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“I am known as ‘One Shot,’ because I have just one shot to save any kids who may be going through what I go through every day . . .”

Born with a deforming disease known as CLOVES syndrome, Alex Bruorton has learned to deflect the hurtful comments slung his way and focus on the beautiful, brave person he truly is.

From birth, his illness, which causes severe overgrowth in his face, was painfully evident. He has endured twenty-five surgeries to correct the growths, but nothing lasts for long. ...