CONCLUSION • PROFESSIONAL EXPERTISE AND MORAL COWARDICE

Counterfeit Courage and the Noncombatant

Index
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