My World: Living with a Rare Disease
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How could a day that started out so spectacularly, turn out so bad? As my tears began to fall, I wondered, why me?
On that day, I learned that I am one of every 2 million people who have Amyloid Disease or amyloidosis. The disease occurs when abnormal proteins called amyloid build up in organs and tissues, disrupting their normal functions. It's most common in the heart, kidneys, nerves, and liver. Symptoms vary widely and include fatigue, swelling, shortness of breath, numbness, or GI issue...


