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Alex: The Life of a Child

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A father's moving memoir of cystic fibrosis "captures a brave child's legacy as well as the continuing fight against the genetic disease" (The New York Times).

In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal.



Given only two years to live by her doctors, the imaginative, excitable, and curious little ...