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When Down Syndrome and Autism Intersect: A Guide to DS-ASD for Parents and Professionals
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When Down Syndrome and Autism Intersect: A Guide to DS-ASD for Parents and Professionals
550Paperback(2nd ed.)
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Overview
When Down Syndrome and Autism Intersect offers a thorough examination of the unique profile of a Down Syndrome-Autism Spectrum Disorder (DS-ASD) diagnosis and best practices for screening, treatment, and caretaking through the lifespan. This one-stop resource, the first of its kind, will greatly benefit families whose child is already diagnosed, and also those who suspect something more than Down syndrome. Professionals, too, will find information on how to distinguish DS-ASD from a diagnosis of just Down syndrome, and guidance on providing services for children and adults.
The editors and chapter authors are seasoned parents, advocates, doctors, dentists, psychologists, behavior analysts, nurses, educators, and financial planners. They share their experiences and expertise on the following topics:
- Diagnosis
- Emotional Adjustment & Getting Support
- Genetics
- Medical Concerns (health problems common in Down syndrome and ASD, conditions that can be missed when ASD is not recognizedreflux, pneumonia, hypothyroidism)
- When Autism is Suspected for Teens and Adults with DS (often misdiagnosed as mental health problems)
- Making the Most of Doctor Visits (coordinated, team approach to care)
- What Autism Looks Like in a Child with Down Syndrome (comparing behavior of kids with DS-only to that of kids with DS-ASD at different ages using case studies)
- Oral Health (tips & strategies to ensure cooperation during dental visits)
- Behavioral Treatments for Sleep Problems
- Care Coordination (the management of a child's needs across the entire care continuum)
- Addressing Problem Behaviors
- Designing Educational Programs
- Multicultural Challenges (best practices to serve the needs of minority populations)
- Life Planning (legal, financial, and quality-of-life issues)
Parents and professionals who previously had to piece together information about DS-ASD from sources about each separate condition can now rely on this groundbreaking book to understand and navigate the complexities and challenges of DS-ASD.
Product Details
ISBN-13: | 9781962968041 |
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Publisher: | Passion Flower Press |
Publication date: | 02/29/2024 |
Edition description: | 2nd ed. |
Pages: | 550 |
Sales rank: | 666,468 |
Product dimensions: | 7.00(w) x 10.00(h) x 1.11(d) |
About the Author
Robin Zaborek is a proud mother of four children, including an adult son with Down syndrome and a teenage daughter with Down syndrome and autism (DS-ASD), Janet Kay, who passed away during the final stages of writing this book. Ms. Zaborek is a CDA (Child Development Associate) and CNA (Certified Nurse's Assistant), and she is a long-time advocate for people with developmental disabilities. She is a co-founder of the Down Syndrome-Autism Connection?, whose mission is to provide support and education to families and professionals impacted by DS-ASD.
Table of Contents
Foreword Susan Merrill xi
Introduction Margaret Froehlke Robin Zaborek xv
Chapter 1 Introduction to the DS-ASD Diagnosis: One Family's Journey Robert Froehlke Margaret Froehlke 1
Chapter 2 But I Was Just Getting Used to Holland: Adjusting to the Autism Diagnosis Sarah A. Hartway 13
Chapter 3 The Genetics of Down Syndrome and Autism Spectrum Disorder Ellen Roy Elias 21
Chapter 4 Medical Concerns in Individuals with DS-ASD Fran Hickey 31
Chapter 5 When Autism Is Suspected for Teens and Adults with Down Syndrome Dennis McGuire Elina Manghi Brian Chicoine 41
Chapter 6 Getting the Most Out of Your Doctor Visits: Advice for Parents and Healthcare Providers Laura Pickler Kimberly Bonello 63
Chapter 7 What Autism Looks Like in a Child with Down Syndrome: The Behavioral Phenotype Susan Hepburn Deborah J. Fidler 71
Chapter 8 Oral Health Care: Finding the Way for a Child with Down Syndrome-Autism Spectrum Disorder David A. Tesini Kristi Seibel 97
Chapter 9 Behavioral Treatments for Sleep Problems in Individuals with DS-ASD Terry Katz Ann Reynolds 109
Chapter 10 The Importance of Care Coordination for Children with DS-ASD Cordelia Robinson 129
Chapter 11 Addressing Problem Behaviors in Individuals with DS-ASD Sam Towers 141
Chapter 12 Designing Educational Programs for Students with DS-ASD Patricia McVay 165
Chapter 13 Multicultural Challenges: Co-Occurring Down Syndrome and Autism Elina R. Manghi 187
Chapter 14 Life Planning for Individuals with DS-ASD Hal Wright 201
Chapter 15 Finding Support and Encouragement for the Journey: Advice from a Seasoned Parent Robin Zaborek 213
About the Contributors 219
Acknowledgments 227
Index 229