Fragile Beginnings: Discoveries and Triumphs in the Newborn ICU

Fragile Beginnings: Discoveries and Triumphs in the Newborn ICU

by Adam Wolfberg
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Fragile Beginnings: Discoveries and Triumphs in the Newborn ICU 3.8 out of 5 based on 0 ratings. 4 reviews.
Anonymous More than 1 year ago
Though not a book most expectant mothers should add to their reading list, Fragile Beginnings provides insight into the difficult decisions that clinicians and families must make when working with these tiny, fragile babies. What does quality of life mean to a parent desperate to hold their only baby? Should extraordinary means be used for babies on the very edge of viability? What is the NICU experience like for parents? What supports and care considerations can help parents and babies? With one out of ten babies born prematurely in the US, these are important (and expensive) topics to consider. Dr. Wolfberg offers a unique perspective by sharing both personal and professional experiences, making this book especially valuable and compelling. Nancy Holtzman RN BSN IBCLC RLC
TeechTX More than 1 year ago
This is an excellent book that can be read at many levels. The author is an OB who, early in his residency, was faced with the extremely premature and difficult delivery of his third daughter. He is able to bring both the professional perspective of an MD and the personal one of a parent into focus for the reader, showing among other things how vulnerable the physicians themselves can be to the difficult decisions required by extreme prematurity. This is not a self-help book for the layperson facing such a situation, but read carefully, it will bring into the focus the questions that should be asked and give the confidence to ask them. Those with some scientific or philosophical background will be intrigued and excited by the new insights into neuro-plasticity that are changing the clinical protocols for these babies almost daily with positive results. Those of us who engage in the study and practice of medical ethics will find a wealthy resource for the classroom. Every reader will discover why these smallest, most vulnerable persons among us should not be prematurely dismissed.
Anonymous More than 1 year ago
While I enjoyed the background story of the author's struggle w/ his extremely preterm daughter, the author rambled quite a bit leaving the reader wondering what the author's purpose was in writing the book. Was it catharsis? Was it to tell the story of his daughter? Was it to review the current research? Was it to show what great parents they are because they sought out modes of treatment that most parents don't have the resources to seek out? I am not sure. Portions of the book are very moving and to some degree heart wrenching but then the author immediately breaks the spell he has you under by going off on a tangent about something that at times seems completely unrelated. The book includes a lot of research review which may turn many readers off. I enjoyed reading the research review but thought it was not woven into the story very well. I feel for the author and his daughter's struggles but this book could have used a few more edits and rewrites and then probably would have been a great read.
Anonymous More than 1 year ago
The story of Larissa is well written, but if you are looking for guidance about your own experience with a premature birth, this book will be too technical/scientific to understand. I found that I consistently skipped multiple pages filled with medical history and quickly got lost in the jargon. This book defines success in perserverance, but not written for those that are not well versed in medicine.