Just Squeeze My Hand: A Caregiver's Experience with Frontotemporal Dementia

This is a love story of a twenty-six-year marriage that was extended with a six-year slow death sentence due to the dreaded mental illness, Frontotemporal Dementia. Frontotemporal Dementia affects approximately 50,000–60,000 people (Knop, 2011 cure PSP). Frontotemporal Dementia can start in the forties age group, making it very difficult to diagnose. This story describes the challenges of a caregiver to initially know what the actual diagnosis was because it was a hard disease to diagnose.

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