The Experiment Must Continue: Medical Research and Ethics in East Africa, 1940-2014

The Experiment Must Continue is a beautifully articulated ethnographic history of medical experimentation in East Africa from 1940 through 2014. In it, Melissa Graboyes combines her training in public health and in history to treat her subject with the dual sensitivities of a medical ethicist and a fine historian. She breathes life into the fascinating histories of research on human subjects, elucidating the hopes of the interventionists and the experiences of the putative beneficiaries.

Historical case studies highlight failed attempts to eliminate tropical diseases, while modern examples delve into ongoing malaria and HIV/AIDS research. Collectively, these show how East Africans have perceived research differently than researchers do and that the active participation of subjects led to the creation of a hybrid ethical form.

By writing an ethnography of the past and a history of the present, Graboyes casts medical experimentation in a new light, and makes the resounding case that we must readjust our dominant ideas of consent, participation, and exploitation. With global implications, this lively book is as relevant for scholars as it is for anyone invested in the place of medicine in society.

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The Experiment Must Continue: Medical Research and Ethics in East Africa, 1940-2014

The Experiment Must Continue is a beautifully articulated ethnographic history of medical experimentation in East Africa from 1940 through 2014. In it, Melissa Graboyes combines her training in public health and in history to treat her subject with the dual sensitivities of a medical ethicist and a fine historian. She breathes life into the fascinating histories of research on human subjects, elucidating the hopes of the interventionists and the experiences of the putative beneficiaries.

Historical case studies highlight failed attempts to eliminate tropical diseases, while modern examples delve into ongoing malaria and HIV/AIDS research. Collectively, these show how East Africans have perceived research differently than researchers do and that the active participation of subjects led to the creation of a hybrid ethical form.

By writing an ethnography of the past and a history of the present, Graboyes casts medical experimentation in a new light, and makes the resounding case that we must readjust our dominant ideas of consent, participation, and exploitation. With global implications, this lively book is as relevant for scholars as it is for anyone invested in the place of medicine in society.

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The Experiment Must Continue: Medical Research and Ethics in East Africa, 1940-2014

The Experiment Must Continue: Medical Research and Ethics in East Africa, 1940-2014

by Melissa Graboyes
The Experiment Must Continue: Medical Research and Ethics in East Africa, 1940-2014

The Experiment Must Continue: Medical Research and Ethics in East Africa, 1940-2014

by Melissa Graboyes

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Overview

The Experiment Must Continue is a beautifully articulated ethnographic history of medical experimentation in East Africa from 1940 through 2014. In it, Melissa Graboyes combines her training in public health and in history to treat her subject with the dual sensitivities of a medical ethicist and a fine historian. She breathes life into the fascinating histories of research on human subjects, elucidating the hopes of the interventionists and the experiences of the putative beneficiaries.

Historical case studies highlight failed attempts to eliminate tropical diseases, while modern examples delve into ongoing malaria and HIV/AIDS research. Collectively, these show how East Africans have perceived research differently than researchers do and that the active participation of subjects led to the creation of a hybrid ethical form.

By writing an ethnography of the past and a history of the present, Graboyes casts medical experimentation in a new light, and makes the resounding case that we must readjust our dominant ideas of consent, participation, and exploitation. With global implications, this lively book is as relevant for scholars as it is for anyone invested in the place of medicine in society.


Product Details

ISBN-13: 9780821445341
Publisher: Ohio University Press
Publication date: 11/09/2015
Series: Perspectives on Global Health
Sold by: Barnes & Noble
Format: eBook
Pages: 350
File size: 7 MB

About the Author

Melissa Graboyes, a historian, examines topics related to global health, ethics, and biomedicine in East Africa. She is the author of The Experiment Must Continue: Medical Research and Ethics in East Africa, 1940–2014. She teaches in the Clark Honors College at the University of Oregon.

Table of Contents

Contents

Illustrations

Preface

Abbreviations

1: Medical Research Past and Present

Perceptions

2: East African Perceptions of Medical Research

Researchers Arrive

Historical Narrative: “Inspeakable Entomologists"

Modern Narrative: A “Remarkable Achievement”?

3: First Encounters, First Impressions

Consent or Coercion?

Historical Narrative: “Forced to Accept Trial Treatment”? A Tuberculosis

Modern Narrative: Focusing on Fieldworkers in Kilifi, Kenya

4: Ethical Recruitment and Gathering Human Subjects

Balancing Risks and Benefits

Historical Narrative: Hope Trant and a Compoundon Fire in Tanganyika, 1954

Modern Narrative: A Male Circumcision Trial Canceled in Rakai, Uganda, 2005

5: Finding an Ethical Balance

Exits and Longer-Term Obligations

Historical Narrative: “Almost Completely Eradicated”

Modern Narrative: A New Malaria Vaccine?

6: Coming to an Ethical End

7: Modern Medical Researchand Historical Residue

Appendix A: Swahili Glossary

Appendix B: Further Reading on Global Medical Research

Notes

Bibliography

Index

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