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Nothing about us, without us!: 20 years of dementia advocacy

Nothing about us, without us!: 20 years of dementia advocacy

by Christine Bryden


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Advocating for dementia for 20 years, Christine Bryden has been instrumental in ensuring that people with dementia are included in discussions about the condition and how to manage and think about it. This collection of her hard-hitting and inspiring insider presentations demands 'nothing about us, without us!' and promotes self-advocacy and self-reflection.

Provocative and insightful, the pieces included in the book address issues that demand attention, and will change the way dementia is perceived, and the lives of people with dementia and their families.

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Product Details

ISBN-13: 9781849056717
Publisher: Kingsley, Jessica Publishers
Publication date: 09/21/2015
Pages: 304
Product dimensions: 6.80(w) x 9.60(h) x 0.70(d)

About the Author

Christine Bryden had a high-powered job in the Department of the Australian Prime Minister and was a single mother of three children when she was diagnosed with dementia in 1995. Since then, she has gone on to challenge almost every stereotype of people with dementia, speaking at national and international conferences and campaigning for self-advocacy. In 2003, she was the first person with dementia to be elected to the Board of Alzheimer's Disease International (ADI). Christine lives with her husband, Paul, in Brisbane, Australia. She is the author of 'Dancing with Dementia' and 'Who will I be when I die?', both published by JKP.

Table of Contents

Introduction. 1. Dementia diagnosis - pointing the bone. 2. Diagnosis, drugs and determination. 3. Insider's view of dementia. 4. Dementia diagnosis from an 'insider's' perspective. 5. Dancing with dementia. 6.Nothing about us, without us! 7. A bumpy ride. 8. The support that I need. 9. Stigma and fear. 10. I'm still here! 11. Coming out of the shadow. 12. A decade of change. 13. Lisa and I. 14. Dementia prison. 15. Living life to the full. 16. Mind your language - getting it right! 17. There has to be a better way! 18. Come dance with me! 19. Dementia - an interesting ride! 20. Who was I? Who am I now? Who will I be when I die? 21. Pastoral care of people with dementia.

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