The Right to Try: How the Federal Government Prevents Americans from Getting the Lifesaving Treatments They Need

Why should you need the government's permission to save your own life?

Jenn McNary's two sons, Max and Austin, were diagnosed with Duchenne muscular dystrophy—a fatal disorder that leads to muscle degeneration and eventually death. In a cruel and unnecessary twist, Max received access to a clinical trial; Austin didn't. As a result, Max was able to get out of his wheelchair and play on his school soccer team while Austin continued to deteriorate until he could not even feed himself.

The FD...